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Sabaarya

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Sabaarya Community Regular

Hi everyone,haven’t posted for a while. I was diagnosed in August 2021  with mild damage to villi,Marsh 3A,and following gluten-free diet since then,had a repeat endoscopy in Dec 2022 and everything was healed,no signs of celiac disease base on the pathologist report. After that I ate some gluten containing food like 2-3 times in and out burger and was fine,but it was just 2-3 times. And also I was ordering food from Persian restaurant and having them be careful with my food,it was like rice and meat,besides that which was in total probably 5-6 times I’m on strict gluten-free diet. For the past 2 months I’m not feeling well,symptoms are headaches,tingling,pins and needles,heartburns ,narrow and floaty stool. I’m taking vitamins and iron but I feel like it makes me even worse with symptoms,especially digestive symptoms. My question is could be the damage to my villi again,meaning could it be the active celiac with villi damage again, and if yes will I be able to get healed again? Seeing my PCP tomorrow for blood work and physical. My anxiety is back and I’m worried. Did anyone has the same situation?

Thank you,

Saba


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Nick Cheruka Contributor
1 hour ago, Sabaarya said:

Hi everyone,haven’t posted for a while. I was diagnosed in August 2021  with mild damage to villi,Marsh 3A,and following gluten-free diet since then,had a repeat endoscopy in Dec 2022 and everything was healed,no signs of celiac disease base on the pathologist report. After that I ate some gluten containing food like 2-3 times in and out burger and was fine,but it was just 2-3 times. And also I was ordering food from Persian restaurant and having them be careful with my food,it was like rice and meat,besides that which was in total probably 5-6 times I’m on strict gluten-free diet. For the past 2 months I’m not feeling well,symptoms are headaches,tingling,pins and needles,heartburns ,narrow and floaty stool. I’m taking vitamins and iron but I feel like it makes me even worse with symptoms,especially digestive symptoms. My question is could be the damage to my villi again,meaning could it be the active celiac with villi damage again, and if yes will I be able to get healed again? Seeing my PCP tomorrow for blood work and physical. My anxiety is back and I’m worried. Did anyone has the same situation?

Thank you,

Saba

Hi Saba, Celiacs means going Strictly gluten-free no anything containing Gluten ever or your taking yourself back square one just like never being gluten-free but now with the damage from your immune system attacking the Gluten you claimed to eat on what you said is a Strict gluten-free diet! You should not consume Gluten of any amount? The 2-3 times you said you did will have the affects your feeling because you have villi damage and it can and will cause worse things than that trust me! Eating out anywhere other than cooking your own gluten-free foods at home places you at risk unless you eat in a place dedicated gluten-free and serves nothing but gluten-free foods so there is no risk of cross contamination and or getting the gluten the wrong plate/food that may contain Gluten! I eat at home and only at home, better to be safe than sorry in more ways than one! Your health and life depends on it! If I were you look up Celiacs Disease on the web or even youtube there are good sites that will explain everything in detail from going gluten-free and why to the damage gluten can do other than villous atrophy aka Vili Damage! Stay Strict, No Cheating, Stay Strong! It’s your health and life and your only here a short time and thats all of us! Eliminate Gluten Completely or you will feel like you do or much worse! Good Luck☘️My Best Advice is Educate yourself with the Autoimmune Disorder of Celiacs you have! Don’t count on other peoples guess’s or answer! Find it for yourself like I have and follow it Strictly! I hope this helps!🙂

Just now, Nick Cheruka said:

