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Weight loss


Raquel2021
Go to solution Solved by Raquel2021,

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Raquel2021 Collaborator

Hi everyone,

I have been gluten free for 2.5 years after been diagnosed with celiac disease.  More recently I am also dairy free for the last 8 months.  I have lost about 15 pounds since all thr changes and not able to pit the weight back on. I was not overweight so not in a position to lose weight.  Anyone else? I react to soy, eggs. So eat lost of vegetables. Meats, seafood beans and rice. Nuts and some seeds.  


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RMJ Mentor

When I need to gain weight I find that peanut butter helps since it has a high amount of calories per unit volume.  I also have snacks mid-morning and mid-afternoon whether I’m hungry or not.

  • Solution
Raquel2021 Collaborator

Sounds good. Thank you  I will try it. I usually eat a daily peanut butter Larabar

  • 1 month later...
MisSkky Newbie

I was just diagnosed with celiac disease. I lost 68lbs since December ... not trying mind you. I hsbe has this hive like rash on my forearms for 2 years now and many trips to dr and dermatologist, numerous ointments, creams & lotions along with prescribed meds and antihistamines to no avail. Then I started rapidly losing the weight, sick to my stomach every single time I ate pretty much anything. Night sweats, gas from both ends, explosive runs but always dying of thirst and hungry!!! I'm type 2 diabetic also so I always thought it was my out of control sugar levels. Got put on insulin then all of the sudden ... my sugar levels are great but I'm still sick. So my question is with Celiac disease ... is my body starving??? 

trents Grand Master

Welcome to the forum, MisSkky!

Celiac disease causes inflammation in the small bowel lining when gluten is consumed. It is an autoimmune disorder because gluten consumption causes the body to attack its own tissues. The inflammation wears down the villi of the small bowel and this is where all of our nutrition is absorbed. The wearing down of the villi results in inefficient nutrient absorption. So, yes. You were slowly starving to death even if you were eating well. There is a definite statistical correlation between Type I diabetes and celiac disease but no so much with Type 2.

I would suggest you invest in some gluten free vitamins and minerals to help your body heal more quickly:

Adult multi, B-complex, B12, D3, magnesium citrate or magnesium glycinate (not magnesium oxide) and zinc.

Here is a primer for those just starting out on the gluten-free journey:

 

knitty kitty Grand Master
(edited)

@MisSkky, Welcome to the forum!

Yes, your body is definitely not getting the essential nutrients it needs!

My Dermatitis Herpetiformis rash and other skin problems resolved with Niacin Vitamin B3.  My Gerd and poor digestion improved with Niacin, too.  

I lost sixty pounds in a month, and had nausea, vomiting, gastrointestinal distress, explosive bowels, etc., etc., etc.  This is called gastrointestinal beriberi due to Thiamine deficiency.  I supplemented with high dose Thiamine (Benfotiamine) and began feeling better within an hour. 

Thiamine (Benfotiamine) has also helped my Type Two Diabetes.  Thiamine is low in diabetics.  My blood glucose levels are now kept in check with diet and Benfotiamine.  The pancreas does not produce enough insulin if there's a thiamine deficiency.  The pancreas will produce sufficient insulin if thiamine deficiency is corrected quickly.  The pancreas decreases and stops producing what insulin it can when insulin replacement is started.  

My night sweats resolved when deficiencies in Vitamin D and Vitamin B 12 were corrected. 

I was deficient in many vitamins and minerals because my Celiac had been misdiagnosed for so long.  Checking for vitamin and mineral deficiencies is part of proper follow up care for Celiac people.  

Talk to your nutritionist and doctor about supplementing with essential nutrients needed to recover your health.    

P.S. forgot to add some reading material...

Thiamine and diabetes: back to the future?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8505293/

And...

High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial

https://pubmed.ncbi.nlm.nih.gov/23715873/

And...

https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/

Edited by knitty kitty
Typo correction, add p.s.

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    • cristiana
      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
    • Bebygirl01
      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
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