Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Sources of Gluten?


ac5858

Recommended Posts

ac5858 Newbie

I have been gluten-free for 12 years now and of course deal with the occasional flare-ups of getting "glutened." I recently went on an SSRI (Zoloft/Sertaline), and have been experiencing the strangest symptoms, and can't help but wonder if they are due to gluten. I have been extremely fatigued, horrible headaches, canker sores that will not go away, acne, and brain fog. 

Has anyone else experienced something similar? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

How long have you been taking the SSRI? Maybe it's a matter of your body needing more time to adjust to it or maybe the dosage needs to be adjusted.

Also, as you know, wheat starch can be used in pills as a filler. See what you can find out from the dispensing pharmacy and if necessary they can give you information about their supplier to ask more detailed questions.

Many medications also leach or block the uptake of certain nutrients and that could figure into your symptoms.

There is also the possibility that you have developed an additional food intolerance that mimics the effect of gluten. Do you have celiac disease or NCGS (Non Celiac Gluten Sensitivity)?

knitty kitty Grand Master

@ac5858,

After being on the gluten free diet for such a long time, it is more likely you have developed nutritional deficiencies.

1 hour ago, ac5858 said:

 I have been extremely fatigued, horrible headaches, canker sores that will not go away, acne, and brain fog. 

These are all symptoms of Thiamine deficiency.  I know from experience, thiamine deficiency will cause Depression, extreme fatigue, headaches and brain fog, and canker sores and acne.

Nutritional deficiencies can occur on the gluten free diet.  Processed gluten free facsimile foods are not enriched with vitamins and minerals lost in processing like gluten based foods are required by law to do.  

Thiamine is Vitamin B 1.  Thiamine works with magnesium (magnesium glycinate is the gentleman form) and the other seven B vitamins.  Thiamine can only be stored for three weeks, with deficiency symptoms occurring within a week.  One can have a subclinical thiamine deficiency for a long time.  Symptoms can wax and wane depending on how much Thiamine is included in the diet daily.  

Vitamin D deficiency is also a cause of depression.

My depression did NOT resolve on antidepressants.  Only after supplementing with Vitamin D (my lab test showed severe Vitamin D deficiency) and Thiamine.  

Here are some articles that explain more in depth....

 

For those canker sores...

Recurrent aphthous stomatitis and thiamine deficiency

https://pubmed.ncbi.nlm.nih.gov/8974135/

AND...

Recurrent aphthous ulceration: vitamin B1, B2 and B6 status and response to replacement therapy

https://pubmed.ncbi.nlm.nih.gov/1941656/

 

DEPRESSION....

Adjuvant thiamine improved standard treatment in patients with major depressive disorder: results from a randomized, double-blind, and placebo-controlled clinical trial

https://pubmed.ncbi.nlm.nih.gov/26984349/

AND...

Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/?report=reader

 

Vitamin D and depression

Vitamin D and Depression: A Critical Appraisal of the Evidence and Future Directions

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6970300/

 

DIET...

Antidepressant foods: An evidence-based nutrient profiling system for depression

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6147775/?report=reader

 

 

Do get checked for vitamin and mineral deficiencies!  Discuss with your doctor the benefits of supplementing with extra thiamine and a B Complex, and Vitamin D, and magnesium.

Hope this helps!

plumbago Experienced

I've gotten aptheous (spelling?) ulcers in my mouth - but it's been a while. It may have been due to tomatoes, sugar, or something viral. I was never really able to nail it down for sure. I did change to a toothpaste without SLS. For the most part, everything I did (new toothpaste, trying hard not always successfully to reduce sugar)

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.