Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting gluten exposure via inhalation


alross

Recommended Posts

alross Rookie

I am newly diagnosed via blood test and endoscopy so still trying to figure everything out.  My kids and husband still consume gluten, but we keep all gluten containing food separate on a bottom shelf.  I made my kids mac and cheese 2 times, and both times I got sick about 1.5-2 hours later.  I wore gloves, used separate utensils, and wiped down the counters both times, but I'm thinking it can't be a coincidence.  Because I was so careful, my only explanation is that when the noodles were cooking, I inhaled some gluten from the steam?  This seems like a stretch but I was curious if anyone had any insight on this.  I am switching to gluten free mac and cheese/pasta regardless.   What's also strange is that before being diagnosed a few weeks ago, I consumed gluten without immediately getting sick.  Would my sensitivity to gluten exposure change so drastically in such a short amount of time being completely gluten free?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

There have been others who swear that breathing in air in a bakery has made them ill, although not many doctors would agree that what you described could make a celiac sick. I guess consider using a covid-type mask when cooking gluten? At this point I think it's possible, but also consider that you may have gotten contamination in other ways too.

alross Rookie
17 hours ago, Scott Adams said:

There have been others who swear that breathing in air in a bakery has made them ill, although not many doctors would agree that what you described could make a celiac sick. I guess consider using a covid-type mask when cooking gluten? At this point I think it's possible, but also consider that you may have gotten contamination in other ways too.

Ok that's helpful thank you.  I'm still new to everything so it's quite possible that I got exposure from something else without realizing, as my kid still consume gluten containing snacks.  I switched to gluten free mac and cheese regardless so I'll be interested to see if I avoid getting sick this week.  

  • 1 month later...
Maria Deal Apprentice

Hi. I’m similar. Only 2 of us ‘empty nesters’ and we tried to just keep his food separate on weekends when he was home, separate towels in kitchen, I even got separate utensils/cutting board/some pans… eventually got an air fryer/oven combo to use just for my food. I was still sick for a few years.

We moved to a remodeled house eventually (brand new appliances never used) and that was when I started feeling human again, within a week. Then my hubby figured out he was glutening me a few times when he ate gluten, even though I never touched it. So he eats gluten-free when he is home. Then I started getting randomly sick still. Then 1 day at the store the Bakery aroma was super strong, even through masks. I never thought anything of it. Was horribly sick. Then another time I attended a meeting, people went & got food for lunch & brought it back in styrofoam containers (we ate our own snack), it was very aromatic, I did not shake anyone’s hand, still got sick. So even the steaming cooked food particles caused my body to overreact. I also get a migraine now just from that aroma, where before I got migraines from ingesting wheat a decade ago and gave it up, then was diagnosed about 5 years ago (I also get the Celiac skin rash called Dermatitis Herpetiformis). So my body is indeed reacting different!
We have to wipe down anything that enters our home with wet paper towels: mail, packages, I try not to touch anything or anyone so I do not cross contaminate myself. 🤷🏻‍♀️ Since we started this I have not been glutened as much.

If I were you, I would consider working towards total gluten-free household. If you remain sick, get a new oven/microwave/dishwasher. Family must shower & brush teeth & gargle before touching areas you reside/thrive or touching/kissing you. Pets can gluten you as well. I raise my own meat chickens, we have to buy wheat free/soy free feed (soy is a rotational & shared equipment crop, so it should be considered not safe) and also supplement with typical black oil sunflower seeds (however the bags are cross contaminated with wheat, I sometimes get glutened from that bag so we put new protocols in place = I wear 2 sets of gloves & do not reach down to bottom of bag, hubby puts it in a bucket). 🙄😑

So many things contain wheat/gluten. Watch out for glues. The drywall in my very old house does Gluten me too, but not every home is like that. 🤷🏻‍♀️😑☹️ Oh, some Celiacs react to the protein in oats, did you know that? I buy a special strain from a dedicated gluten-free place & all employees are also gluten-free too!

You will get a handle on it. I hope this gives you some ideas on what to do & what not to do. 🙏🏼😘~M

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,199
    • Most Online (within 30 mins)
      7,748

    johnkelley.kj
    Newest Member
    johnkelley.kj
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
    • Wheatwacked
      It took me 2015 to 2021 at 10,000 IU a day to get to 80 ng/ml. In 2019 I was still only 47 ng/ml The highest it has reached is 93.  Tested every 3 months.     While a one time massive dose can be used to quickly raise vitamin D levels, its effects only last three months.  Because vitamin D is stored in fat, an obese person would require more to raise blood level.     Effect of High-Dose Vitamin D Supplementation on Volumetric Bone Density and Bone Strength   The point of higher vitamin D is for the mental health and immune system requirements.  Also this study included supplementing calcium.  "Research suggests that women with low levels of vitamin D have a higher risk of breast cancer. Vitamin D may play a role in controlling normal breast cell growth and may be able to stop breast cancer cells from growing." This information is provided by Breastcancer.org. https://www.breastcancer.org/risk/risk-factors/low-vitamin-d-levels Higher vitamin D levels have been consistently associated with reduced risks of colorectal cancer https://www.cancer.gov/about-cancer/causes-prevention/risk/diet/vitamin-d-fact-sheet  
    • RMJ
      You can search here for certified gluten free olive oil GFCO productfinder
×
×
  • Create New...