Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

54wk wait for gastroenterology appointment


Dawn s D

Recommended Posts

Dawn s D Apprentice

Hi.i have got my appointment through for gastroenterology.i have to wait until mid December.my ttg iga was 67.7(0-20).my biopsy came back OK no inflammation no h pylori.inflammation was seen on camera though.saw gastritis.do I stop eating gluten and see if my symptoms improve?stomach cramps,bad wind,belching,feeling full when not eaten.bad migraines,feel shocking most times.gone from 10 stone to 8.12.my bmi is really underweight.when I had biopsy was told to continue to eat gluten until see gastroenterology??I'm waiting for my gp to ring back but he wasn't much use last time I spoke to him


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

54 weeks is a crazy long wait. You may want to confirm this with your doctor, but you could go gluten-free until ~2 weeks before your endoscopy, and then eat 2 slices of wheat bread daily beforehand. This is the normal protocol for a gluten challenge for the biopsy.

Dawn s D Apprentice

Already had gastroscopy.cudnt see owt.spoke to my gp n he said to continue eating gluten until I see gastroenterologist.he writing to hom to see if they can push it through as he can't help me with symptoms.he prescribed me fybrogel.side effects bloating and wind.cant see how that is going to help.i have enough of bloating and wind already.gp said he will re-access in 4 wks.feel like I'm banging my head against a brick wall with it all

RMJ Mentor

Luckily you don’t need a doctor’s prescription to go gluten free.  You could try going gluten free and then ask your gp to retest your ttg IgA in 6 months.  If your symptoms are better and the ttg IgA level goes down that would certainly indicate that gluten is a problem for you!

 

  • 2 weeks later...
Kelly in MO Newbie

Call the office EVERY day to check for cancelations. I had an 11 mon wait, but finally got in early with daily calls. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,568
    • Most Online (within 30 mins)
      7,748

    Terri 1962
    Newest Member
    Terri 1962
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Thankyou for that information yes I totally relate to that it's a very good read and I've felt like that too to the point were going out for dinner was aniexty before I even left home and it's funny her name is jean because that was my grandma's name and I also  believe she  coeliac undiagnosed because I look back now and she couldn't tolerate most things like me unfortunately she got bowel cancer it's such a shame it's so unrecognised by the medical profession and by people too who do t suffer it because it can be very hard living with it so thankyou so much for this 
    • Woodster991
      I've had ibs for years however I have noticed recently when I've had alcohol and then the usual hangover takeaway I get a whole range of symptoms. To start with  Gurgling in stomach  Brain fog Occasional cramps  Diarrhea  Severe constipation where it comes out in slithers and very dry  Knot in lower right abdo side. Sensitive area to touch  Alot of mucus when passing stools  Feel sick    Had tests done but all came back okay apart from low in vitamin d
    • nanny marley
      Your on the right track lactose was a good change for me too this is a great forum keep asking questions I think we both found a pot of gold here to help us 😊 x
    • trents
      Ichthus is the Greek word (using English letters) for fish. The letters in the actual Greek word form an acronym that come from the first letters in the Greek words for "Jesus", "God's Son," "Savior".   Now, back to your family's denial of your celiac disease, I think you can relate to this:  
    • Mantooth
      Thanks for the kind words. It's hard to convince my doctor to investigate further because of a negative blood test and he only tested me for one marker. 🙃 I've come to the point where I need to take this into my own hands because the doctors are infuriating and it's not going anywhere. I've been gluten free for a week and feeling better but I was still consuming dairy and I think that's what's backing me up. Next week no dairy introduced. 
×
×
  • Create New...