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maltodextrin and dairy

Xsmama
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Xsmama Rookie
Xsmama
Posted

Hello,

I was recently diagnosed in January with celiac disease. No I am on somewhat frustrating journey to go gluten free.  Through this process I have found that I have a sensitivity to maltodextrin, and I was wondering if anyone else has had this? Also, I am considering eliminating lactose/dairy after doing some research that it can irritating to the gut due to inability to digest it.  I have never gotten GI upset from dairy, so am not sure I should do this.  Just looking for advice about this as well. Thank you for reading my post!

 

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patty-maguire Contributor
patty-maguire
Posted

Maltodextrin is gluten free even if derived from wheat. 
Lactose intolerance is common with celiac disease but you only need to eliminate it if it’s causing you digestive upset. You may find this helpful. 
https://www.naturallygluten-free.com/celiac-and-lactose-intolerance.html

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum @Xsmama! 

It is pretty common at the time of diagnosis for you to have additional food intolerance issues, and milk/casein is a very common one. I had about 5 other food intolerances when I found out I had celiac disease, but the good news is that most or all may go away after sufficient time on a gluten-free diet. Once your gut heals you may find that you can tolerate those things again, and for me it took 2-3 years before I added them back (not gluten, of course).

  • 2 weeks later...
Stegosaurus Newbie
Stegosaurus
Posted

I'm 8 years strict gluten free.  All natural and artificial sweeteners, dairy, chocolate, grains make my stomach hurt, sinuses clog, sleepless, leg twitch.  Cross reaction is big for me.  I was 60 at diagnosis with decades of symptoms, and I think my poor body developed all sorts of damage and sensitivity. I've learned to enjoy other treats like roasted rutabaga, and I've lost my sweet tooth.  I only eat my own food, bring it to restaurants and potlucks.  Pity I'm not a better cook!  Keeps me slim...

Scott Adams Grand Master
Scott Adams
Posted

By the way, if staying gluten-free is an issue this article may be helpful:

 

  • 5 weeks later...
MiriamW Contributor
MiriamW
Posted
On 3/5/2023 at 7:43 PM, Scott Adams said:

Welcome to the forum @Xsmama! 

It is pretty common at the time of diagnosis for you to have additional food intolerance issues, and milk/casein is a very common one. I had about 5 other food intolerances when I found out I had celiac disease, but the good news is that most or all may go away after sufficient time on a gluten-free diet. Once your gut heals you may find that you can tolerate those things again, and for me it took 2-3 years before I added them back (not gluten, of course).

@scott adams Hi Scott. Please can I ask which foods you had to eliminate and later on managed to reintroduce? Many thanks. 

Scott Adams Grand Master
Scott Adams
Posted

You can see this towards the end of this article:

 

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MiriamW Contributor
MiriamW
Posted
14 hours ago, Scott Adams said:

You can see this towards the end of this article:

 

@Scott Adamsthank you very much, it's great to hear your story. And what a noble idea to set up and run the Celiac.com website/community. You are making a huge difference to so many of us! 

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      Hi, I’m brand new to this website but I was diagnosed 14 years ago. I am just now getting over a particularly bad flare up that lasted a full 7 days. I’ve been trying to figure out what caused it and all I can think of is I know I accidentally ate gluten (specifically wheat flour) 9 days before my symptoms started. Could it have taken 9 days for my symptoms to start? I can’t think of any other culprit it could’ve been. Thank you!
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      Thanks Scott!
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      No, small amounts of cross-contamination won't instantly cause villi damage. In fact the protocol for getting an endoscopy for celiac disease requires people to eat at least 2 slices of wheat bread per day for 2 weeks before the procedure, otherwise any damage done might not be detected. Small amounts of gluten on a daily basis, however, may lead to severe damage over time, as it would have a cumulative effect. Some celiacs, and people with DH, have intense symptoms with even a single exposure with a trace amount of gluten, while others have little or no reaction to a lot of contamination (although their health risks from prolonged exposure are the same).
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      It sounds like you're navigating a challenging and frustrating situation, and it's understandable why you'd seek clarity. Based on what you’ve described, it’s possible to have gluten sensitivity without the hallmark villous atrophy seen in celiac disease. This condition is often referred to as non-celiac gluten sensitivity (NCGS). Unlike celiac disease, NCGS does not cause the autoimmune damage to the small intestine that’s detectable through a biopsy, and it won’t show up on standard celiac blood tests. However, symptoms like gastrointestinal distress, changes in stool, and even mood issues, such as anxiety or feeling down, have been reported by others with gluten sensitivity. Your experience with mucus in your stool, stool consistency changes, and mood correlation with gluten intake could be indicative of NCGS. The low levels of zinc and folic acid you mentioned might also hint at some malabsorption issues, even if the root cause isn't celiac disease. It’s worth noting that other conditions, like irritable bowel syndrome (IBS) or a sensitivity to FODMAPs (a group of fermentable sugars in many foods, including wheat), can sometimes mimic gluten sensitivity. Since your symptoms seem to improve when you avoid gluten, it may be worth continuing a gluten-free diet to see if it helps you feel better overall. You might also consider working with a dietitian who specializes in gastrointestinal health to rule out other potential triggers and ensure your diet is balanced. If you’re still struggling to get answers from your doctor, seeking a second opinion from a gastroenterologist might also help you move forward. You're not alone in this, and I hope you can find some relief and clarity soon!
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