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Itching

jenski

By jenski
in Dermatitis Herpetiformis

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jenski Newbie
jenski
Posted

I have extreme itching at night, is anyone else having that symptom?

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trents Grand Master
trents
Posted

Have you been officially diagnosed with DH or if not, are you trying to figure out if your symptoms indicate DH?

jenski Newbie
jenski
Posted
  • Author

Hello Trents,

I have not been officially diagnosed. But from everything I have read it is probably what I have. It started back in October and was told it is just contact dermatitis. I have changed all the soaps and detergents and still no relief.  On March 4th I gave up gluten and things are getting better or at least not getting worse. Have itchy bumps mostly on the back of my head, hips, buttocks, lower back, upper back and neck. With flare ups in other places in small amounts. Go to the dermatologist this morning, will see what they say. From everything I have heard it may take awhile to get an official diagnosis. I also have one of the genetic markers for Celiac.   

trents Grand Master
trents
Posted

DH has a characteristic appearance with little blisters or pustules tin the center of the bumps according to my understanding. It is also important to get a skin biopsy done when you are having a fresh outbreak and the biopsy should be taken from between the bumps not on the bumps. That's what I have discerned from this forum. I do not suffer DH myself.

jenski Newbie
jenski
Posted
  • Author

Thank you Trents. The dermatologist still believes it is contact dermatitis. I let them know it is aggravated by wheat but just told me to stop eating it, which I have about a week ago. Probably won’t go back to that dermatologist and just continue to not eat gluten. I just won’t have a formal diagnosis. 

USF1970 Apprentice
USF1970
Posted

It took FOUR years of severe itching b4 being diagnosed with celiac disease and the allergist who found DH, said he had seen similarities in textbooks. As a result, I don’t put a lot of faith in dermatologists. And it took well over 6 months on a strict gluten-free diet for my skin to calm down.

  • 1 month later...
Guest 648
Guest 648
Posted
On 3/13/2023 at 11:16 AM, trents said:

DH has a characteristic appearance with little blisters or pustules tin the center of the bumps according to my understanding. It is also important to get a skin biopsy done when you are having a fresh outbreak and the biopsy should be taken from between the bumps not on the bumps. That's what I have discerned from this forum. I do not suffer DH myself.

I think trents is 100% over the target on this one.

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