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False TTG IgA

potatochips
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potatochips Newbie
potatochips
Posted

12 weeks ago I had my first test which was greater than 250.  I tried gluten free for a month and my repeat test was greater than 250.  Since then I have been very gluten free.  My test yesterday came back greater than 250.  Are these tests ever wrong?  I am 87 and the life style changes are horrific.  Fixing meals for my husband and I gets very confusing but there is NOT that much cross contamination.  
Thanks.

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RMJ Mentor
RMJ
Posted

When a result is reported as >250 it is difficult to see how fast it might be decreasing.  It might have been 2500 and it’s down 50% to 1250 but it would still be reported as >250.

Samples greater than the upper limit could theoretically be diluted and retested but labs don’t do it because it’s more work/expense for them.  In the US the tests actually aren’t authorized for monitoring celiac disease (although they’re frequently used that way). They’re authorized for detection of celiac disease, and for that indication >250 is positive whether it’s 251 or 2500.

Also, one or three months after starting a gluten free diet is pretty soon for repeat tests.  Doctors often wait 6-12 months before ordering them.  Antibodies can stick around for a while.

potatochips Newbie
potatochips
Posted
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Wow, thank you

  • 3 weeks later...
Scott Adams Grand Master
Scott Adams
Posted

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

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