Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Normal People Have This Problem?


gointribal

Recommended Posts

gointribal Enthusiast
:o I find it interesting that after being gluten free for a while and then eating something with gluten I am worse then I was before I went gluten free. Does this happen with normal people, people without celiac disease? I don't know if I have Celiac Disease I haven't been offically diagnosed yet so I was wondering if it was just me or what? Got any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Gointribal--That is a good question! I have wondered that, myself. One thing I remember is that several years ago, a friend and I did the Atkins diet together. When I started to eat breads again, I did notice that it didn't seem to agree with me. But while on the diet, I was not anywhere near gluten-free, just cut down on the carbs and breads and things like that. Now that I'm completely gluten-free--as close to 100% as is humanly possible--I get sick from microscopic amounts.

nikki-uk Enthusiast

Mmmm well I don't know if I would be classed as 'normal' LOL :lol: !but I'm not a coeliac.

I've been gluten-free for nearly a year now,initially to support my husband,who was having a hard time sticking to the diet and was in denial big time.

After about a week of gluten-free I noticed that my skin complaint of eczema was clearing up dramatically (it's never gone completely but much better,I don't have to rely on steroid creams anymore)

I've since tried several times (whilst out the house!)to eat gluten with pretty disasterous results!

First time I went out for a meal with friends which included chicken in breadcrumbs.Spent the rest of that evening on the loo! :blink: By the next day my skin had flared up too.

Another time I had pizza round a friends house.Around 10 mins after eating it I came over nauseous,sweating,tingling on my tongue and heart racing :o

I've no idea what that was all about,but to be honest it's put me off trying it again!

To be fair,I was diagnosed with Irritable Bowel Syndrome as a child,so that may be part of the reason,or maybe I'm 'gluten intolerant' as opposed to being a coeliac?

Perhaps when I've nothing to do,(and nowhere I have to be) I'll try it out again!!

gfp Enthusiast

[dfsaaaaaaaa

Rusla Enthusiast

I have never been normal nor shall I ever be normal and I don't know any normal people. So, this whole question could be lost on me. But now when I get even a few crumbs of gluten by accident I get very, very sick. I had a few flakes by accident at a wedding in Jamaica that got into my food. I was so sick I had to go up to bed.

key Contributor

This is an interesting question. I have never eaten meat in my life and I am terrified to try it, because I don't think I would be able to eat it. Also one time in my life when I was on a diet I gave up cheese for two years. My stomach would just hurt SO bad when I would eat it. It took me eating it in small amounts to work up to being to eat it again. I think maybe when we don't eat certain food groups, our bodies may not produce the enzymes to digest those foods. THe cheese thing though was nothing like it is when I eat gluten now. I get D and very sick. I know this is different.

If you have had IBS though, they say that the gluten free diet helps people with IBS, so you could be gluten intolerant too. My philosophy is though, that if something makes you feel gross and sick, then you probably shouldn't eat it.

Monica

nikki-uk Enthusiast

It's interesting that you say you had to 'work up' to be able to eat cheese again.

After having gone on a weight loss diet a few years ago-and avoiding excess fats I now also find I can't eat these foods(i.e fried foods) without getting the dreaded 'griping' tummy pains,but maybe if I upped the fat content in my diet little by little I could manage it.

Not that I want to do that!As it is a good deterrent to keep me away from these foods-and they are not good for you anyway! :)(Being gluten-free keeps me away from take-away foods!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debbiewil Rookie

Well, I think it is any food that a particular person is intolerant to, but I think it is only "problem" foods. There are a number of foods that most people only eat occassionally, and yet never show any problem with on the rare instances when they are eaten - take watermelon for example. Most people will eat it only during the summer, so go 6-8 months without eating it every year, but have no problem eating it the following year come the July 4 picnic or whatever. And there are a number of other "seasonal" or holiday foods that are eaten with long breaks between that never seem to bother people. But foods that can be problems, like gluten and highly allergic foods, do seem to cause major symptoms in people after thay have been free of them for a while. For instance, I have a friend who is allergic to shellfish. She didn't have a problem most of her life. She lived in Florida for many years and had fresh fish and seafood all the time with no problem. Moved up north in her 30's and didn't get fresh seafood for several months one winter. Had a major reaction next time she had shellfish, and now can't eat it at all. So she might actually have had the allergy all her life, but always had the food in her system, so never reacted.

Debbie

Guest cassidy

The same thing is happening to me. When I get cross contaminated I get very sick. When it would first happen I would say "I feel how I used to feel." So, I think someone made the point that we don't realize how sick we were until we get better.