Hi Saba, Celiacs means going Strictly gluten-free no anything containing Gluten ever or your taking yourself back square one just like never being gluten-free but now with the damage from your immune system attacking the Gluten you claimed to eat on what you said is a Strict gluten-free diet! You should not consume Gluten of any amount? The 2-3 times you said you did will have the affects your feeling because you have villi damage and it can and will cause worse things than that trust me! Eating out anywhere other than cooking your own gluten-free foods at home places you at risk unless you eat in a place dedicated gluten-free and serves nothing but gluten-free foods so there is no risk of cross contamination and or getting the gluten the wrong plate/food that may contain Gluten! I eat at home and only at home, better to be safe than sorry in more ways than one! Your health and life depends on it! If I were you look up Celiacs Disease on the web or even youtube there are good sites that will explain everything in detail from going gluten-free and why to the damage gluten can do other than villous atrophy aka Vili Damage! Stay Strict, No Cheating, Stay Strong! It’s your health and life and your only here a short time and thats all of us! Eliminate Gluten Completely or you will feel like you do or much worse! Good Luck☘️My Best Advice is Educate yourself with the Autoimmune Disorder of Celiacs you have! Don’t count on other peoples guess’s or answer! Find it for yourself like I have and follow it Strictly! I hope this helps!🙂

P.S.! Don’t have someone else claim to be careful with your gluten-free food make sure you do by making gluten-free food at home! I’m Celiac and have been diagnosed for over 20yrs!

Sabaarya Community Regular
1 hour ago, Nick Cheruka said:

Hi Saba, Celiacs means going Strictly gluten-free no anything containing Gluten ever or your taking yourself back square one just like never being gluten-free but now with the damage from your immune system attacking the Gluten you claimed to eat on what you said is a Strict gluten-free diet! You should not consume Gluten of any amount? The 2-3 times you said you did will have the affects your feeling because you have villi damage and it can and will cause worse things than that trust me! Eating out anywhere other than cooking your own gluten-free foods at home places you at risk unless you eat in a place dedicated gluten-free and serves nothing but gluten-free foods so there is no risk of cross contamination and or getting the gluten the wrong plate/food that may contain Gluten! I eat at home and only at home, better to be safe than sorry in more ways than one! Your health and life depends on it! If I were you look up Celiacs Disease on the web or even youtube there are good sites that will explain everything in detail from going gluten-free and why to the damage gluten can do other than villous atrophy aka Vili Damage! Stay Strict, No Cheating, Stay Strong! It’s your health and life and your only here a short time and thats all of us! Eliminate Gluten Completely or you will feel like you do or much worse! Good Luck☘️My Best Advice is Educate yourself with the Autoimmune Disorder of Celiacs you have! Don’t count on other peoples guess’s or answer! Find it for yourself like I have and follow it Strictly! I hope this helps!🙂

P.S.! Don’t have someone else claim to be careful with your gluten-free food make sure you do by making gluten-free food at home! I’m Celiac and have been diagnosed for over 20yrs!

Hello,thank you:). That’s what I do usually,I’m very sensitive and do take my own food wherever I go. I did just cheat 2-3 times and it was couple of months ago. And last year on my endoscopy it was complete healing. Not quite sure if the gluten-free product that I buy is really gluten-free or not . But I was really good for the past 1 year ,I don’t know what happened. Maybe contamination at home. To be honest I’m so tired explaining my family members how important is that for my health. I clean my kitchen 10000 times a day,because other members of the family eat gluten sometimes. Hopefully blood work results won’t be scary tomorrow:)

Fifi Newbie
2 hours ago, Sabaarya said:

Hello,thank you:). That’s what I do usually,I’m very sensitive and do take my own food wherever I go. I did just cheat 2-3 times and it was couple of months ago. And last year on my endoscopy it was complete healing. Not quite sure if the gluten-free product that I buy is really gluten-free or not . But I was really good for the past 1 year ,I don’t know what happened. Maybe contamination at home. To be honest I’m so tired explaining my family members how important is that for my health. I clean my kitchen 10000 times a day,because other members of the family eat gluten sometimes. Hopefully blood work results won’t be scary tomorrow:)

You never get cured from celiac. It wii be something you have to to be vigilant of all the time. 

Nick Cheruka Contributor
1 hour ago, Fifi said:

You never get cured from celiac. It wii be something you have to to be vigilant of all the time. 

