Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How long should b12 be take as supplement?


Lindquist

Recommended Posts

Lindquist Contributor

My doctor said i have b12 deficiency , but now my b12 levels show high on blood results in P-Cobalamin in plasma it was on 1266 tmol/L does it show negative on results when you start taking supplements? How long you guys eat b12 ? Can you quit with b12 on celiac? Or do you must eat it all life?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, Lindquist!

First of all, there is no danger in taking B12 or any of the vitamins indefinitely. They are water soluble and you will excrete any excess in your urine. They are not toxic. But if your levels are now adequate or above normal you may quit taking the supplement as long as your gut is healed so that you don't lose ground with B12 levels over time. Are you strict about your gluten free diet? How long since your diagnosis? Have you had follow-up testing, either blood antibody testing or biopsy since you were initially diagnosed and if so, did the testing show gut healing?

Lindquist Contributor

i got my celiac diagnose on 15 march 2023 but i know i could have it long time before, i also have low stomach acid, and doctor said before i have ibs, but now they seen i had gluten antibodies that was high. 

Lindquist Contributor
5 hours ago, trents said:

Welcome to the forum, Lindquist!

First of all, there is no danger in taking B12 or any of the vitamins indefinitely. They are water soluble and you will excrete any excess in your urine. They are not toxic. But if your levels are now adequate or above normal you may quit taking the supplement as long as your gut is healed so that you don't lose ground with B12 levels over time. Are you strict about your gluten free diet? How long since your diagnosis? Have you had follow-up testing, either blood antibody testing or biopsy since you were initially diagnosed and if so, did the testing show gut healing?

I can not eat gluten anymore then i get ill, its not worth it. I eat paleo just now i eat also lchf, is that good start? I want clean eating

trents Grand Master

Ichf?

Wheatwacked Veteran

LCHF Is that LowCarbHighFiber?

What is the cause of your low stomach acid?

Vitamin B12 is only in animal sourced foods. The normal range for vitamin B12 (total) is between 200 – 1100 ng/L (nanograms per liter), 200 – 1100 pg/mL (picograms per milliliter), or 148 – 811 pmol/L (picomoles per liter).  Even at large doses, vitamin B12 is generally considered to be safe because the body does not store excess amounts.

 

13 hours ago, Lindquist said:

Or do you must eat it all life?  Can you quit with b12 on celiac?

You need B12 all your life. It is only found in animal products so a vegan will need to supplement always.  On gluten free diet as your gut heals malabsorption will get better and you may not need supplemental B12 IF YOU GET ENOUGH IN YOUR DIET. The total B12 plasma test is considered accurate so use it to guage your need. If your are deficient in B12 you also should look at intake of other B vitamins. High homocysteine levels could be caused by low intake of B6 or Choline, or B12 or Folate. It is an indicator of inflammation.

 eight B complex vitamins—thiamin, riboflavin, niacin, vitamin B6, folate, vitamin B12, pantothenic acid, and biotin—and choline. These water-soluble nutrients fall into two categories: those involved in the reactions of intermediary metabolism related to energy production and redox status and those involved in the transfer of single-carbon units. The B Vitamins and Choline: Overview and Methods

Lindquist Contributor
On 4/2/2023 at 4:16 AM, Wheatwacked said:

LCHF Is that LowCarbHighFiber?

What is the cause of your low stomach acid?

Vitamin B12 is only in animal sourced foods. The normal range for vitamin B12 (total) is between 200 – 1100 ng/L (nanograms per liter), 200 – 1100 pg/mL (picograms per milliliter), or 148 – 811 pmol/L (picomoles per liter).  Even at large doses, vitamin B12 is generally considered to be safe because the body does not store excess amounts.

 

You need B12 all your life. It is only found in animal products so a vegan will need to supplement always.  On gluten free diet as your gut heals malabsorption will get better and you may not need supplemental B12 IF YOU GET ENOUGH IN YOUR DIET. The total B12 plasma test is considered accurate so use it to guage your need. If your are deficient in B12 you also should look at intake of other B vitamins. High homocysteine levels could be caused by low intake of B6 or Choline, or B12 or Folate. It is an indicator of inflammation.

 eight B complex vitamins—thiamin, riboflavin, niacin, vitamin B6, folate, vitamin B12, pantothenic acid, and biotin—and choline. These water-soluble nutrients fall into two categories: those involved in the reactions of intermediary metabolism related to energy production and redox status and those involved in the transfer of single-carbon units. The B Vitamins and Choline: Overview and Methods

Thanks for replay, i am also milkprotein allergic caused of my other allergy symtoms i have of cat, dog, horse, mold, grass, birch, so i must avoid dairy products too, so i drink coconut milk or almond milk now. Hope that will work better for me. I think to eat paleo is better if im allergic to milk. 

Just now, Lindquist said:

Thanks for replay, i am also milkprotein allergic caused of my other allergy symtoms i have of cat, dog, horse, mold, grass, birch, so i must avoid dairy products too, so i drink coconut milk or almond milk now. Hope that will work better for me. I think to eat paleo is better if im allergic to milk. 

Low Carb High Fat

Paleo is what people eat in the evolution at stoneage without dairy and starch, gluten


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Lindquist Contributor

You guys and Girls handle glutenfree wheat starch thst has 20 PPM gluten? But it says gluten free. Is it ok or not? What flour you make cookies with?

trents Grand Master

We have reports frequently on this forum of celiacs being made ill by products made from modified wheat starch that has supposedly been rendered so as to meet the qualifications for marketing it as "gluten free". For example, DiGiornio's Gluten Free Pizza.  I suspect it depends on how sensitive to minor amounts of gluten the individual person is. 20ppm is on the cusp. If in doubt, I would avoid it.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,147
    • Most Online (within 30 mins)
      7,748

    CeliacPsycho246
    Newest Member
    CeliacPsycho246
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @CeliacPsycho246! This might be helpful: http://www.glutenfreedrugs.com    
    • CeliacPsycho246
      I have been experiencing debilitating OCD symptoms for the past two or three years and I'm really interested in getting on medication so that it can stop ruining my life....  I have an appointment with a general doctor December 13th to talk about prescribing medication but I am extremely concerned about gluten content.  What OCD medications  have been confirmed by the manufacturer as gluten free? I would really need a 100 percent guarantee that the medication was gluten free to take it. MY OCD manifests best with the gluten thing. Constantly worrying about if something possibly has gluten. That's one of my issues. So this is like a catch 22...  PLEASE IF ANYONE CAN HELP ME WITH SOME SOLID INFORMATION ABOUT GLUTEN FREE OCD MEDICATIONS COMMENT BELOW. THANK YOU!
    • trents
    • trents
      Are you on acid blocking medication like a proton pump inhibitor or something? I mean for acid reflux.
    • Brianne03
      My daughter was recently diagnosed with Celiac; my results are questionable and I have an appointment scheduled to see a GI doctor to further discuss. I have so many odd, ongoing symptoms that could possibly be gluten related, although who really knows!! I am considering going gluten-free whether a Celiac diagnosis is confirmed or not, just to see if there are any improvements with my dermatitis, mouth sores, aching and chronically cold hands, tingling in hands and feet, random joint pains, etc.  What are the advantages vs. disadvantages of having an official Celiac diagnosis? For instance, will it affect life insurance policies, medical insurance rates? What have you personally experienced with or without an official diagnosis? I'm almost afraid there will be more hinderances and hardships if an official diagnosis is given, but maybe I am way off base and missing the positives altogether. We are located in the US. Thank you!
×
×
  • Create New...