Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Busy Mom of 3 - Tired of This Disease

Rachel Docksteader
 Share
Go to solution Solved by trents,

Recommended Posts

Rachel Docksteader Newbie
Rachel Docksteader
Posted

Anyone else just about fed up with Celiac Disease? The amount of time I spend preventing cross contamination with every single meal and every single snack is… enough to drive someone mad. 
 

Making the rest of the family food while also preparing my gluten-free food - hey, I want spaghetti too! Trying to do it simultaneously on different sides of the kitchen. Wash hands every time I touch something. Did  I use that spoon for the gluten pasta by accident? I better just grab a new one. Wash hands again.

About to sit to eat my gluten-free sandwich - have to help one of the kids with their gluten sandwich. Wash hands. Again.


Every day.
 

All this work and then I accidentally gluten myself because I’m such a mombie (#exhaustedmom) that I slip up in the busyness of it all and gluten myself by an eating a piece of their pan pizza to test if it was ready. Thinking I made it with the gluten-free tortillas. Wrong. These were the full on gluten ones. >face palm< 

Well, there goes my next few days. Send help. 😫 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wheatwacked Veteran
Wheatwacked
Posted
(edited)
22 minutes ago, Rachel Docksteader said:

I want spaghetti too!

Try the Ronzoni Gluten Free Thin spaghetti. They won't notice the difference. 

I use Against the Grain 3 cheese pizza. brush the bottom with Grapeseed oil, add my own pizza sauce olive oil and sliced mushrooms and mix it in to the cheese. I panfry it in a cast iron frypan covered, but then I only cook one quarter at a time. It would probably do as well in a very hot oven on a tray. The grapeseed oil makes it crisper.

Yeah, the thrill of Celiac disease is over for me too.  Time to wake up. LOL

Edited by Wheatwacked
knitty kitty Grand Master
knitty kitty
Posted
(edited)

@Rachel Docksteader,

Have your kids been tested for Celiac Disease?  Even if they don't have symptoms yet, they could have inherited Celiac genes from you.  Cutting the kids' exposure to gluten now may help prevent them from developing Celiac later.  

There are many members who have a strict gluten free home, but allow gluten eating outside of the home.  Save your sanity!   

Edited by knitty kitty
Typo correction
Rachel Docksteader Newbie
Rachel Docksteader
Posted
  • Author
2 hours ago, Wheatwacked said:

Try the Ronzoni Gluten Free Thin spaghetti. They won't notice the difference. 

I use Against the Grain 3 cheese pizza. brush the bottom with Grapeseed oil, add my own pizza sauce olive oil and sliced mushrooms and mix it in to the cheese. I panfry it in a cast iron frypan covered, but then I only cook one quarter at a time. It would probably do as well in a very hot oven on a tray. The grapeseed oil makes it crisper.

Yeah, the thrill of Celiac disease is over for me too.  Time to wake up. LOL

Okay! I’ll have to see if we sell either of those in our stores here. The options are definitely getting better than what used to be available, thankfully, but we still don’t have as many of the brands/options I’ve seen people talk about! 

Rachel Docksteader Newbie
Rachel Docksteader
Posted
  • Author
2 hours ago, knitty kitty said:

@Rachel Docksteader,

Have your kids been tested for Celiac Disease?  Even if they don't have symptoms yet, they could have inherited Celiac genes from you.  Cutting the kids' exposure to gluten now may help prevent them from developing Celiac later.  

There are many members who have a strict gluten free home, but allow gluten eating outside of the home.  Save your sanity!   

My two oldest have my 5& 3 year olds have been tested and are negative - my (newly) 2  year old still needs to her his. My doctor has been great to screen them young for my peace of mind. I pray they don’t end up with this but will test again if they start to develop symptoms or I’m worried.

I’ve thought about going completely gluten-free in the house. We don’t do any gluten free baking in the house - so I guess that’s a step towards it. Absolutely no gluten flours floating in my air haha!
 

 

  • Solution
trents Grand Master
trents
Posted
  • Solution

Yes, it sounds like you may need to declare your house a gluten free zone. Let the other nonceliac members of the family get their gluten elsewhere.

Scott Adams Grand Master
Scott Adams
Posted

I am in a mixed gluten-free vs. eat gluten house, and it does take everyone following some basic protocols to keep things safe. It's more expensive to take the whole house gluten-free, and some of your family members may revolt against the idea, but hopefully they will understand.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel Docksteader Newbie
Rachel Docksteader
Posted
  • Author
9 minutes ago, Scott Adams said:

I am in a mixed gluten-free vs. eat gluten house, and it does take everyone following some basic protocols to keep things safe. It's more expensive to take the whole house gluten-free, and some of your family members may revolt against the idea, but hopefully they will understand.

Yes, at this point I don't see our house going completely gluten free...the prices where I am are insanely high for gluten free foods. I think it's like that most places from what I've heard. I want my kids and husband to be able to eat as normally as possible. As much as it would be nice to not have the extra worry when I'm preparing food, it simply doesn't make since for our family.

