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I hate being allergic to gluten


glutenfreeoreo11

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glutenfreeoreo11 Newbie

for context, i was diagnosed with autism and adhd at 4, and was recently diagnosed with non celiac gluten sensitivity. all of the foods that were comfortable for me sensory wise are gone. no gluten free instant ramen is even remotely close to the real thing. all the bread feels like if a punch drunk boxer described bread to an alien and said extraterrestrial tried to make it. I keep relapsing on gluten, getting the worst stomach ache of my life, and learning nothing. the only way to make gluten free food tolerable is to add giant amounts of sugar. gluten based foods made me want to eat, and if i can't have those, then what's the point in eating, if not to survive. part of me just wants to shut off my appetite  and eat only pure nutrients packed into almond flour so i survive. 


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trents Grand Master

Do you have good support systems in place? Like family, good friends, mental health counselor, spouse or partner? I sense there is more going on than just food issues, not to minimize your autism and ADHD.

Scott Adams Grand Master

I can help solve at least one of your issues...Costco sells excellent millet-buckwheat ramen noodles at a good price:

https://www.costco.com/lotus-foods-organic-millet-%26-brown-rice-ramen%2C-2.5-oz%2C-12-count.product.100485555.html 

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    • trents
      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
    • Jodi Lee K
      It doesn’t specify if it’s TTG I’m not sure how to tell for that. That would be so sad. We never eat out I try to be so strict. Yes many dental products have gluten! I only use ones that don’t on myself.    No follow up procedure has been done for healing. That is something I will ask about. Thank you for the suggestion.    I don’t take any Magnesium. What would be a good supplement? 
    • trents
      Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think dealing with that issue. Have you had a follow-up endoscopy to check for healing of the small bowel villi? Also, are you taking any magnesium supplements for bone and dental health? Very important. It works together with calcium.    
    • Jodi Lee K
      I’ve had GI issues since I was a baby! They never did any testing and always said diet issues and constipation. Things got a lot worse when I hit 25, eventually got a diagnosis and I am currently 29. Yes, just recently saw my GI doctor in January and things looked pretty good. Very slightly elevated IgA but IgG was good. My ionized calcium is elevated too. I also have hashimotos but my TSH was good. 
    • trents
      Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac antibody levels or healing of the villi?
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