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I cannot stop crying right now!


Jlsnj

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Jlsnj Rookie

Hi everyone, I decided to try gluten free almost 2 weeks ago, and so far this has been life altering to say the least! At first the gastrointestinal problems calmed, then the pain let up, now my lifelong anxiety is completely gone and my rashes are disappearing! Everyday is bringing such drastic change, at first I thought I was imagining it, maybe placebo effect . I cannot stop crying today, I think it is finally sinking in that I’m ok after years of mystery symptoms.symptoms I thought I would have to live with forever. It’s so weird having chronic problems relieved so fast, it’s like my mind is being lazy catching up to my body. Mentally I’m still fatigued but physically the pain is 85% gone if not more! I’m just gonna let the tears roll!


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trents Grand Master
1 hour ago, Jlsnj said:

Hi everyone, I decided to try gluten free almost 2 weeks ago, and so far this has been life altering to say the least! At first the gastrointestinal problems calmed, then the pain let up, now my lifelong anxiety is completely gone and my rashes are disappearing! Everyday is bringing such drastic change, at first I thought I was imagining it, maybe placebo effect . I cannot stop crying today, I think it is finally sinking in that I’m ok after years of mystery symptoms.symptoms I thought I would have to live with forever. It’s so weird having chronic problems relieved so fast, it’s like my mind is being lazy catching up to my body. Mentally I’m still fatigued but physically the pain is 85% gone if not more! I’m just gonna let the tears roll!

Thanks for sharing! Keep the good work up.

Scott Adams Grand Master

It's great to hear that you are finding relief! As I recall you were diagnosed with Lupus, but were never tested for celiac disease. Given how great things are going for you on a gluten-free diet it's probably too late to worry about celiac disease screening at this point, but you could still get a genetic test for celiac disease if you are curious.

Jlsnj Rookie

I feel that it doesn’t matter for me celiac or not, I’m convinced wheat is terrible! I am also sure that my grandmom suffered from this as well, and my aunt is going through it now during cancer recovery, she is done her treatments but her digestive system is a mess. She is going to get tested at her next visit. She is amazed by my recovery but she has it in her head that gluten free is hard to do. I find it simple: no wheat = I feel good.

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    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
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    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
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      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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