Yes sorry about having to share a kitchen, that could be how your getting cross contamination? Yes there is no cure for Celiacs, just a lifelong gluten-free Lifestyle! Just remember you definitely are not alone! We all have one or ten more struggles with it in many aspects of life! Yes it is hard to get people to understand the seriousness of it when they are not in your shoes! I remember when I could eat whatever I wanted for 30+ yrs of my life before Celiacs decided to show up! I’m going on 54 now and have been gluten-free for over 20+yrs! Good Luck☘️Stay Strong💪

Just now, Nick Cheruka said:

Yes sorry about having to share a kitchen, that could be how your getting cross contamination? Yes there is no cure for Celiacs, just a lifelong gluten-free Lifestyle! Just remember you definitely are not alone! We all have one or ten more struggles with it in many aspects of life! Yes it is hard to get people to understand the seriousness of it when they are not in your shoes! I remember when I could eat whatever I wanted for 30+ yrs of my life before Celiacs decided to show up! I’m going on 54 now and have been gluten-free for over 20+yrs! Good Luck☘️Stay Strong💪

Oh sorry! This was directed to Saba!😁

Sabaarya Community Regular
1 hour ago, Fifi said:

You never get cured from celiac. It wii be something you have to to be vigilant of all the time. 

I know,but I got completely healed villi:)

Nick Cheruka Contributor
56 minutes ago, Sabaarya said:

I know,but I got completely healed villi:)

Saba, if you ingested Gluten like you said 2-3 and may 5-6 separate times after endoscopy showing no villi damage, then you ate gluten anywhere from that point on especially the amount of times you say you did then you more than likely have villi damage somewhere in your intestines from the gluten you consumed 2-3 whole meals plus 5-6 others whole meals adds up to about 9 separate non gluten free meals you ate or approx. meals eaten which in some cases just a non gluten free cracker can cause damage as a Celiac! If you consume Gluten then it is digested then goes through your intestines where your villi then absorb it into your body, it is those same villi that if gluten is trying to be absorbed there your own immune system will attack those villi seeing gluten as a toxin and thats how you end up with flattening of your villi! So in your case eating gluten containing foods are what has caused your issues and has flattened parts of your villous track maybe just in places not all but for sure sporadically! Thats what Celiacs is and does when gluten is consumed!


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Nick Cheruka Contributor
1 minute ago, Nick Cheruka said:

Saba, if you ingested Gluten like you said 2-3 and may 5-6 separate times after endoscopy showing no villi damage, then you ate gluten anywhere from that point on especially the amount of times you say you did then you more than likely have villi damage somewhere in your intestines from the gluten you consumed 2-3 whole meals plus 5-6 others whole meals adds up to about 9 separate non gluten free meals you ate or approx. meals eaten which in some cases just a non gluten free cracker can cause damage as a Celiac! If you consume Gluten then it is digested then goes through your intestines where your villi then absorb it into your body, it is those same villi that if gluten is trying to be absorbed there your own immune system will attack those villi seeing gluten as a toxin and thats how you end up with flattening of your villi! So in your case eating gluten containing foods are what has caused your issues and has flattened parts of your villous track maybe just in places not all but for sure sporadically! Thats what Celiacs is and does when gluten is consumed!

Why it’s important to avoid gluten all together and for life if your Celiac!

Jane07 Enthusiast

Saba I know if hard when I found out I had to be gluten free I really tried not to eat and gluten food I know it’s really hard. 
 

all you want to do eat it it’s really bad for your villi how old are you ? Does anyone else you know have to be gluten free 

I know it hard good luck stay strong 

 

 

Sabaarya Community Regular
2 hours ago, Nick Cheruka said:

Saba, if you ingested Gluten like you said 2-3 and may 5-6 separate times after endoscopy showing no villi damage, then you ate gluten anywhere from that point on especially the amount of times you say you did then you more than likely have villi damage somewhere in your intestines from the gluten you consumed 2-3 whole meals plus 5-6 others whole meals adds up to about 9 separate non gluten free meals you ate or approx. meals eaten which in some cases just a non gluten free cracker can cause damage as a Celiac! If you consume Gluten then it is digested then goes through your intestines where your villi then absorb it into your body, it is those same villi that if gluten is trying to be absorbed there your own immune system will attack those villi seeing gluten as a toxin and thats how you end up with flattening of your villi! So in your case eating gluten containing foods are what has caused your issues and has flattened parts of your villous track maybe just in places not all but for sure sporadically! Thats what Celiacs is and does when gluten is consumed!

