Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr found my kidneys are having problems


ButWhatCanIEat

Recommended Posts

ButWhatCanIEat Explorer

I went to dr 2 weeks ago complaining of fatigue and my kidneys were operating at only 50% when he tested them. I was very shocked as I had never had a bad kidney test before. I've been dxed Celiac since late 2020, I have been VERY careful to avoid gluten (although there have been a few accidents, as we all have) and there is no gluten in my house as my wife also has a wheat allergy. I also avoid milk, and am mostly vegetarian so my protein intake is low. The doctor thinks it is because of NSAID use and now I cannot use those or stomach medications and I am having repeat bloodwork this week.

 

I'm feeling so discouraged as I read about further possible dietary restrictions that come with kidney disease. I feel like I'm being punished somehow but I don't know what I did wrong. I'm in pain all the time now and there is nothing I have for pain relief. My stomach hurts constantly due to celiac issues and I cannot take antacids. I just don't know what I'm going to do. I feel like this is the end.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Sorry to hear about your health complications.  

For pain relief, I take high dose Thiamine Vitamin B 1, Pyridoxine Vitamin B 6, and Cobalamine Vitamin B12.  I can't take NSAIDs either. 

Here are articles from the National Institute of Health....

Analgesic and analgesia-potentiating action of B vitamins

https://pubmed.ncbi.nlm.nih.gov/12799982/

And...

Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review

https://pubmed.ncbi.nlm.nih.gov/35156556/

Also, Thiamine (especially Benfotiamine) can help with kidney disease.  I have Type Two Diabetes as well as Celiac.  Diabetics lose lots of Thiamine in urine, so high dose Thiamine helps immensely.

Here are some more articles from NIH that you should discuss with your doctor.  

Benfotiamine Protects against Peritoneal and Kidney Damage in Peritoneal Dialysis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3083313/

And...

The uremic toxin oxythiamine causes functional thiamine deficiency in end-stage renal disease by inhibiting transketolase activity

https://pubmed.ncbi.nlm.nih.gov/27198804/

And...

Functional thiamine deficiency in end-stage renal disease: malnutrition despite ample nutrients

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5518601/

And...

Associations between early thiamine administration and clinical outcomes in critically ill patients with acute kidney injury

https://pubmed.ncbi.nlm.nih.gov/34392848/

And...

https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/

And...

Thiamine deficiency disorders: a clinical perspective

https://pubmed.ncbi.nlm.nih.gov/33305487/

And...

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Hope this helps!

Keep us posted on your progress!

trents Grand Master
(edited)

Can you take calcium carbonate-based antacids like TUMS? Also, I know that NSAIDS can stress the kidneys but what about Tylenol which is metabolized by the liver?

Edited by trents
shadycharacter Enthusiast

Egg white is alkaline. Not sure if that helps. One egg white contains about 4 g protein. How much protein a day can you eat? I suppose protein is one of the things that are restricted?

Apparently newly laid eggs are mildly alkaline, and then they get gradually more alkaline with time due to loss of carbon dioxide.

knitty kitty Grand Master

Magnesium would be a better choice to help with the need for an antacid.

Not only is magnesium needed to work with Thiamine, magnesium has been shown to help with kidney failure.

Low serum magnesium is associated with faster decline in kidney function: the Dallas Heart Study experience

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6660364/

And...

Magnesium in Kidney Function and Disease-Implications for Aging and Sex-A Narrative Review

https://pubmed.ncbi.nlm.nih.gov/37049550/

And...

Magnesium Administration in Chronic Kidney Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9920010/

And...

https://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/

ButWhatCanIEat Explorer
8 hours ago, trents said:

Can you take calcium carbonate-based antacids like TUMS? Also, I know that NSAIDS can stress the kidneys but what about Tylenol which is metabolized by the liver?

I haven't asked him about tylenol, I"m afraid to take anything right now. I will ask

36 minutes ago, knitty kitty said:

Magnesium would be a better choice to help with the need for an antacid.

Not only is magnesium needed to work with Thiamine, magnesium has been shown to help with kidney failure.

Low serum magnesium is associated with faster decline in kidney function: the Dallas Heart Study experience

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6660364/

And...

Magnesium in Kidney Function and Disease-Implications for Aging and Sex-A Narrative Review

https://pubmed.ncbi.nlm.nih.gov/37049550/

And...

Magnesium Administration in Chronic Kidney Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9920010/

And...

https://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/

I do take magnesium daily, I find I cannot function at all without it, I get leg cramps and other problems if I miss a day

knitty kitty Grand Master
(edited)

Try taking Benfotiamine.  Thiamine and magnesium work together.  

NSAIDS cause continuing damage to the lining of the small intestine.  

Benfotiamine has been shown to help heal the digestive tract.

You may have developed vitamin and mineral deficiencies on a gluten free vegetarian diet.  

Thiamine, Pyridoxine B6 and Cobalamine B12 will help with pain.   

Edited by knitty kitty
Add more information

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadycharacter Enthusiast
31 minutes ago, ButWhatCanIEat said:

I haven't asked him about tylenol, I"m afraid to take anything right now. I will ask

I do take magnesium daily, I find I cannot function at all without it, I get leg cramps and other problems if I miss a day

Magnesium as magnesium hydroxide would double as antacid and supplement.

knitty kitty Grand Master

Magnesium Glycinate is much more easily absorbed.

Magnesium hydroxide is not absorbed much.  It stays in the intestines and draws water into the intestines and you get diarrhea.  Magnesium hydroxide is in Milk of Magnesia, used for constipation relief.

 

shadycharacter Enthusiast
27 minutes ago, knitty kitty said:

Magnesium Glycinate is much more easily absorbed.

Magnesium hydroxide is not absorbed much.  It stays in the intestines and draws water into the intestines and you get diarrhea.  Magnesium hydroxide is in Milk of Magnesia, used for constipation relief.

 

I suppose it depends on how much is taken. The dose recommended as laxative is many times over the RDI. The dose used as antacid is more moderate. The important thing here is, I suppose, to not overload the kidneys.

knitty kitty Grand Master
(edited)

The dose recommended as a laxative is over the RDA because it doesn't get absorbed and stays in the digestive tract producing loose stools.

You want a form of magnesium that is better absorbed and useful to the body.

If you can't absorb sufficient magnesium, the body pulls magnesium out of the bones contributing to osteoporosis.

https://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/

"Magnesium is a primary ingredient in some laxatives [18]. Phillips’ Milk of Magnesia®, for example, provides 500 mg elemental magnesium (as magnesium hydroxide) per tablespoon; the directions advise taking up to 4 tablespoons/day for adolescents and adults [19]. (Although such a dose of magnesium is well above the safe upper level, some of the magnesium is not absorbed because of the medication’s laxative effect.) Magnesium is also included in some remedies for heartburn and upset stomach due to acid indigestion [18]. Extra-strength Rolaids®, for example, provides 55 mg elemental magnesium (as magnesium hydroxide) per tablet [20], although Tums® is magnesium free [21]."

Edited by knitty kitty
Add link and information

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,688
    • Most Online (within 30 mins)
      7,748

    Princess.dfc
    Newest Member
    Princess.dfc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, some people with Celiac do react to quinoa.  I know i do.  Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla stimulated,for patients with celiac disease. And some of us react to corn (maize) as well. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients https://pubmed.ncbi.nlm.nih.gov/24152750/   P.S. @Brook G have you thought about getting a genetic test done for known Celiac genes?  
    • Brook G
      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
×
×
  • Create New...