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Side affects


Jason weidow

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Jason weidow Newbie

Recently got diagnosed with celiac my symptoms were diarrhea, stomach pain mostly in my liver area, dizziness, inflammation in my face tissue, knotted up tense shoulder, nausea, fatigue ,and  insomnia when it first hit I thought I got the flue …. Is this similar to others in the group? 


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trents Grand Master

Welcome to the forum, Jason!

"diarrhea, stomach pain mostly in my liver area, dizziness . . . nausea and fatigue" are common symptoms with celiac disease but "inflammation in my face tissue, knotted up tense shoulder . . . and  insomnia" are not symptoms that I can remember being reported by other celiacs. About 20% of celiacs have elevated liver enzymes that often normalize after being on a gluten free diet for some months.

Jason weidow Newbie
35 minutes ago, trents said:

Welcome to the forum, Jason!

"diarrhea, stomach pain mostly in my liver area, dizziness . . . nausea and fatigue" are common symptoms with celiac disease but "inflammation in my face tissue, knotted up tense shoulder . . . and  insomnia" are not symptoms that I can remember being reported by other celiacs. About 20% of celiacs have elevated liver enzymes that often normalize after being on a gluten free diet for some months.

Ok my doctor also said I have a milk allergy I never had issues with dairy before but do you think that would cause the other problems ?

trents Grand Master
(edited)

Inflammation of your facial tissue could be caused by an allergic reaction to a milk protein. But it is also possible you have developed lactose intolerance or an intolerance to the protein (casein) in dairy. These are common in the celiac population. Note that an allergy is not the same as intolerance.

The knotted up tense shoulder could be a neurological manifestation of celiac disease but more likely it is an orthopedic issue. May we ask your age?

Edited by trents
Scott Adams Grand Master

For many years before and after my diagnosis I had shoulder knots and serious stiff neck issues. This was an issue for me for at least 10-15 years after my diagnosis, until I started taking supplements for likely vitamin and mineral deficiencies, and switching over to a very firm pillow. For the most part these issues are gone now, but not completely. As @trents mentioned, some of this can be caused by your bed, pillow, ergonomics, posture, etc., and also nutrient deficiencies.

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    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
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      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
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      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
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      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
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