Maybe. I’m not sure if it’s flatten again. Even on my initial I was told that damage was so mild but of course I do understand that consuming gluten can cause relapse. Hopefully it’s just flare up and not relapse:)

Sabaarya Community Regular
2 hours ago, Jane07 said:

Saba I know if hard when I found out I had to be gluten free I really tried not to eat and gluten food I know it’s really hard. 
 

all you want to do eat it it’s really bad for your villi how old are you ? Does anyone else you know have to be gluten free 

I know it hard good luck stay strong 

 

 

Hi Jane:). I’m 41. No one around me is gluten-free and I did accept my diagnose. But it’s still make me stressed out every time when I go out. I haven't travel at all after my diagnose and it makes really sad. All my friends traveling around the world I can’t even think about it even though all hotels provide gluten-free food but I’m just scared. 

Wheatwacked Veteran

Are you adding vitamins and minerals still.  Something changed for you recently.  You've been ok for so long sharing the kitchen, I doubt that is the cause.  Top of the list would be low thiamine or low choline.  Thiamine for digesting carbs, choline for digesting fats.

  • Beriberi is a deficiency of thiamine, vitamin B1. Your body needs thiamine to break down and digest the foods you eat, to keep your metabolism going, and help your muscles and nervous system do their jobs effectively. Beriberi can affect the cardiovascular system or central nervous system.
  • Risk for developing beriberi include: 
  • Those who eat a high-carbohydrate diet, especially refined carbs
  • People with certain digestive problems that can interfere with nutrient absorption, such as Celiac Disease.  Symptoms can appear in only two weeks.
  • Anyone with high levels of stress

 

Quote

I had chronic migraines and headaches ever since I can remember. When I started playing around with nootropics I started supplementing with choline, viola! No more headaches! I take 500mg a day and rarely take noots anymore. If I forget to take the choline for a few days my headaches come back.  Choline headaches: Too much vs too little : r/Nootropics (reddit.com)

 

 

Jane07 Enthusiast

Saba I’m so sad you can’t travel myself just found out this year and I had to go gluten free. It’s for sure difficult it makes me sad sometime I can go get my Favorite food anymore. I do look god gluten free stuff if I go out for meal.

do you go to the library ever if so you could get a book on celiac disease at the library. Stay strong I know if difficult when I found out I had ti go gluten free I want my villi to get better and my healthy to Get better .

 

saba im sorry you can’t travel  you can come on here to talk about celiac 😞

Sabaarya Community Regular
9 hours ago, Wheatwacked said:

Are you adding vitamins and minerals still.  Something changed for you recently.  You've been ok for so long sharing the kitchen, I doubt that is the cause.  Top of the list would be low thiamine or low choline.  Thiamine for digesting carbs, choline for digesting fats.

  • Beriberi is a deficiency of thiamine, vitamin B1. Your body needs thiamine to break down and digest the foods you eat, to keep your metabolism going, and help your muscles and nervous system do their jobs effectively. Beriberi can affect the cardiovascular system or central nervous system.
  • Risk for developing beriberi include: 
  • Those who eat a high-carbohydrate diet, especially refined carbs
  • People with certain digestive problems that can interfere with nutrient absorption, such as Celiac Disease.  Symptoms can appear in only two weeks.
  • Anyone with high levels of stress

 

 

 

Hello. Well my diet is mainly carbs,and no vegetables or fruits,very rare. I think one of the reasons is that probably I’m not getting enough vitamins,but even with adding Bcomplex,B 12 shots and iron supplements I’m not getting the outcome that I should. I think it’s the villi damage again,stool is narrow for the past 3 weeks, heartburns,pain under right rib.I thought it could be because of iron supplements but I don’t think so. I’ve heard that natural flavors could be the source of hidden gluten and I drink Coca Cola sometimes and it has natural flavors also the lip balm I’m using has natural vanilla flavor,so not quite sure if it could be related to that. Also for the past 1 year I eat everything like gluten-free chips,gluten-free chocolates lots of gluten-free snacks,Turkish coffee on daily basis. Don’t want to have repeat endoscopy again,I’ve just had it in December 2022:((

Wheatwacked Veteran

You will do better on 1000 mcg oral tablets or sublingual.