Also, I've found soooo many other foods that I can't eat now. I guess that I felt so bad before that I didn't realize if I ate something else wrong. I also have noticed that food (non-gluten) would bother me but I didn't think anything of it. I know that strawberries make my stomach hurt, but I would always eat them anyway and I never even thought to stop eating them. Now, if anything makes me feel funny it goes on the list of things I'm not going to touch.

prinsessa Contributor
:o I find it interesting that after being gluten free for a while and then eating something with gluten I am worse then I was before I went gluten free. Does this happen with normal people, people without celiac disease? I don't know if I have Celiac Disease I haven't been offically diagnosed yet so I was wondering if it was just me or what? Got any ideas?

My mom doesn't have Celiac and that happened to her. She went to India where they don't eat a lot of wheat products (at least the part she was in). After a couple of weeks of not eating wheat she got IBS like symptoms when she did. I keep telling her that she should get tested for Celiac/wheat intolerance, but she doesn't seem to want to. I think she is a little worried the test might come back positive. She is Swedish and says that she gets really bloated when ever she eats too much bread.

Ursa Major Collaborator

Debbiewill, you make a good point here. I believe that you likely were intolerant all along to a food you can't tolerate any more after not having it for a while. That goes for the cheese, Monica (you are likely casein intolerant), or the breads (gluten intolerant all along without knowing). If it makes you feel bad in any way when you eat it, cut it out of your diet altogether, you're not meant to have it. Just my honest opinion.

VegasCeliacBuckeye Collaborator
It's interesting that you say you had to 'work up' to be able to eat cheese again.

After having gone on a weight loss diet a few years ago-and avoiding excess fats I now also find I can't eat these foods(i.e fried foods) without getting the dreaded 'griping' tummy pains,but maybe if I upped the fat content in my diet little by little I could manage it.

Not that I want to do that!As it is a good deterrent to keep me away from these foods-and they are not good for you anyway! :)(Being gluten-free keeps me away from take-away foods!)

It intersting that you bring up fried foods.

I mentioned this about the McDonalds Fiasco -- I know quite a few Celiacs that the only fried food they ever ate was French Fries and they often felt sick right afterwards. My repeated attempts to convince them that it may be Fried Foods in general (as it was 99% eliminated from their diet when they went gluten free) fell on deaf ears.

Then MCd's had the February press release and it all went to hell.

To this day, I am still 100% convinced that some Celiacs cannot handle fried foods (like MCD's French fries) not because of the supposed cross-contamination (which is always a possibility), but rather that there digestive systems do not receive Fried foods on a regular basis anymore and it is difficult for a tummy to handle...

Sometimes we as Celiacs are convinced that we have been "gluutened", but it is very possible that we have other intolerances or are unable to digest certain types of prepared food (even if they are gluten free )

JMO

ravenwoodglass Mentor
Sometimes we as Celiacs are convinced that we have been "gluutened", but it is very possible that we have other intolerances or are unable to digest certain types of prepared food (even if they are gluten free )

JMO

I agree totally with this, I kept thinking I was getting CC anytime I ate potatoe chips or frys, thought I couldn't handle grain vinager because everytime I had a salad I got sick. Turned out to be a nightshade intolerance, potatoes, tomatoes and peppers. Almost every time I would eat something that had a chance of CC it contained one of the above food ingredients. We can't always assume it is CC or gluten. Really look at your reactions, there are, for me and likely for all, very subtle differences in the reaction from gluten and the reaction from nightshades or other intolerances (casein may be an exception), the biggest for me is the lack of ataxia with the nightshades that is always present with a gluten reaction.

plantime Contributor
To this day, I am still 100% convinced that some Celiacs cannot handle fried foods (like MCD's French fries) not because of the supposed cross-contamination (which is always a possibility), but rather that there digestive systems do not receive Fried foods on a regular basis anymore and it is difficult for a tummy to handle...

I agree with this. I have known for a long time that fried foods just made me sick to my stomach, and so I avoided them. However, I am perfectly normal. Normal and Regular and Average are all subjective terms, subject to how each person defines them, therefore, according to my terminology and definitions, I am perfectly normal! :D

flagbabyds Collaborator

Celiacs are normal people!

But really, it is just the normal stories you ehar, when people are vegetarian for 15 years, then suddenly start to eat meat, you might get sick from it because your body is just so not used to it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,368
    • Most Online (within 30 mins)
      7,748

    Jdhunt
    Newest Member
    Jdhunt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...