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Weight loss

Raquel2021
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Raquel2021 Collaborator
Raquel2021
Posted

Hi everyone,

I have been gluten free for 2.5 years after been diagnosed with celiac disease.  More recently I am also dairy free for the last 8 months.  I have lost about 15 pounds since all thr changes and not able to pit the weight back on. I was not overweight so not in a position to lose weight.  Anyone else? I react to soy, eggs. So eat lost of vegetables. Meats, seafood beans and rice. Nuts and some seeds.  

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RMJ Mentor
RMJ
Posted

When I need to gain weight I find that peanut butter helps since it has a high amount of calories per unit volume.  I also have snacks mid-morning and mid-afternoon whether I’m hungry or not.

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Raquel2021 Collaborator
Raquel2021
Posted
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Sounds good. Thank you  I will try it. I usually eat a daily peanut butter Larabar

  • 1 month later...
MisSkky Newbie
MisSkky
Posted

I was just diagnosed with celiac disease. I lost 68lbs since December ... not trying mind you. I hsbe has this hive like rash on my forearms for 2 years now and many trips to dr and dermatologist, numerous ointments, creams & lotions along with prescribed meds and antihistamines to no avail. Then I started rapidly losing the weight, sick to my stomach every single time I ate pretty much anything. Night sweats, gas from both ends, explosive runs but always dying of thirst and hungry!!! I'm type 2 diabetic also so I always thought it was my out of control sugar levels. Got put on insulin then all of the sudden ... my sugar levels are great but I'm still sick. So my question is with Celiac disease ... is my body starving??? 

trents Grand Master
trents
Posted

Welcome to the forum, MisSkky!

Celiac disease causes inflammation in the small bowel lining when gluten is consumed. It is an autoimmune disorder because gluten consumption causes the body to attack its own tissues. The inflammation wears down the villi of the small bowel and this is where all of our nutrition is absorbed. The wearing down of the villi results in inefficient nutrient absorption. So, yes. You were slowly starving to death even if you were eating well. There is a definite statistical correlation between Type I diabetes and celiac disease but no so much with Type 2.

I would suggest you invest in some gluten free vitamins and minerals to help your body heal more quickly:

Adult multi, B-complex, B12, D3, magnesium citrate or magnesium glycinate (not magnesium oxide) and zinc.

Here is a primer for those just starting out on the gluten-free journey:

 

knitty kitty Grand Master
knitty kitty
Posted
(edited)

@MisSkky, Welcome to the forum!

Yes, your body is definitely not getting the essential nutrients it needs!

My Dermatitis Herpetiformis rash and other skin problems resolved with Niacin Vitamin B3.  My Gerd and poor digestion improved with Niacin, too.  

I lost sixty pounds in a month, and had nausea, vomiting, gastrointestinal distress, explosive bowels, etc., etc., etc.  This is called gastrointestinal beriberi due to Thiamine deficiency.  I supplemented with high dose Thiamine (Benfotiamine) and began feeling better within an hour. 

Thiamine (Benfotiamine) has also helped my Type Two Diabetes.  Thiamine is low in diabetics.  My blood glucose levels are now kept in check with diet and Benfotiamine.  The pancreas does not produce enough insulin if there's a thiamine deficiency.  The pancreas will produce sufficient insulin if thiamine deficiency is corrected quickly.  The pancreas decreases and stops producing what insulin it can when insulin replacement is started.  

My night sweats resolved when deficiencies in Vitamin D and Vitamin B 12 were corrected. 

I was deficient in many vitamins and minerals because my Celiac had been misdiagnosed for so long.  Checking for vitamin and mineral deficiencies is part of proper follow up care for Celiac people.  

Talk to your nutritionist and doctor about supplementing with essential nutrients needed to recover your health.    

P.S. forgot to add some reading material...

Thiamine and diabetes: back to the future?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8505293/

And...

High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial

https://pubmed.ncbi.nlm.nih.gov/23715873/

And...

https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/

Edited by knitty kitty
Typo correction, add p.s.

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      Hey @Rogol72! thanks for your very helpful response. Those videos are great and super educating! I’ve forwarded them to my family members too as often it can be very difficult to explain to those around you just what you’re going through. Though, I’m fortunate that they’re super supportive and keen to help me get to the bottom of the problem. Interesting how you mentioned soaps and shower gels irritating too! Is it better to rinse off the sweat straight after exercising just with some cool water? Additionally, is minimising soap in those areas during showering helpful too? Or is there a particular soap that may be helpful! I have some more questions about dapsone too, if you don’t mind me asking. As mentioned in my response to Trents, I take prednisolone for when I am glutened or when my symptoms become too unbearable. With oral steroids it’s usually a 4 week dose as I have to reduce my dose to slowly come off them. How long can you take dapsone for? Can it impact your immune system in the same way as oral steroids (I have to be super careful I don’t pick up any infections whilst on my steroids as my immune system is compromised.) Yes, I’m from South Wales in the UK. Though my grandfather is Irish, explaining my surname (very well spotted!)
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      Hi Trents, thank you so much for your help and support. Yes it’s not ideal from my surgery practice. This is just one of the many problems I have experienced with them, we’ve had to pay to go to a private consultant now instead (I’m from South Wales in the UK, spot on about the spelling of “coeliac”! I completely forgot there was another way of spelling it around the world!) The dermatologist I have been seeing over the last few months has been amazing. And thank goodness for places like google and forums like these, I don’t think I would’ve ever thought it could be gluten! Interesting about the iodine. I’ll definitely start to limit this out of my diet. It makes sense as the places of irritation are places I sweat or pressure points (wrists, waist etc.) Dapsone was mentioned in my last appointment also. He’s reluctant to put me on it just yet, probably just until this biopsy is done so we can confirm for definite. At the moment I’m being put on prednisolone (oral steroids) every time I either become glutened or my symptoms reach an ultimate. I think he’s said if I need to be in them for any more than 3 times a year, dapsone will be more considered. I’m keen to go on it as every time I come off the prednisolone I can see the blisters creeping back. I’ve got loads that have burst on my hairline. I also start to get flaky/peeling skin as well which I’m not sure is related?    As well as limiting iodine, is there anything else that might help irritation with sweat? Is it better to wear more loose fitted clothing? Can I apply something to stop the irritation of sweat whilst i’m exercising?    Thanks for all your help so far! I will keep you all updated on my journey! 
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