"Effects of B12 vitamins usually last around 48 hours to 72 hours after the initial injection.  50 to 98 percent of the vitamin B12 consumed is eliminated from the body 48 hours after the shot is given.  How soon do you feel less tired after a B12 tablets? It may take a few weeks before your vitamin B12 levels and symptoms (such as extreme tiredness or lack of energy) start to improve. If you have hydroxocobalamin injections to boost your vitamin B12 levels at the start of treatment, the cyanocobalamin tablets may start to work within a few days."  Cyanocobalamin

"As carbohydrate intake increased, thiamine decreased further. In contrast, a lower carbohydrate, higher fat diet slows thiamine loss in thiamine-restricted experimental conditions."   Hiding in Plain Sight: Modern Thiamine Deficiency 

25 minutes ago, Sabaarya said:

even with adding Bcomplex,B 12 shots and iron supplements I’m not getting the outcome that I should.

Try a bottle of Benfothiamine or 500 mg a day of Thiamine HCL.  Thiamine has no upper limit and the B complex don't have enough.

Unless you are sunbathing without sunscreen, you and the other 40% of the adults in the US, Canada, Ireland and UK are likely to be low or deficient in vitamin D.

66% of the child bearing age women tested in a gynocologist's office had low or deficient Iodine urine test.

90% of the western population don't eat enough Choline.  

36 minutes ago, Sabaarya said:

heartburns,pain under right rib.I thought it could be because of iron supplements but I don’t think so.

More likely deficient choline causing gall bladder issues and fatty liver.  Will also affect brain fog, low energy.

Coca Cola in the US is made with High Fructose Corn Syrup.  Mexican bottled Coke has sugar.  Getting too much fructose can raise your risk of nonalcoholic fatty liver disease. This is when too many fats are stored in liver cells. When you have too much fat buildup, it can lead to nonalcoholic steatohepatitis, scarring of the liver, and liver damage.  Combined with low choline it is very bad for the liver.

For quick energy, Red Bull is only essential B vitamins and minerals and Taurine is an essential antioxidant amino acid added to carbinated sugar water. No high fructose corn syrup or exotic herbs to make you think it is good for you while fatting the manufacturers' pockets.

Heres what I am taking:

  1. 10,000 IU vitamin D to control autoimmune.
  2. 500 mg Thiamine sometimes more - neurologic symptoms, neurapathy
  3. 500 mg Nicotinic Acid - increase capillary blood flow will cause flushing and itching for a few days.
  4. 500 mg Pantothenic Acid - creates energy from glucose Krebs Cycle
  5. 1000 mcg B12 - creates hemoglobin for oxygen transport
  6. 500 mg Taurine - essential amino acid, a powerful antioxident that we make indogenously so it is officially labeled "Conditional Essential" as Choline used to be, but not enough when sickness increases inflammation. reduces Reactivite Oxygen Species (ROS are are free radicals.).
  7. 840 mg Phosphatidly Choline x 3 - essential for fat digestion, gall bladder, liver, brain fog, cell membranes, prevent congenital spinal defects (along with B6, B12, folate, Taurine.
  8. Iodine - muscle tone, testosterone, hyper and hypo thyroid, slow healing.  I eat Nori and Kelp

 

Sabaarya Community Regular
12 minutes ago, Wheatwacked said:

You will do better on 1000 mcg oral tablets or sublingual.

