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Rashes


alexsb01

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alexsb01 Apprentice

I’ve been diagnosed with celiac over 2 months ago. My stomach issues have gone as well my other symptoms. I am eating healthier and cooking at home. I am extra careful with cross contamination etc. and seasonings. 
 

After 4 weeks of diagnoses, I started getting random red rashes all over my body. They come and go, sometimes they’re not even itchy.  Sometimes just an itchy bump and then it just disappears. 
 

I’ve changed my body wash, detergent and stopped using fabric softener. Everything I use is approved by the Canadian Celiac Association. I’m wondering if this is a withdrawal or maybe a totally different issue. Has anyone else experience this? I never got this pre-diagnosis. 


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Scott Adams Grand Master

That is strange, and it sounds like some sort of allergy rather than dermatitis herpetiformis, which is the skin condition associated with celiac disease. 

Did you add new things to your diet after going gluten-free, and are you sure your diet is 100% gluten-free? One idea is that maybe you have an allergy to some new food you introduced after going gluten-free.

alexsb01 Apprentice

No I haven’t added anything new, I try and avoid boxed/processed foods that say they’re gluten free. I hardly go out to restaurants because it’s too stressful. I’ve only gone out twice since diagnoses. 
I haven’t really tried anything new either. Any seasonings I use are gluten free. 
it’s been about 5 weeks that this has been happening. I am at my wits end. 

Scott Adams Grand Master

Do you eat oats? About 9% of celiacs cannot tolerate oats. You may want to keep a food diary and cut out things like dairy, eggs, corn, etc., and see if it helps.

alexsb01 Apprentice

No oats. I’m going to start cutting out the other stuff like eggs, dairy and corn and see if it’s any of those. 

Scott Adams Grand Master

You may want to just do one at a time and see if you can find the culprit.

PS - While you are recovering from celiac disease you likely have leaky gut syndrome, which can cause temporary food intolerance/sensitivity issues. These may go away after you fully recover. 

alexsb01 Apprentice

Oh definitely! 
 

oh wow I no idea! As long as it goes away!! This disease sucks! I’ve never been so stressed out in my life! 


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Wheatwacked Veteran

I'd start with the corn.  Some reactions include: Hives (red, itchy skin bumps) or a skin rash.

For stress start by increasing your intake of vitamin D.  It is traditional for Celiac, and most diseases to be low.

Lithium Picolate 5 mg helps with "gotta do it, now!" 

What are the symptoms of pellagra, B3 Niacin deficiency.

  • Chronic diarrhea, sometimes bloody.
  • Abdominal pain and indigestion.
  • Loss of appetite, nausea and vomiting.
  • Itchy or painful skin rashes.
  • Mouth sores and a red, swollen tongue.
  • Fatigue, weakness and malaise.
  • Mood changes, depression.
  • Neurological symptoms such tremors or numbness and tingling in the hands and feet.
  • Delirium and dementia.
cristiana Veteran
(edited)

I had something that sounds just like that and it turned out to be a type of eczema, strange because I hadn't had it as a child.  It started in my early 50s.

I went to the doctor and he prescribed a topical steroid, Betnovate, and an emollient gel with an added anti-inflammatory agent known as Adex.  He advised me to apply the Adex 20 minutes before a thin layer of Betnovate, twice a day.  It was fantastic - within days the rash was almost gone.  I used Neutrogena tar shampoo for my itchy scalp. 

I now rarely have this rash - if it starts up again, I start using the cream and/or steroid and it seems to clear up really quickly.

Interestingly, when I had it badly I happened to have a blood test as part of my celiac annual testing which showed I had elevated IgE levels.

https://www.webmd.com/skin-problems-and-treatments/eczema/eczema-allergen-ige-test

I think at the time I had given up chocolate and instead was eating something that contained almonds, not in great quantity, but I think for me that was the trigger - why almonds have never affected me in this way before I don't know, but I suppose people develop allergies/intolerances at different stages in their lives?

 

 

 

 

 

 

Edited by cristiana

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    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
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