Thanks for your message - it helps to have this community. Have been celiac for years but just found this forum yesterday!

Hypo Rookie
Hypo
Posted
10 hours ago, Rachel Docksteader said:

Yes, at this point I don't see our house going completely gluten free...the prices where I am are insanely high for gluten free foods. I think it's like that most places from what I've heard. I want my kids and husband to be able to eat as normally as possible. As much as it would be nice to not have the extra worry when I'm preparing food, it simply doesn't make since for our family.

Thanks for your message - it helps to have this community. Have been celiac for years but just found this forum yesterday!

I am sorry but I can't understand this. We have a person WITH a disease, who already has a hard time because of it, who has to accomodate people WITHOUT the disease. Instead of the other way around. On top of it all, the person with the disease is the one doing all the work, food wise (if I understood correctly), making multiple meals, etc..

I suspect it has to do with women and mothers always willing to sacrifice more than they should.

This is your health we are talking about, that can be endangered with cross contamination, and your mental peace that is affected by constant worry and fear of CC. Gluten free is not neccessarily more expensive. You can still get 95 percent of the same food (meat, fish, veggies, fruit, rice, eggs, dairy, nuts, you name it)! The only investment I made was a bread maker to make gluten free bread. gluten-free flour is more expensive, that is true, but a) bread is not that healthy to eat so much of anyway, b) it is not that much more expensive if we consider all the junk we buy and eat all the time that is really not necessary.

And if your family needs a gluten fix, they can go into any cheap fast food chain and get a burger, eat a bag of cookies somewhere or even bring that home and eat it and clean after themselves. But there is ABSOLUTELY no need for you to prepare gluten meals at home and constantly contaminate your kitchen, and give yourself more work and worry (and with 3 kids you already have plenty of that).

My whole houeshold is gluten free, because of me. And I will not make any accommodations regarding this. My health and well being is more important than my family's petty wish to have a "real" pasta or bread instead of its gluten free version (and which they can get outside anyway - they are not permanently barred from it.) Period. Anything else would just be really selfish, inconsiderate and disrespectful from their side. I value myself more than that and so should you.

trents Grand Master
trents
Posted
14 hours ago, Rachel Docksteader said:

Yes, at this point I don't see our house going completely gluten free...the prices where I am are insanely high for gluten free foods. I think it's like that most places from what I've heard. I want my kids and husband to be able to eat as normally as possible. As much as it would be nice to not have the extra worry when I'm preparing food, it simply doesn't make since for our family.

Thanks for your message - it helps to have this community. Have been celiac for years but just found this forum yesterday!

I largely agree with what Hypo said and would like to emphasize that eating gluten-free need not be expensive if you focus on eating fresh foods like meat, veggies and fruit. It's the processed, ready made gluten-free stuff that is costly.  Actually, converting to a gluten-free household can be healthier in that sense for everyone because it eliminates a lot of junk carbs that most household eat too much of.

KHL Rookie
KHL
Posted
On 3/10/2023 at 7:42 PM, Rachel Docksteader said:

Okay! I’ll have to see if we sell either of those in our stores here. The options are definitely getting better than what used to be available, thankfully, but we still don’t have as many of the brands/options I’ve seen people talk about! 

If you live in a smaller town, you can look to online shops that deliver better quality gluten free items. A few options (for Canadians): 

https://naturamarket.ca/values/gluten-free.html

https://www.healthyplanetcanada.com/grocery/gluten-free.html

https://well.ca/categories/gluten-free_967.html

GlutenbusterMama Rookie
GlutenbusterMama
Posted

My oldest son and my husband are celiac and me and my youngest son are not. I find that making one gluten free meal for all of us makes life easier. There are so many gluten-free dinner options that taste as good as the regular version, we hardly notice the difference. gluten-free pasta, gluten-free tortillas, gluten-free nuggets are all staples in my house and they make easy dinners. It makes life easier and it's so much safer for the celiac's in the house. It was overwhelming at first to switch everything but now that we have been doing it awhile, no one notices or complains.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,302
    • Most Online (within 30 mins)
      7,748
    Deborah Donald
    Newest Member
    Deborah Donald
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ALynn
      Advantages vs. Disadvantages of having an official Celiac diagnosis

      By ALynn · Posted

      Many studies need the diagnosis to participate. 
    • cristiana
      Options - 7 year old boy - Helicobacter pylori and serology