"Effects of B12 vitamins usually last around 48 hours to 72 hours after the initial injection.  50 to 98 percent of the vitamin B12 consumed is eliminated from the body 48 hours after the shot is given.  How soon do you feel less tired after a B12 tablets? It may take a few weeks before your vitamin B12 levels and symptoms (such as extreme tiredness or lack of energy) start to improve. If you have hydroxocobalamin injections to boost your vitamin B12 levels at the start of treatment, the cyanocobalamin tablets may start to work within a few days."  Cyanocobalamin

"As carbohydrate intake increased, thiamine decreased further. In contrast, a lower carbohydrate, higher fat diet slows thiamine loss in thiamine-restricted experimental conditions."   Hiding in Plain Sight: Modern Thiamine Deficiency 

Try a bottle of Benfothiamine or 500 mg a day of Thiamine HCL.  Thiamine has no upper limit and the B complex don't have enough.

Unless you are sunbathing without sunscreen, you and the other 40% of the adults in the US, Canada, Ireland and UK are likely to be low or deficient in vitamin D.

66% of the child bearing age women tested in a gynocologist's office had low or deficient Iodine urine test.

90% of the western population don't eat enough Choline.  

More likely deficient choline causing gall bladder issues and fatty liver.  Will also affect brain fog, low energy.

Coca Cola in the US is made with High Fructose Corn Syrup.  Mexican bottled Coke has sugar.  Getting too much fructose can raise your risk of nonalcoholic fatty liver disease. This is when too many fats are stored in liver cells. When you have too much fat buildup, it can lead to nonalcoholic steatohepatitis, scarring of the liver, and liver damage.  Combined with low choline it is very bad for the liver.

For quick energy, Red Bull is only essential B vitamins and minerals and Taurine is an essential antioxidant amino acid added to carbinated sugar water. No high fructose corn syrup or exotic herbs to make you think it is good for you while fatting the manufacturers' pockets.

Heres what I am taking:

  1. 10,000 IU vitamin D to control autoimmune.
  2. 500 mg Thiamine sometimes more - neurologic symptoms, neurapathy
  3. 500 mg Nicotinic Acid - increase capillary blood flow will cause flushing and itching for a few days.
  4. 500 mg Pantothenic Acid - creates energy from glucose Krebs Cycle
  5. 1000 mcg B12 - creates hemoglobin for oxygen transport
  6. 500 mg Taurine - essential amino acid, a powerful antioxident that we make indogenously so it is officially labeled "Conditional Essential" as Choline used to be, but not enough when sickness increases inflammation. reduces Reactivite Oxygen Species (ROS are are free radicals.).
  7. 840 mg Phosphatidly Choline x 3 - essential for fat digestion, gall bladder, liver, brain fog, cell membranes, prevent congenital spinal defects (along with B6, B12, folate, Taurine.
  8. Iodine - muscle tone, testosterone, hyper and hypo thyroid, slow healing.  I eat Nori and Kelp

 

That’s a lot of supplements. What if there is damage to villi again can I get healed?

Nick Cheruka Contributor
9 minutes ago, Sabaarya said:

That’s a lot of supplements. What if there is damage to villi again can I get healed?

Saba, Your Vili will regenerate/heal with maintaining a gluten free lifestyle! Also if you take NSAID’s aka Ibuprofen or any form of NSAID’s they have been shown to cause villi damage as well in the small intestine so if at all possible don’t take them! I use Tylenol if I really need to take something which luckily I haven’t taken any in months! As far as energy and fatigue issues I take the 1000mcg’s of B12 tablet form now where I was only taking 90mcg’s in a multi-vitamin tablet form so in saying that not everyone does not absorb tablets as I have no issue with them and have never gotten the injections as I have not needed them! I went from under 200 with my B12 to over 750 in less than 1 week of taking them I noticed no more fatigue or energy issues at the 30-45 day mark which I’m sure started earlier as I said I felt it had I had to wait to have the bloodwork done once getting them and giving my body a chance with them in my system to show on the bloodwork! I also recently added a B-complex and my fatigue lessened to almost not existing in less than 72 hours! I also train in the gym 5 days a week which working out helps so much with energy levels naturally as well! So not everyone needs the B12 injections, of course everyones system and lifestyle are different! If you don’t think you have an absorption issue I would try the 1000mcg of B12 in the tablet form! I use Nature Made for both, they are gluten-free and work well! I also take a multi-vitamin and to date all my vitamin levels are within the normal readings or higher! Try the tablets and see what happens with your energy levels I felt the impact almost immediately and if I accidentally miss one morning I notice it the same day energy level drop slightly, but once taking them again the fatigue is gone! You can buy these Nature Made Vitamins over the counter pretty much anywhere like Publix and Walmart! Good Luck☘️

