Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Furious, confused, and REALLY tired of this.

MissTeaMuse
 Share

Recommended Posts

RecoveredCeliac Apprentice
RecoveredCeliac
Posted
On 2/20/2023 at 11:41 AM, DebJ14 said:

Our son was being treated for pericaditis and lupus when he was a teen.  Because he was on large doses of Plaquenil, NSAIDs, and Prednisone he was prescribed a PPI.  Instead of just a 14 day course as now recommended, he was on it for nearly 2 years.  He was misdiagnosed, so the only drug he actually needed was the steroid for the pericarditis. It was drug induced, not systemic lupus.  Once we knew that, we began the process of weaning him off the drugs under medical supervision.  He ended up with NAFLD, which the gastro pinned on the combo of all those drugs  for such a long time.  Even now almost 25 years later he has horrible gut problems. 

you should sue

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DebJ14 Enthusiast
DebJ14
Posted
19 minutes ago, RecoveredCeliac said:

you should sue

We did!

DebJ14 Enthusiast
DebJ14
Posted
On 2/12/2023 at 8:58 AM, Grammy9 said:

Diagnosed 3 years ago by GI. At age 73. Never been sick in my life. You’re right it is totally overwhelming. Especially when you have a spouse that can’t understand it. I have DH reaction. But the gut pain is unreal. Dermatology tests showed allergy to wheat - negative! Sure! Allergists and dermatologists are not always the best source for diagnosing Celiac. Celiac many times comes with lactose intolerance. I tried lactose free milk. Took time for me to realize that I was still reacting to that. Oatly milk is the only one I can tolerate. Added vitamins. Huge improvement. I thought at my age it was time to enjoy eating out more. NOT! Not happy to be cooking at home but healthier. We travel a lot! Always have gluten free snack in my purse. Thought I could leave my kitchen as is. NOT! Convincing my husband was something else. It is overwhelming no doubt. But a good GI and accepting what you need to do to stay healthy will make a big difference. Hang in there. It will get better. 

I have Celiac, dermatitis herpetiformis yet I am not allergic, nor sensitive to wheat!  Celiac and dermatitis herpetiformis is the autoimmune reaction, which is different from an allergic reaction.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      29

      Severe severe mouth pain

      That makes sense then.
    2. trents
      - trents replied to Bogger's topic in Related Issues & Disorders
      1

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      Fosamax is a first generation "bone rebuilder" and I have heard there are newer and better things on the market now. I assume Reclast falls in the second category and gets better reviews according to this website: https://www.drugs.com/compare/fosamax-vs-reclast I think some bone rebuilding can happen when a celiac faithfully begins to practice...
    3. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      29

      Severe severe mouth pain

      @trents I am really not sure lol. I had a doctor who quit with no notice from 2 different practices and I was her patient both times, I just remember her telling me to take it. I guess for the dysphasia or Barrettes Esophagus? I have been taking it for years
    4. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      29

      Severe severe mouth pain

      @Charlie1946, what are you taking omeprazole for and how long have you been on it?
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      29

      Severe severe mouth pain

      @trents thank you!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,080
    • Most Online (within 30 mins)
      7,748
    GlutenFreeChef
    Newest Member
    GlutenFreeChef
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Severe severe mouth pain

      By trents · Posted

      That makes sense then.
    • trents
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By trents · Posted

      Fosamax is a first generation "bone rebuilder" and I have heard there are newer and better things on the market now. I assume Reclast falls in the second category and gets better reviews according to this website: https://www.drugs.com/compare/fosamax-vs-reclast I think some bone rebuilding can happen when a celiac faithfully begins to practice gluten free eating. How much may depend on a number of factors, not the least of which may be the person's age. May we ask how old you are? Gender may also play a part. What are your reservations concerning Reclast as opposed to Fosamax? And does Reclast pose less risk for bleeds/ulcers than Fosamax? I was diagnosed with celiac disease at age 50 and DEXA scans done at that time showed osteopenia. I am male and 74 years of age. I was on Fosamax for a while but discontinued it. I don't remember why I stopped but it may have been because of GERD. I have not had a DEXA scan follow-up so I can't say for sure whether or not going gluten free at age 50 resulted in any recoup of bone density. But, I have had numerous Xrays of this and that body part over the years since then and no doctor has commented on low bone density showing up in the Xrays. Of course, an Xray is not a DEXA scan but I think in a crude way they can reveal bone density because of how bright the bones appear on a Xray. And in around 25 years I have not had any fractures so I think that may say something. Here's an important question with regard to bone health: Are you on a PPI for GERD?
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents I am really not sure lol. I had a doctor who quit with no notice from 2 different practices and I was her patient both times, I just remember her telling me to take it. I guess for the dysphasia or Barrettes Esophagus? I have been taking it for years 
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, what are you taking omeprazole for and how long have you been on it?
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents thank you!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.