Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How regular do you test your Ttg ?

Jane07
 Share

Recommended Posts

Jane07 Enthusiast
Jane07
Posted

I just wondering how often do you test your ttg to see if your gluten free diet is improving your body 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Raquel2021 Collaborator
Raquel2021
Posted
On 7/31/2023 at 8:59 PM, Jane07 said:

I just wondering how often do you test your ttg to see if your gluten free diet is improving your body 

Once a year for me.

Link to comment
Share on other sites
Jane07 Enthusiast
Jane07
  • Author
Posted

Thanks 

Link to comment
Share on other sites
Scott Adams Grand Master
Scott Adams
Posted

I believe the recommendation is one time per year, however, my doctors over the past 27+ years after my diagnosis have only done this when I've requested it. I've only done this 5-6 times.

Link to comment
Share on other sites
  • 3 weeks later...
Jane07 Enthusiast
Jane07
  • Author
Posted

Does that include the first year I having a other ttg test twice in one year maybe because if the first year 

Link to comment
Share on other sites
newtonfree Explorer
newtonfree
Posted

Recommendations vary a bit depending on which country you're in and therefore which governing body or expert association your doctors turns to for guidance.

For example, the (American) Celiac Disease Foundation recommends an anti-tTG at 3-6 months post-diagnosis, 12 months post-diagnosis, and then annually thereafter.

The Canadian Celiac Association differs slightly by recommending anti-tTG at 6 months post-diagnosis, 12 months post-diagnosis, and then every 1-2 years in perpetuity.

Even then, these are merely guidelines published to advise your doctors, and not what we would call "Standards of Care" (meaning that doing otherwise constitutes negligence). They have to use their judgement based on the details of your individual case, and may choose to test less frequently than that (more frequently would be uncommon, given the rate at which the test result is expected to change on a GFD).

Link to comment
Share on other sites
Jane07 Enthusiast
Jane07
  • Author
Posted

Thanks for the info 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sh00148
      - sh00148 replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

      Thanks. So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.
    2. cristiana
      - cristiana replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

      Hi @sh00148 I am so glad that your son is going to have a blood test next week. If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest. However, one thing you may wish to change...
    3. Scott Adams
      - Scott Adams replied to Blue Roan's topic in Related Issues & Disorders
      2

      Lymph nodes in neck + thyroid issues

      It’s understandable to feel frustrated, especially when you’re managing celiac well but still experiencing new, unexplained symptoms. Many people with celiac notice sensations around the neck and jaw area, even without visible swelling. Sometimes, lymph node sensitivity or a tight feeling in the throat can linger as part of the body’s inflammatory response, even...
    4. Scott Adams
      - Scott Adams replied to StrongerThanCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      2 Separate Glutenings - Recovery Timeline?

      It sounds like you’re really going through it—accidental gluten exposure can definitely take a toll, and when it happens twice close together, it can feel like it drags on even longer. Many people find that each glutening is a bit unpredictable in terms of recovery, and it could take a little extra time if your body hasn’t fully cleared out the first expos...
    5. Scott Adams
      - Scott Adams replied to Therockfrog's topic in Related Issues & Disorders
      2

      Itchy skin, tingling in feet and scalp

      @Therockfrog, it sounds like you’ve been through so much, and managing these symptoms must be incredibly challenging. Tingling in your feet and scalp, especially after eating specific foods, can sometimes be related to histamine intolerance or even a sensitivity to certain food proteins, as you’ve suggested. Since you’ve already noticed patterns with glute...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,788
    • Most Online (within 30 mins)
      7,748
    Bek71
    Newest Member
    Bek71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sh00148
      Nighttime Soiling (5 year old)

      By sh00148 · Posted

      Thanks.  So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.     
    • cristiana
      Nighttime Soiling (5 year old)

      By cristiana · Posted

      Hi @sh00148 I am so glad that your son is going to have a blood test next week.    If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest.  However, one thing you may wish to change in the short term instead/as well is to stop him consuming dairy products.  If he is a coeliac, he may have become temporarily dairy intolerant.  The tips of the villi, which line the gut and are damaged in coeliacs, produce lactase, an enzyme essential for the digestion of dairy.  If they are damaged it can contribute to diarrhea and gas.  I had this some months after my own coeliac diagnosis, and it improved no end when I gave up dairy for a while.  Once on a gluten free diet they heal, and most coeliacs can return to consuming dairy. I would have thought that with those bowel issues in a young child what is happening to him is entirely normal.    
    • Scott Adams
      Lymph nodes in neck + thyroid issues

      By Scott Adams · Posted

      It’s understandable to feel frustrated, especially when you’re managing celiac well but still experiencing new, unexplained symptoms. Many people with celiac notice sensations around the neck and jaw area, even without visible swelling. Sometimes, lymph node sensitivity or a tight feeling in the throat can linger as part of the body’s inflammatory response, even if your thyroid and other tests come back normal. It sounds like you’ve been thorough with testing and have seen multiple specialists, which is great. A few things might be worth considering: for some people with celiac, there can be lingering sensitivities to trace gluten, cross-reactive foods, or even certain environmental factors that can cause persistent inflammation. Since you’ve tried antihistamines and a humidifier, you might want to discuss options like different allergy medications or seeing an ENT specialist if you haven’t already. Some find that supplements (like anti-inflammatory options or probiotics) help support overall inflammation reduction, though you should always check with your doctor first. It’s frustrating when you feel the symptoms without an obvious cause, but trust your instincts—hopefully, with persistence, you’ll find answers and some relief soon.
    • Scott Adams
      2 Separate Glutenings - Recovery Timeline?

      By Scott Adams · Posted

      It sounds like you’re really going through it—accidental gluten exposure can definitely take a toll, and when it happens twice close together, it can feel like it drags on even longer. Many people find that each glutening is a bit unpredictable in terms of recovery, and it could take a little extra time if your body hasn’t fully cleared out the first exposure before the second one hit. Staying hydrated, avoiding other potential irritants (like alcohol and spicy foods), and resting can help ease the symptoms as your gut heals. Hopefully, things start to settle soon! In the meantime, it could be helpful to communicate with friends about specific brands to look out for, even when it’s hard to ask in the moment. Hang in there—hope you’re feeling much better soon! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Itchy skin, tingling in feet and scalp

      By Scott Adams · Posted

      @Therockfrog, it sounds like you’ve been through so much, and managing these symptoms must be incredibly challenging. Tingling in your feet and scalp, especially after eating specific foods, can sometimes be related to histamine intolerance or even a sensitivity to certain food proteins, as you’ve suggested. Since you’ve already noticed patterns with gluten, nuts, and dairy, it might be worth looking into a histamine intolerance or mast cell activation syndrome (MCAS), where the body has an exaggerated response to histamine and other triggers, which can cause itching, tingling, and even high cortisol levels. This would explain why your symptoms change with seasonal pollen too. If you’re considering eating some of these trigger foods before seeing the allergist, it could help with identifying specific IgE reactions. However, since this can worsen symptoms, you might consider working with your doctor to approach this slowly, maybe introducing one trigger at a time. It’s great you’ve tracked your symptoms so closely—that detailed information will help the allergist a lot. In the meantime, perhaps continue with antihistamines, as sometimes trying different types (H1 and H2 blockers, for example) under guidance can make a difference. Hang in there! It sounds like you’re very close to finding the root of these reactions.
×
×
  • Create New...