Sabaarya Community Regular
41 minutes ago, Nick Cheruka said:

Saba, Your Vili will regenerate/heal with maintaining a gluten free lifestyle! Also if you take NSAID’s aka Ibuprofen or any form of NSAID’s they have been shown to cause villi damage as well in the small intestine so if at all possible don’t take them! I use Tylenol if I really need to take something which luckily I haven’t taken any in months! As far as energy and fatigue issues I take the 1000mcg’s of B12 tablet form now where I was only taking 90mcg’s in a multi-vitamin tablet form so in saying that not everyone does not absorb tablets as I have no issue with them and have never gotten the injections as I have not needed them! I went from under 200 with my B12 to over 750 in less than 1 week of taking them I noticed no more fatigue or energy issues at the 30-45 day mark which I’m sure started earlier as I said I felt it had I had to wait to have the bloodwork done once getting them and giving my body a chance with them in my system to show on the bloodwork! I also recently added a B-complex and my fatigue lessened to almost not existing in less than 72 hours! I also train in the gym 5 days a week which working out helps so much with energy levels naturally as well! So not everyone needs the B12 injections, of course everyones system and lifestyle are different! If you don’t think you have an absorption issue I would try the 1000mcg of B12 in the tablet form! I use Nature Made for both, they are gluten-free and work well! I also take a multi-vitamin and to date all my vitamin levels are within the normal readings or higher! Try the tablets and see what happens with your energy levels I felt the impact almost immediately and if I accidentally miss one morning I notice it the same day energy level drop slightly, but once taking them again the fatigue is gone! You can buy these Nature Made Vitamins over the counter pretty much anywhere like Publix and Walmart! Good Luck☘️

Injections were for my mom,but I had her administer it to me cause injections always work better. Back in my country while I was not having celiac I remember doctors prescribing vitamin C and B complex injections for other issues that I had. And my ferritin level was 6 and my doctor from Turkey was really surprised that my PCP didn’t order iron infusion for me. My doc appointment will be in 2 hours I’ll ask her to check all my vitamin levels and whatever is possible besides general blood work

Thank you❤️

Nick Cheruka Contributor
43 minutes ago, Sabaarya said:

Injections were for my mom,but I had her administer it to me cause injections always work better. Back in my country while I was not having celiac I remember doctors prescribing vitamin C and B complex injections for other issues that I had. And my ferritin level was 6 and my doctor from Turkey was really surprised that my PCP didn’t order iron infusion for me. My doc appointment will be in 2 hours I’ll ask her to check all my vitamin levels and whatever is possible besides general blood work

Thank you❤️

Your welcome Saba go with what you know works best for you and your health thats the most important thing for all of us to do! I hope you get the answers you much need! May God Bless🙏

Sabaarya Community Regular
On 10/3/2023 at 1:29 PM, Nick Cheruka said:

Your welcome Saba go with what you know works best for you and your health thats the most important thing for all of us to do! I hope you get the answers you much need! May God Bless🙏

Hello. So my blood work looks ok. Iron and ferritin got improved,B12 is 685 and overall everything looks normal. I’m just having stool issues,kind of mushy and not bulking. What would you usually eat furring the flare ups of celiac? 
 

Nick Cheruka Contributor
1 hour ago, Sabaarya said:

Hello. So my blood work looks ok. Iron and ferritin got improved,B12 is 685 and overall everything looks normal. I’m just having stool issues,kind of mushy and not bulking. What would you usually eat furring the flare ups of celiac? 
 

