Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Dx - Finally!

McNish
 Share

Recommended Posts

McNish Rookie
McNish
Posted

Finally,  got into a GI (thankfully, extremely knowledgeable GI) and dx me w/ Celiac.  Such a relief to have a Dr. actually LISTEN to me. It's confirmation that all these symptoms aren't "in my head". Based on my positive genetic test, symptoms, heritage (this one threw me off a bit) & an occasional rash I get between my fingers (that I had no idea was celiac related) there was no need for a gluten challenge or endoscopy.  Now the hard work begins - cross contamination.  I can't say I was diligent before but now....new ball game.   

BTW, he highly recommended Celiac.Com to me - He said this place has a wealth of information & "the place" for celiacs.  So there's that! :)

So happy I found this place.  I've learned so much about everything celiac.  I'd be lost w/o this site.  So....THNAK YOU! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nick Cheruka Contributor
Nick Cheruka
Posted
1 hour ago, McNish said:

Finally,  got into a GI (thankfully, extremely knowledgeable GI) and dx me w/ Celiac.  Such a relief to have a Dr. actually LISTEN to me. It's confirmation that all these symptoms aren't "in my head". Based on my positive genetic test, symptoms, heritage (this one threw me off a bit) & an occasional rash I get between my fingers (that I had no idea was celiac related) there was no need for a gluten challenge or endoscopy.  Now the hard work begins - cross contamination.  I can't say I was diligent before but now....new ball game.   

BTW, he highly recommended Celiac.Com to me - He said this place has a wealth of information & "the place" for celiacs.  So there's that! :)

So happy I found this place.  I've learned so much about everything celiac.  I'd be lost w/o this site.  So....THNAK YOU! 

Hi, I’m glad you got some answers! I have to ask why your GI dr did not want to do a endoscopy with biopsy to confirm celiacs? 

Nick Cheruka Contributor
Nick Cheruka
Posted
Just now, Nick Cheruka said:

Hi, I’m glad you got some answers! I have to ask why your GI dr did not want to do a endoscopy with biopsy to confirm celiacs? 

Celiac for over 20yrs confirmed with biopsy from endoscopy, blood work and genetic test! The endoscopy would show villous atrophy caused by your autoimmune system attacking the villous lining of your intestines when consuming Gluten! Good Luck☘️Stay Strong💪

McNish Rookie
McNish
Posted
  • Author

I'm assuming due to the severity of my symptoms.  I ticked alot of the boxes - early onset osteopenia, anemia, elevated liver enzymes (which climb sky high when I eat gluten) nausea, severe join pain,  the rash.... just to name a few. I tried the challenge and couldn't make it 2 weeks, let alone 6 to 8. He said there's no need for the endoscopy - the rash is enough to dx.  I'm good with it.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,733
    • Most Online (within 30 mins)
      7,748
    Debbeighe
    Newest Member
    Debbeighe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Not sure if this is Celiac or just a gluten-free intolerance

      By Wheatwacked · Posted

      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      Trader Joe's strikes again

      By trents · Posted

      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      Trader Joe's strikes again

      By trents · Posted

      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Trader Joe's strikes again

      By Steve-n-Portland · Posted

      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...