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Desperately need help with wife and my gluten allergy.

Stulos
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Stulos Rookie
Stulos
Posted
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Mast Cell Activation Syndrome is what my immunologist ended up diagnosing me with. 

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trents
trents

OP's spouse has been accused of "gas lighting" and diagnosed in this thread as suffering from "Munchhausen by proxy" and Narcissistic Personality Disorder. I would remind this forum community that we

shadycharacter
shadycharacter

I'm so sorry reading about your situation. To me it sounds as if your wife is gaslighting you. 

Rogol72
Rogol72

The emotional stress alone from dealing with such a situation will severely deplete vitamin and mineral status beyond gluten free or AIP diet. I sincerely hope your situation will get better as soon a

knitty kitty Grand Master
knitty kitty
Posted

But what is your immunologist suggesting you do to improve the MCAS? 

Stulos Rookie
Stulos
Posted
  • Author

Nothing. He said there is no medicine left to try. Just take the Low Dose Naltrexone and stay away from the allergens. 

He says if it hurts me don't be exposed to it. 

shadycharacter Enthusiast
shadycharacter
Posted
1 hour ago, Stulos said:

I do describe it as an allergy. As far as I, and my immunologist, can see it is. She says it's not and I'm mentally ill.

Says that right in front of kids and now some of them are saying it.

I did have a lawyer I spoke with once say it was considered abuse to make someone sick with an allergen you know they have. I don't know who that person was though and can't contact them again. I was calling around once desperate when I was made to live in that shed for over a year. 

Do you have or could you get a document from the immunologist to support your case? 

I'm not American and don't know much about US law, but I've come across the term abandonment somewhere. Is she trying to drive you out of the home and force you to abandon them? If so there is also a term "constructive abandonment" where the person making it impossible for a spouse to stay, for example because of abuse, can be seen as guilty of constructive abandonment:

What if the spouse who walks out has a good reason for doing so? Courts recognize something called "constructive abandonment," which refers to behavior that essentially forces the other spouse to leave. 

https://www.divorcenet.com/resources/abandonment-and-desertion-in-divorce.html

knitty kitty Grand Master
knitty kitty
Posted

@Stulos,

Vitamin D, Vitamin C, B Complex, magnesium and extra Thiamine (Benfotiamine and Thiamine Hydrochloride) will help immensely.  

Mast cells degranulate (release histamine) easily when there is a deficiency of Thiamine.

Taking high dose Thiamine helped me with MCAS.  I took Benfotiamine and Thiamine Hydrochloride.  I took 1000 mg or more every day.  It really helps and results come very quickly.

Reading material for MCAS...

https://www.hormonesmatter.com/reversing-mast-cell-activation-and-histamine-intolerance-summit/ 

And...

https://pubmed.ncbi.nlm.nih.gov/10411347/

And...

 

Rogol72 Collaborator
Rogol72
Posted

@Stulos,

I agree with @knitty kitty, getting sufficient vitamins and minerals will help with histamine intolerance ... especially Vitamin D and Thiamine. I remember coming across this site when I was researching HI ... https://mastcell360.com/ . Read her Bio, it may be a good fit for you and your particular situation.

Here's another good resource ... https://www.histamineintolerance.org.uk/allergy-mastocytosis-histamine-intolerance-so-whats-the-difference-2/

shadycharacter Enthusiast
shadycharacter
Posted
On 7/20/2023 at 8:18 PM, Stulos said:

I do describe it as an allergy. As far as I, and my immunologist, can see it is. She says it's not and I'm mentally ill.

Says that right in front of kids and now some of them are saying it.

I did have a lawyer I spoke with once say it was considered abuse to make someone sick with an allergen you know they have. I don't know who that person was though and can't contact them again. I was calling around once desperate when I was made to live in that shed for over a year. 

Could it be that she is in such denial that she doesn't understand, or doesn’t want to understand, that she is actually harming you by ruining your allergy safe home environment that you so clearly need? Even though she has been supportive in the past. 

She accuses you of being mentally ill because you don't see it her way, but what if it's the other way round and she's the one with some kind of mental breakdown? You say she's snapped. Is she the one in need of psychiatric help? She seems to be a danger to your health, and possibly the kids' if she ignores their allergies. 

You have your immunologist and others to back up your side of the story. 

Ideally there could be some treatment for her if she's the one with a mental problem.

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