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Getting glutened from being hugged!


Sherma
Go to solution Solved by Maria Deal,

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Sherma Rookie

Every time I go to family gatherings and get hugged by family I get diarrhea! I am a 77 year old great grandma; I want to be hugged! I want to go to the gatherings! I am thankful to say that I do not have a lot of the intestinal problems/severity. But what damage is it doing anyway and does it matter at my age? I do not eat gluten, I don't go if they are baking from scratch with flour in the air. Mentally this is tearing me up!!! I am so depressed! My 51 year old son sat beside me, I asked if he had been eating gluten, he answered "Probably." and gave me a big wonderful hug!!! after that I just shut up and let them all hug me!!!

 


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  • Solution
Maria Deal Apprentice

I understand. I am an Airborne Celiac and avoid handshakes/touching as well. So the aroma from food steaming gets me as well, actually figured this out from cooked food being brought into a meeting in styrofoam… and I touched no one!


Do you wear a face mask? I do. I think it helps. 🤷🏻‍♀️
 

I make sure I wash my hands after touching things others touch, like doorknobs as well. As we hug: I try to exhale when our faces are close, turn my head away, over their shoulder, then inhale. Hope that helps.😘

trents Grand Master

I don't see how skin to skin contact with a person eating gluten could cause a gluten reaction in another who has gluten intolerance/sensitivity. When gluten is ingested, it is broken down into simpler proteins in the digestion process and is no longer gluten. Certainly, it would not reconstruct itself and show up as gluten on the outside of the skin. I would suspect there are gluten issues with the food served at family gatherings rather than the hugs.

Sherma Rookie
6 hours ago, Maria Deal said:

I understand. I am an Airborne Celiac and avoid handshakes/touching as well. So the aroma from food steaming gets me as well, actually figured this out from cooked food being brought into a meeting in styrofoam… and I touched no one!


Do you wear a face mask? I do. I think it helps. 🤷🏻‍♀️
 

I make sure I wash my hands after touching things others touch, like doorknobs as well. As we hug: I try to exhale when  our faces are close, turn my head away, over their shoulder, then inhale. Hope that .😘

Thank you so much. No I don't wear a mask. Stubborn I guess. I just want to live the rest of my life in some normalcy! OK I'll get my act together. But for instance, at that gathering; I had 3 seizures with family coming to my rescue then walking me to my nearby home & bed! Often I have 2 helping me get home. I have a small home at my daughters home. How can I get their help & not get glutened? 

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      Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.pmed.0010023. Epub 2004 Oct 19. PMCID: PMC523841. AND ALSO SEE: Bascuñán KA, Orosteguí C, Rodríguez JM, Roncoroni L, Doneda L, Elli L, Araya M. Heavy Metal and Rice in Gluten-Free Diets: Are They a Risk? Nutrients. 2023 Jun 30;15(13):2975. doi: 10.3390/nu15132975. PMID: 37447301; PMCID: PMC10346754. Celiac disease is one of the most common autoimmune gastrointestinal diseases; over the last decades, its prevalence indicates a mean annual increase in frequency currently calculated at 7.5% per year [23]. celiac disease is triggered by gluten present in the diet and the disease involves autoimmune and inflammatory damage to the small intestine in genetically susceptible individuals. To develop celiac disease a person must inherit the genetic predisposition; however, about one third of the population carries the risk genes and only ~1% of the population develops the disease, indicating that genetics is not sufficient to explain the condition. The environment participates by providing the triggering factor, i.e., gluten, and the disease is activated by environmental factors which, until now, have not been fully understood, among which changes in eating habits and the intestinal microbiota are considered to be significant factors [24,25]; yet, current knowledge is insufficient to explain the mechanisms involved. Currently, the only treatment for celiac disease is a GFD for life. AND ALSO SEE: Dr. Osborne: Although rice is considered gluten-free based on the definition set forth by the FDA, rice does contain a different form of gluten prolamin called orzenin. In my experience, those with known celiac disease or non celiac gluten sensitivity issues do better when avoiding rice.
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