I eat a lot of Chicken and Rice! gluten-free and Lactose Free Plant Based Protein Shakes 3-4 times a day before breakfast, between meals and for a quick snack and just before bed! Plus a multi-viamin, 1000mcg’s of B12, a B-Complex and the plant based protein shake with 9 essential amino acids all for muscle repair, growth and energy! Works Great for me! Occasionally 1-2 times a week I eat protein from red meat!

Sabaarya Community Regular
1 hour ago, Nick Cheruka said:

I eat a lot of Chicken and Rice! gluten-free and Lactose Free Plant Based Protein Shakes 3-4 times a day before breakfast, between meals and for a quick snack and just before bed! Plus a multi-viamin, 1000mcg’s of B12, a B-Complex and the plant based protein shake with 9 essential amino acids all for muscle repair, growth and energy! Works Great for me! Occasionally 1-2 times a week I eat protein from red meat!

Can I ask what is the specific plant base protein?

Fifi Newbie

Wheat, barley and rye 

Nick Cheruka Contributor
1 hour ago, Sabaarya said:

Can I ask what is the specific plant base protein?

Yes Saba,  it is a blend of Pea Protein and Pumpkin Seed Protein! No Dairy, No Soy, No Tree Nuts, No Peanuts, No Gluten! Non GMO verified, 100% gluten-free and 100% Vegan! 30 grams of Protein, All 9 essential amino acids! Zero grams of sugar, Keto friendly! All Natural everything you need, No Artificial Flavors or Colors also Greens-Spinach, Kale and Broccoli! They are so good! Made by the OWYN company stands for Only What You Need! The Chocolate and Nut Butter/Chocolate are very good flavor wise! You can look them up On-Line! Made in America! The website is Liveowyn.com

Sabaarya Community Regular
29 minutes ago, Nick Cheruka said:

Yes Saba,  it is a blend of Pea Protein and Pumpkin Seed Protein! No Dairy, No Soy, No Tree Nuts, No Peanuts, No Gluten! Non GMO verified, 100% gluten-free and 100% Vegan! 30 grams of Protein, All 9 essential amino acids! Zero grams of sugar, Keto friendly! All Natural everything you need, No Artificial Flavors or Colors also Greens-Spinach, Kale and Broccoli! They are so good! Made by the OWYN company stands for Only What You Need! The Chocolate and Nut Butter/Chocolate are very good flavor wise! You can look them up On-Line! Made in America! The website is Liveowyn.com

Oh wow,will look it up for sure!

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    • Bebygirl01
      Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.pmed.0010023. Epub 2004 Oct 19. PMCID: PMC523841. AND ALSO SEE: Bascuñán KA, Orosteguí C, Rodríguez JM, Roncoroni L, Doneda L, Elli L, Araya M. Heavy Metal and Rice in Gluten-Free Diets: Are They a Risk? Nutrients. 2023 Jun 30;15(13):2975. doi: 10.3390/nu15132975. PMID: 37447301; PMCID: PMC10346754. Celiac disease is one of the most common autoimmune gastrointestinal diseases; over the last decades, its prevalence indicates a mean annual increase in frequency currently calculated at 7.5% per year [23]. celiac disease is triggered by gluten present in the diet and the disease involves autoimmune and inflammatory damage to the small intestine in genetically susceptible individuals. To develop celiac disease a person must inherit the genetic predisposition; however, about one third of the population carries the risk genes and only ~1% of the population develops the disease, indicating that genetics is not sufficient to explain the condition. The environment participates by providing the triggering factor, i.e., gluten, and the disease is activated by environmental factors which, until now, have not been fully understood, among which changes in eating habits and the intestinal microbiota are considered to be significant factors [24,25]; yet, current knowledge is insufficient to explain the mechanisms involved. Currently, the only treatment for celiac disease is a GFD for life. AND ALSO SEE: Dr. Osborne: Although rice is considered gluten-free based on the definition set forth by the FDA, rice does contain a different form of gluten prolamin called orzenin. In my experience, those with known celiac disease or non celiac gluten sensitivity issues do better when avoiding rice.
    • trents
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