Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2.5 years off gluten and my latest blood work

RecoveredCeliac
 Share

Recommended Posts

RecoveredCeliac Apprentice
RecoveredCeliac
Posted

When I was first diagnosed my ttg iga was 100+.. my Liver was inflamed..   now 2.5 years later my latest blood work is all normal beyond a 1 point above normal  ttg iga...

I'm not really concerned with it because my Liver enzymes are perfect now and I'm back to my normal weight so it must not be affecting me much at all...    But how much gluten would you have to be consuming to maintain a 1 point above normal?

https://i.postimg.cc/dVNPGpwk/1.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

I doubt there is a good way to tell exactly how much, and it would likely vary a lot from person to person. Do you eat in restaurants? This is a common source of cross-contamination.

RecoveredCeliac Apprentice
RecoveredCeliac
Posted
  • Author

nope

Scott Adams Grand Master
Scott Adams
Posted

There are some studies done that have shown that Casein/cow's milk protein can also elevate tTG in some idividuals.

RecoveredCeliac Apprentice
RecoveredCeliac
Posted
  • Author

It dropped real quick from 100+ to 13 after only 5 months. Then very slowly..  only 2 - 3 points every 6 months. I actually guessed right that it would be at 4 with this last blood work based on how it was dropping.

So maybe it will drop at least 1 more point at 3 more months and be in normal range.

 

Russ H Community Regular
Russ H
Posted

Considering that your initial test result was more than 30x the standard range, and now you are very close to it, I wouldn't worry.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      7

      Question

      endomys is, aka, "EMA" and is a celiac disease antibody test. It was negative. gliaiga is, aka, IGP-IGA, is also a celiac disease antibody test. It was negative. TRANSGLUA is, aka, TTG-IGA, another celiac disease antibody test. It was in normal range. tranigg is, aka, TTG-IGG, still another celiac disease antibody test. It was high, or above...
    2. fritz2
      - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      7

      Question

      I'm 70, had gut issues my whole life. 15 years ago my grandchild was diagnosed with celiac. Since I had a constant either constipation or diarrhea and what the doctors thought was fibromyalgia and other issues I decided to see what happens if I quit gluten. I got a lot better. BTW, 30 years ago I had head & neck cancer, the radiation destroyed my...
    3. Tuba1971
      - Tuba1971 replied to Pat B's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      FDA says that most drugs are gluten-free???

      I had been glutened from somewhere since I pretty much make all my food from scratch. I had to have an endoscopy which should gluten damage, had blood work which also indicated high gluten. 4 years ago when I had these tests my gluten levels were all in good alignment. It comes down to my levothyroxin accord brand that must have gluten in it. I switched to...
    4. PA Painter
      - PA Painter replied to PA Painter's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      NCGS Diagnosis

      That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement...
    5. Viroval
      - Viroval replied to Nicbent35's topic in Related Issues & Disorders
      13

      3 year old gluten intolerance?

      Thanks for sharing this detailed explanation. It’s really helpful to understand the differences between celiac disease and gluten sensitivity. I had no idea that gluten withdrawal could feel similar to addiction, and it’s great to have that context when considering how it affects people. It’s also good to know how important it is to continue eating glute...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,757
    • Most Online (within 30 mins)
      7,748
    Sue1279
    Newest Member
    Sue1279
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Question

      By trents · Posted

      endomys is, aka, "EMA" and is a celiac disease antibody test. It was negative. gliaiga is, aka, IGP-IGA, is also a celiac disease antibody test. It was negative. TRANSGLUA is, aka, TTG-IGA, another celiac disease antibody test. It was in normal range. tranigg is, aka, TTG-IGG, still another celiac disease antibody test. It was high, or above normal range. immaqnt is, I believe, what is also known as "total IGA" and at 160, looks to be in normal range since it wasn't flagged otherwise. This is a test for IGA deficiency. If someone is IGA deficient then all other IGA test scores cannot be trusted as being accurate. You are not IGA deficient. Here is a primer explaining the various tests that can be used to...
    • fritz2
      Question

      By fritz2 · Posted

      I'm 70, had gut issues my whole life.  15 years ago my grandchild was diagnosed with celiac.  Since I had a constant either constipation or diarrhea and what the doctors thought was fibromyalgia and other issues I decided to see what happens if I quit gluten.  I got a lot better.  BTW, 30 years ago I had head & neck cancer, the radiation destroyed my thyroid.  I suffer from chronic fatigue and have to take synthroid. A few months ago, I bought a bottle of Ice water, I was thirsty and all they had at the motel was this.  It said sugar free and had a bunch of vitamins.  I couldn't read the fine print so I thought it's safe, so I bought several bottles (it had sucralose and maltodextrin in it).  I thought one...
    • Tuba1971
      FDA says that most drugs are gluten-free???

      By Tuba1971 · Posted

      I had been glutened from somewhere since I pretty much make all my food from scratch. I had to have an endoscopy which should gluten damage, had blood work which also indicated high gluten. 4 years ago when I had these tests my gluten levels were all in good alignment. It comes down to my levothyroxin accord brand that must have gluten in it. I switched to synthroid 3 weeks ago and have been doing much better and am able to sleep at night again.
    • PA Painter
      NCGS Diagnosis

      By PA Painter · Posted

      That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement.
    • Viroval
      3 year old gluten intolerance?

      By Viroval · Posted

      Thanks for sharing this detailed explanation. It’s really helpful to understand the differences between celiac disease and gluten sensitivity. I had no idea that gluten withdrawal could feel similar to addiction, and it’s great to have that context when considering how it affects people. It’s also good to know how important it is to continue eating gluten for accurate testing. I’ll keep all of this in mind!
×
×
  • Create New...