Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly coeliac


Suzej1911

Recommended Posts

Suzej1911 Newbie

Hi guys 

im new to this group , my name is suze and i was getting stomach pains back last year and in September i was given an ultra sound scan and it was normal so i asked for an intolerance test. And it came back from my doctor that i was slightly sensitive to gluten and my doctor told me to go on a gluten free diet and that was 30th December and then i started my gluten free diet so been on it for 3 months now and still feel horrible , getting tummy pains, rib pain , just generally low so i need to see a gastroenterologist but been waiting ages and its really stressing me out 

has everyone on here had a gastroscopy ? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Suzej1911, welcome to the forum!

Most people who have been diagnosed with celiac disease have had gastroscopies, aka, endoscopy. It is the usual, second step, of diagnosis. In the USA it is normally done under conscious sedation so there is no discomfort.

Edited by trents
Scott Adams Grand Master

Do you know what type of tests were done? Did you have a celiac disease blood panel? More info would be helpful. 

Also, is your diet 100% gluten-free?

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,029
    • Most Online (within 30 mins)
      7,748

    LCO
    Newest Member
    LCO
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cvernon
      Well, I just got a response and it's not good. 1 - GFFP only requires a manufacturer to submit one test result upon their application for certification showing their product is 5ppm or lower. They do not require any additional testing once that first test is submitted to maintain GFFP certified status (sigh ..). So many questions about how they don't require periodic audits. How does GFFP know the manufacturer hasn't changed an ingredient source that could potentially introduce gluten, or if lines are now shared with gluten containing products? 2 - That test can be conducted by the manufacturer themselves (double sigh...). Huge conflict of interest letting the manufacturer conduct the test. I honestly feel less comfortable with GFFP criteria than I do with GFCO.     
    • cvernon
      Jsingh, I have not. I emailed over the weekend, so I assume I'll get a response this week hopefully. I'll post as soon as I hear back.
    • Aleda D
      Oh, also, just based on my horrific reactions to them and continued aftereffects, I will never consent to take another PPI, nor another fluoroquinolone-related antibiotic. I am alarmed to read PPIs are sometimes prescribed to infants and children. Even my dog was prescribed Prilosec.    I don’t see how medications that indescriminately kill off digestive flora can actually help with celiac disease and NCGS, as these conditions already block healthy digestion. In my case, I took a PPI daily for about 4 years as prescribed by my GP, developing arthritic symptoms at an alarming rate in my 40s and 50s. I remembered the worst GERD event being when I ate a saltine at 10 AM, breaking the nightly fast. Volcanic GERD. What’s in a saltine? Wheat. I cut out wheat and barley and rye, and eventually oats (still eat certified gluten-free oats though) and have been eliminating gluten and gluten-contaminated foods since 2013. But the most recent PPI treatment for breakthrough GERD scar tissue narrowing my espophagus kicked arthritis and muscle pains into high gear, making me feel 190 years old. I stopped the PPI after a month of suffering. The medicine was much worse than the ailment. So my advice to those with celiac disease and NCGS is to avoid fluoroquinolones and PPIs. Find the cause of the escaping acid and address it. In my case, I regularly need animal derived protein to mop up all the acid I seem to produce. I hate that, because I’m an animal lover, but it is what it is. 
    • allis
      One had hydrolyzed wheat protein and the other had triticum vulgare starch, so both had gluten. After the second time it happened, I went through all of my other products to ensure they were gluten free and they are, so it’s definitely the gluten I’m reacting to. I’m not surprised this is happening now—I had a shaved head for the last 5 years but am now growing it out so I’m using products again when I hadn’t been for awhile! Both products were new. So I should see an allergist to confirm the allergy? Is there a way to confirm the celiac without eating gluten for weeks and weeks?
    • Aleda D
      The nutritional deficiency & supplements advice is priceless. I have suspicions I have celiac disease but absolutely cannot put myself through the gluten challenge process to verify the diagnosis. Compounding the probable celiac disease, I feel, is my disastrous reactions to being prescribed years of prilosec/omeprazole, which I finally took myself off of due to symptoms of nutritional deficiencies, followed by being placed on it by my GI for GERD in stints of 2 months off and on. And I suspect it’s possible that a fluroquiolone antibiotic I took also contributed to existing lifelong malabsorption problems. I have made a lot of stringent diet adjustments (super strict about avoiding gluten contamination and I incorporate fermented things) & exercise regularly (walking, resistance, stretching) plus I take Vitamin D3, B6 and B12, but severe muscle spasms, muscle soreness, deep fatigue, joint inflammation and tendency to infections and brain fog keep dogging me.  I appreciate the supplements and the Omega ratios advice very much!! 
×
×
  • Create New...