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Gluten App


Barry W
Go to solution Solved by Barry W,

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Barry W Rookie

I have been diagnosed with celiac disease within the past week. I have been using two gluten-free Scanners that I downloaded from Google Play Store. I would like to know how accurate they are. One has gluten-free in red letters in a white background surrounded by red. The other shows a barcode with a red line in the middle. Thank you for any information you can give me. 


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Scott Adams Grand Master

What are the apps? It's a bit hard to comment on them when we don't even know which ones you downloaded. 

In general it's best to learn to read ingredient labels and allergen warnings than to reply on an app. Users here are unlikely to know when and how they update them.

trents Grand Master
(edited)

Welcome to the forum, Barry W!

Can you give us the actual names of the apps?

Personally, I do not rely on apps to avoid gluten and I don't think many of our members on this forum do, at least not those who have been dealing with celiac disease for awhile. The problem with them is their usefulness and reliability depend on input from app users. So, their data bases may be quite incomplete and/or dated.

It's much safer to educate yourself as to how the food companies can disguise gluten with terminology like, "malt extract flavoring", for example and to become a committed ingredient label reader. Especially, take the time to read at least the allergen list on food products. "Naturally gluten free" doesn't necessarily rule out gluten from cross contamination. There is also a difference between "Gluten Free" and "Certified Gluten Free", the latter being subject to stricter standards. There are gray areas like when you read on a label, "Processed in a facility that also handles tree nuts . . . and wheat. In other words, Wheat, barley or rye (the three gluten containing grains) may not be an intentional ingredient but it could have picked up some by being processed on shared machinery. Some of these decisions may depend on how sensitive as an individual you are to gluten. What causes a reaction in others may or may not bother you. After a year or two, you will develop a sixth sense about where gluten may be found in things sold in the grocery store and about what things you need to look more closely into.

This may be of help to you at this point:

 

Edited by trents
  • Solution
Barry W Rookie
1 hour ago, trents said:

Welcome to the forum, Barry W!

Can you give us the actual names of the apps?

Personally, I do not rely on apps to avoid gluten and I don't think many of our members on this forum do, at least not those who have been dealing with celiac disease for awhile. The problem with them is their usefulness and reliability depend on input from app users. So, their data bases may be quite incomplete and/or dated.

It's much safer to educate yourself as to how the food companies can disguise gluten with terminology like, "malt extract flavoring", for example and to become a committed ingredient label reader. Especially, take the time to read at least the allergen list on food products. "Naturally gluten free" doesn't necessarily rule out gluten from cross contamination. There is also a difference between "Gluten Free" and "Certified Gluten Free", the latter being subject to stricter standards. There are gray areas like when you read on a label, "Processed in a facility that also handles tree nuts . . . and wheat. In other words, Wheat, barley or rye (the three gluten containing grains) may not be an intentional ingredient but it could have picked up some by being processed on shared machinery. Some of these decisions may depend on how sensitive as an individual you are to gluten. What causes a reaction in others may or may not bother you. After a year or two, you will develop a sixth sense about where gluten may be found in things sold in the grocery store and about what things you need to look more closely into.

This may be of help to you at this point:

 

Trents,

Thank you for the reply. 

The apps are titled The Gluten Free Scanner and Gluten Free Scanner.

I looked into the information that shows START HERE. There are more ways to a gluten free diet than food. I didn't know about soap and shampoo. I didnt realize that there are so many ways for cross contamination just at home. 

My wife has been very supportive. We went into the food pantry and gave away half of the food. She has a list of dinners she is making this week.

Thank you again. The information you gave me will help.

Take care,

Barry

trents Grand Master
(edited)

Barry, I would advise getting a follow-up celiac antibody test in 6 mos. to a year from your original diagnosis to determine if you are being successful in avoiding gluten.

Also, be aware that food companies can and do change their formulations. What was once gluten free may not stay that way forever so it's smart to continue to read labels and not assume that what was gluten free will remain that way in perpetuity.

Also, if your wife continues to eat gluten be aware that kissing someone who has recently consumed gluten may get you glutened.

Edited by trents
Barry W Rookie
13 hours ago, trents said:

Barry, I would advise getting a follow-up celiac antibody test in 6 mos. to a year from your original diagnosis to determine if you are being successful in avoiding gluten.

Also, be aware that food companies can and do change their formulations. What was once gluten free may not stay that way forever so it's smart to continue to read labels and not assume that what was gluten free will remain that way in perpetuity.

Also, if your wife continues to eat gluten be aware that kissing someone who has recently consumed gluten may get you glutened.

Thank you. My next doctor's visit will be in three months.

Barry W Rookie
15 hours ago, Scott Adams said:

What are the apps? It's a bit hard to comment on them when we don't even know which ones you downloaded. 

In general it's best to learn to read ingredient labels and allergen warnings than to reply on an app. Users here are unlikely to know when and how they update them.

The apps are named Ghe Gluten Free Scanner shows gluten-free surrounded in red and Gluten Free Scanner. shows barcode with red line. Thank you for your reply. 


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Scott Adams Grand Master

I've heard of Gluten Free Scanner, but not the other one. In general such apps are only as good as their last database update, so it's hard to know how up to date they are. No matter what it is always a good idea to look at ingredient labels when you shop, as ingredients can change without notice.

Barry W Rookie
19 hours ago, Scott Adams said:

I've heard of Gluten Free Scanner, but not the other one. In general such apps are only as good as their last database update, so it's hard to know how up to date they are. No matter what it is always a good idea to look at ingredient labels when you shop, as ingredients can change without notice.

Thank you for your information. It's much appreciated.

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      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
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      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
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