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Celiac & AID

BJO

By BJO
in Coping with Celiac Disease

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BJO Newbie
BJO
Posted

I have autoimmune disease. In 2007 I was hospitalized with autoimmune hepatitis and near death. I over came that. I am in my elder years now and have been dealing with a lot of bloating, gas and left side pain for over a year. I have not been diagnosed with celiac disease simply because I can't afford it. I have been doing a lot of researching. I had a good feeling that there was something wrong. The only health problem I have had in my life was the AIH. I had a feeling that it was something to do with AID. I could never find anything about the left side pain only the bloating and gas. The left side pain can put me down for 1-3 days. I went on a clear liquid diet and then next day nothing with bread, cereal and stayed away from gassy vegetables and did low fiber. I felt good. Tonight I had tuna fish sandwich and bloating and left pain came back in less than 30 minutes. I started more research and Finally, I found you all with the same or similar symptoms. I am so relieved to know I was not crazy. I have cried so much and my poor husband he doesn't know what to do. I getting really moody and testy at times when pain get bad. I want to thank you all for your posts. I am going to go on a gluten free diet immediately. I have checked and the food is quite expensive. I will figure this out. The joy of knowing I am not alone has brought me to tears. Is there any way I can share these post with my older sister? She also aid (RA) and complains about her stomach to.  I am so grateful and thankful for this site.

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BJO Newbie
BJO
Posted
  • Author

I read many of them and the ones that mentioned the left side pain is when I knew I had found the information I was looking for. Thank you

BJO Newbie
BJO
Posted
  • Author

I will do. I'm not sure how to get back to them but will try right now. Not very good with websites or electronics in general. 

trents Grand Master
trents
Posted

Welcome to the forum, BJO!

If you would like your sister to see your posts, the best way would be for her to join this forum like you did.

On 2/25/2023 at 6:56 PM, BJO said:

I will do. I'm not sure how to get back to them but will try right now. Not very good with websites or electronics in general. 

 

Get back to who? It seems like you are replying to someone but we can't see that person's post.

Scott Adams Grand Master
Scott Adams
Posted

Hello @BJO,

If you cannot afford testing for celiac disease simply try a gluten-free diet for a couple of months to see if your symptoms improve:

 

Wheatwacked Veteran
Wheatwacked
Posted
On 2/25/2023 at 9:52 PM, BJO said:

I have autoimmune disease.

If you haven't been tested, blood plasma vitamin D tests are fairly inexpensive and accurate. The medical boards promote that anything above 29 ng/ml (nanogram per milliliter) is sufficient but the real benefits are in the 70-90 ng/ml, and even at 10,000 IU a day it can take years to get there. The fear of too much vitamin D is way over stressed. There are few cases reported, while autoimmune disease is on the rise.

"Ekwaru et al16 recently reported on more than 17,000 healthy adult volunteers participating in a preventative health program and taking varying doses of vitamin D up to 20,000 IU/d. These patients did not demonstrate any toxicity"   https://www.mayoclinicproceedings.org/article/S0025-6196(15)00244-X/pdf

 

Quote

The Implication of Vitamin D and Autoimmunity: a Comprehensive Review  "Historically, vitamin D has been associated with the regulation of bone metabolism. However, increasing evidence demonstrates a strong association between vitamin D signaling and many biological processes that regulate immune responses. The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases." 

 

Paula Daubach Newbie
Paula Daubach
Posted

To: BJD, I've had celiac disease for over 2 yrs now. I have also been diagnosed with RA, however Dr. is thinking it may be PSA now( also arthritis/ autoimmune disease). They say if I have 1autoimmune disease that I will probably end up with at least 3. I have my 3:thyroid, RA or PSA & Celiac. The food is very expensive. I made a Hugh mistake not knowing better at 1st. I spent a lot of money buying all different types of flours , starches, yeast, etc to cook & eat celiac. Do yourself a favor it's easier than that..  I have learned that u can buy the gluten free flour ready to use. Much cheaper & easier. Bobs Red Mill is a good flour & there is 2 basic ones to buy : All purpose or 1:1 flour. And there are plenty of gluten-free  free recipes online. I believe u will definitely be able to figure out by following the diet. I have studied it a lot. There is guten in this u would never believe it's in. Envelope glue, toilet paper & paper towel ends & begginimgs of the rolls(glue). I thought I was crazy having issues with my privates...until I read an article on it. I now use Charmin toilet paper because they don't use gluten to glue the paper on the rolls. Made a Hugh difference. I had celiac bad ..the rash (DH- for short). I had2 skin biopsy 's, & a blood test all were negative. Hope this helps. The hardest thing is eating out. Good luck

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    • Nicbent35
      3 year old gluten intolerance?

      By Nicbent35 · Posted

      Well I had a moment yesterday morning where I accidentally gave her gluten. She wanted what I was eating and I forgot and let her have a few bites of toast. It was a really bad night last night with her behavior. Will a few bites of bread influence their behavior that much or could it just be a coincidence?
    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
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