      By cristiana · Posted

      That is such a lovely post - thank you so much, @Kathleen JJ for taking the time to write.  I am so glad I actually saw it as at the moment I'm not really supposed to be looking at the forum.  I have a couple of long overdue work projects so I was taking a breaks from the forum to concentrate on my writing. 🙂 You have handled/are handling this situation so well.  What you say about gluten-free alternatives is so true about being laden with fats and sugar, and what I find very difficult to understand is that sometimes in the UK cereals and bread aren't fortified in the same way that glutenous equivalents are - surely if anyone needs minerals and vitamins added, it's coeliacs?!  Anyway, the best way forward is to cook from scratch when time and money allows. Here is a standard cake recipe.  You will need to source gluten free self-raising flour.  If that isn't a thing you have where you live, you will need plain gluten free flour then have to add the raising agent/baking powder separately, according to the brand's instructions.  This cake can be filled with jam, or with real cream and strawberries, or topped with melted chocolate or just powdered sugar.  Or use frosting.  If you look up different flavours of Victoria Sandwiches, you can see you can make them coffee flavoured, chocolate flavoured, or lemon, by adding those flavourings.   If you need me to supply that info let me know. This cake was made famous by Queen Victoria and is a staple of British baking.  Loosely based on the French Quatre Quarts cake, another way of making it is weighing the eggs with shells on, say three, and then that same weight is applied to the margarine, flour and sugar that you use.  Make sure you prepare the tins well, as the cakes stick easily. https://www.freee-foods.co.uk/recipes/delicious-gluten-free-victoria-sponge/ You can make a third layer, it looks quite impressive stacked up high! I am sure others will suggest recipes if you put in a request on a specific thread. Lovely to catch up with your news, and I hope that you will stick around for a bit to let us know how things go! Bon appetit!   
    • Kathleen JJ
      Options - 7 year old boy - Helicobacter pylori and serology

      By Kathleen JJ · Posted

      @cristiana First of all I want to thank you for your clear and gentle approach to my questions and emails. I was quite in shock because we were totally not expecting this scenario. We're 2 weeks later now and things have settled more. After the biopsie came back positive the rest of our family got tested as well but non of us have it. But now we know what we're up against, we told him. We laid out a table with crisps he likes (and are gluten-free) and had a little festive Friday-night moment and then told him that we finally had the results of his test. We had explained the gastroscopy to him that the doctor had found some substances in his blood and wanted to look at this tummy from the inside. We told him that he had seen that there was a little wound there, explaining the horrible pains he had had. That it was easy to cure this wound and make that it never would come back: leaving out some type of foods. Both our children had been asking us for a long time to take a packed lunch to school instead of eating at the cafeteria so we ended with the 'good news' that they now can bring a packed lunch. Our daughter was over the moon, our son at first as well but then he was really sad about leaving his friends behind at the dinner table (children who eat hot meals and packed lunches are different dining areas) and that he would not be able to sit with his friends who take packed lunches as the seats are set and he's the last one in and would have to sit alone. So that was quite sad [I went to the headmaster and asked her to maybe have a shuffle of the diner tables after New Years so he also can sit with a friend and she was going to look into it]   We are now trying out different types of foods. I at this point have no idea what to put in his packed lunch as before I'd take some sandwiches and put cheese or ham on them, but the gluten-free bread I've found so far doesn't really allow for that (it breaks and falls apart). So now I'm on a hunt for nicely tasting things to put in his lunchbox.   I've been shocked somewhat to see that a lot of gluten-free products are indeed gluten-free and thus healthier for him, but are also contain much more fats and sugar then their gluten full counterparts... I didn't expect that to be honest...   Anyway, you mentioned that your daughter and her friends love your gluten-free cake. I'm very interested in a recipe. It is customary in Belgium that if a child has his birthday, they give a treat to the rest of the class, and that treat is most often cake or cupcakes. He will not be able to taste anyones treats anymore so I asked the teacher for all the birthdays and am planning to bake some for him right before those birthdays, give to the teacher so she can give to him. But this entails I have a good cake recipe 🤭. Would you be so kind to share this with me?   Kind regards, Kathleen
    • Raquel2021
      gluten-free and continued upper left side pain after drinking wine

      By Raquel2021 · Posted

      Yes stress can .make the pain worse. That being said it is taking years for my body to heal. I am not able to eat out as 98 % of restaurants do not know how to cook for celiacs.  I only eat out on special occasions. Any time I eat gluten I feel there is a tourch going through my digestive system specifically in the area you have mentioned.  Like where the deudenal is . I am very sensitive to cross contamination so any small amount of gluten makes me sick.
    • trents
      Gluten free diet - are these symptoms normal?

      By trents · Posted

      @Ems10, celiac diagnosis normally involves two steps. The first one is serum antibody testing which you may have already have had done and are waiting on the results. The second step involves and endoscopy (aka, gastroscopy) with biopsy of the small bowel lining. This second step is typically ordered if one or more antibody tests were positive, is a confirmation of the serum antibody testing and is considered the gold standard diagnostic test for celiac disease. Now hear this, you should not be eating gluten free weeks or months in advance of either kind of testing. Prematurely going on a gluten free diet can and will sabotage the results of the endoscopy/biopsy should you get a referral to a GI doc who would want to do that. Eliminating gluten from the diet causes causes inflammation to subside which allows the small bowel ling to heal such that the damage they would be looking for is no longer there.
×
×
  • Create New...