Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New member with interesting symptoms


Emdoller

Recommended Posts

Emdoller Newbie

A few years ago I was given a long and high dose of antibiotics. A few months later, my BP, PSA, spiked and a had leg twitches and leg pains. A cardiologist  checked me out and asked me to stop eating gluten. After a few months of that and taking magnesium, my symptoms disappeared. Last summer I started eating gluten again, and all symptoms reappeared. Right now I’m popping 800mg of magnesium daily, have gone gluten free and feel better although I do have some minor neuropathy in my one shin.
 

Given everything I’ve read no celiac and non-celiac gluten intolerance, it seems my symptoms are different. 
 

Anyone else experience something similar?

Thanks in advance. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome to the forum, Emdoller!

Neuropathy is a common symptom of both celiac disease and NCGS (Non Celiac Gluten Sensitivity). Though they share a number of common symptoms, there is no test for NCGS. Celiac disease must first be ruled out. Celiac disease is diagnosed in two stages. The first is a blood test looking for antibodies produced by celiac disease. The second is an endoscopy with biopsy to check for the damage celiac disease causes to the villi that line the small bowel. When this damage is severe, it causes vitamin and mineral deficiencies which can lead to a variety of health issues, including neuropathy. Unfortunately, testing must be done while having still been eating regular amounts of gluten. When you go off gluten, healing of the villi starts to happen and the tests will be invalidated.

It is also unfortunate that your cardiologist suggest you quit eating gluten before you were tested. Now, you will need to live with the uncertainty of whether you have celiac disease or NCGS. But the antidote is the same: complete avoidance of gluten for life.

Edited by trents
Emdoller Newbie

Thank you!! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,731
    • Most Online (within 30 mins)
      7,748

    synjadanynja
    Newest Member
    synjadanynja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
    • Steve-n-Portland
      Correction: My previous post refers to hickory products when I actually meant bakery products.
    • Steve-n-Portland
      Trader Joe's "gluten-free" hickory products are definitely not celiac safe. Their own website used to have a sidebar acknowledging this. Trader Joe's contracts out for their products, or obtains products elsewhere and puts their brand on it. Is Trader Joe's acknowledges, the facilities in which their products are made may change without notice, and ingredients or sources for ingredients may change without notice. Every time I tried Trader Joe's "gluten-free" muffins, breads, tortillas, etc, I had a reaction. The worst reactions were from the muffins (which are about 440 cals apiece, btw). 
×
×
  • Create New...