Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Numb burning thigh, constant night sweats and very angry most of the time. Am i going nuts?

Mathew

By Mathew
in Related Issues & Disorders

 Share

Recommended Posts

Mathew Contributor
Mathew
Posted

Ive was diognosed celiac disease 9 months ago. Ive had 5 or 6 bouts of CC exposure in that time. Each time it happens i get violent vomiting, sweat buckets, no real stomach pain just nausea and vomiting for 24 hours, im also feezing cold and cant get warm. Im then left confused, fatigued and ussually lose half a stone each time. 

My question is, in between bouts im still sweating nightly and struggling with anger issues and my right thigh is constantly numb and burns and tingles and is much worse in the morning. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, Mathew!

I suspect you have something else going on in addition to your celiac disease but it will be hard to tell unless you can eliminate the regular CC. If I do the math you are getting CC'd about every 6 weeks and your body may not be recovering fully in between episodes of CC. At any rate, I would involve a physician in this matter. The numbness only in one thigh sounds like it could be a spinal issue, maybe a pinched nerve or something. We have had other forum members reporting night sweats but I'm not sure if this is tied to celiac disease or something else.

Mathew Contributor
Mathew
Posted
  • Author
35 minutes ago, trents said:

Welcome to the forum, Mathew!

I suspect you have something else going on in addition to your celiac disease but it will be hard to tell unless you can eliminate the regular CC. If I do the math you are getting CC'd about every 6 weeks and your body may not be recovering fully in between episodes of CC. At any rate, I would involve a physician in this matter. The numbness only in one thigh sounds like it could be a spinal issue, maybe a pinched nerve or something. We have had other forum members reporting night sweats but I'm not sure if this is tied to celiac disease or something else.

Thanks pal appreciate that. Docs dont know why im sweating at night all bloods were fine although my thyroid was slightly over active. I have more blood tests next week but i assume they will come back as fine as the ussually do.

Scott Adams Grand Master
Scott Adams
Posted

I think the only way for you to eliminate gluten as the culprit for all of the issues you're having would be to be 100% gluten-free for several months or longer. Only then will you know for sure how it might be affecting you.

RMJ Mentor
RMJ
Posted

You might look up meralgia paresthetica to see if it describes your thigh symptoms. I used to have it, due to a nerve being compressed, and it was worse at night when I was lying flat on my back. 

Mathew Contributor
Mathew
Posted
  • Author
12 hours ago, RMJ said:

You might look up meralgia paresthetica to see if it describes your thigh symptoms. I used to have it, due to a nerve being compressed, and it was worse at night when I was lying flat on my back. 

Yes thanks i think i have this.  Its hard when u have celiacs desease ive have so much health anxiety 😫 

RMJ Mentor
RMJ
Posted
10 minutes ago, Mathew said:

Yes thanks i think i have this.  Its hard when u have celiacs desease ive have so much health anxiety 😫 

I found that sleeping with a pillow under my knee helped a lot. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mathew Contributor
Mathew
Posted
  • Author
16 hours ago, RMJ said:

I found that sleeping with a pillow under my knee helped a lot. 

Legend i shall try this. Usually my dopey dog shuffling round the bed, but ill try. Thanks pal. I love this forum. Such lovely helpful people x

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. TerryinCO
      - TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      21

      New Guy Here...

      I beleive so. Waiting for response from NP.
    2. ShRa
      - ShRa posted a topic in Gluten-Free Restaurants
      0

      Gliadin X 

      Is Gliadin X recommended/safe for accidental glutening or where there is a risk of cross contamination? Or is there any other recommendation in such case? We travel alot to meet family and dine out as well. There is always risk of accidental glutening and cross contamination. Thanks.
    3. trents
      - trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      21

      New Guy Here...

      So, is their reasoning for doing another biopsy after you've been gluten free for awhile to get a comparison of before and after? In other words, there should be healing of the SB lining if you go gluten free for awhile if you have celiac disease?
    4. trents
      - trents replied to Tazzy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Pathology results - coeliac positive?

      Welcome to the forum, @Tazzy11! Yes, your DGP-IGG test is positive. It means you could have celiac disease. But there are other possible causes for an elevated DGP-IGG count. I note that your TTG-IGA was not positive. The TTG-IGA is considered the chief celiac antibody test and a bit more reliable than the DGP-IGG. But let me ask you an important...
    5. Scott Adams
      - Scott Adams replied to Tazzy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Pathology results - coeliac positive?

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,570
    • Most Online (within 30 mins)
      7,748
    Jennie Leha
    Newest Member
    Jennie Leha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      I beleive so.  Waiting for response from NP.
    • ShRa
      Gliadin X 

      By ShRa · Posted

      Is Gliadin X recommended/safe for accidental glutening or where there is a risk of cross contamination? Or is there any other recommendation in such case? We travel alot to meet family and dine out as well. There is always risk of accidental glutening and cross contamination. Thanks.   
    • trents
      New Guy Here...

      By trents · Posted

      So, is their reasoning for doing another biopsy after you've been gluten free for awhile to get a comparison of before and after? In other words, there should be healing of the SB lining if you go gluten free for awhile if you have celiac disease?
    • trents
      Pathology results - coeliac positive?

      By trents · Posted

      Welcome to the forum, @Tazzy11! Yes, your DGP-IGG test is positive. It means you could have celiac disease. But there are other possible causes for an elevated DGP-IGG count. I note that your TTG-IGA was not positive. The TTG-IGA is considered the chief celiac antibody test and a bit more reliable than the DGP-IGG. But let me ask you an important question. Prior to the blood draw, had you already begun to limit your intake of gluten? Also, were these the only two tests ordered to check for celiac disease? A physician should always order what we call the "total IGA" test (it goes by other names as well) to check for IGA deficiency. If you are IGA deficient, the scores for individual IGA celiac antibody tests, such as the TTG-IGA will be falsely low. By the way you spelled "coeliac" I judge you must be in the UK. There are several other antibody tests that can ordered when checking for celiac disease in order to get a more complete picture. Here is an article outlining the various tests:  
    • Scott Adams
      Pathology results - coeliac positive?

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    Per this article: They will likely schedule an endoscopy to see if you have celiac disease, and for this they would want you to continue eating gluten daily until that test is completed.
×
×
  • Create New...