Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hashimotos and Celiac

selectivefocus
 Share

Recommended Posts

selectivefocus Enthusiast
selectivefocus
Posted

My 11 year old Celiac daughter has recently started showing some thyroid symptoms. She got glutened pretty bad, had a decent outbreak of DH on her elbows, but she came to me about feeling like there was something stuck in her throat, and itching/bumps on the front of her throat. These symptoms definitely coincide with being glutened. I know gluten is a major inflammatory trigger for Hashi sufferers even if they don't have Celiac. I myself have had postpartum thyroiditis -- I would go hyper and then hypo. But,  that was before my own Celiac diagnosis and I don't get thyroid symptoms anymore. 

I'm going to take her to her doctor no matter what, but I'm waiting until this flare chills out for a couple weeks and her DH clears up so we can get a clear picture. Her thyroid symptoms have gone away the more this glutening flare calms down. She and I have always had such similar symptoms -- versus my other 3 kids, they all have Celiac also and present differently.

So how common is Hashimotos with Celiac, and how common is non-Hashi thyroid inflammation with Celiac?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Stumplet Apprentice
Stumplet
Posted

I don't know about non-hashi thyroid inflammation, but the rates of autoimmune thyroid conditions (including hashimotos) in people with coeliac disease is approximatly 4x greater than the general population. So I would definitely get her thyroid antibodies tested! Hope she feels better soon! 

I do believe hashimotos can rarely be seronegative too, so make sure all her general thyroid function markers are tested too. Don't just rely on the antibodies :)

 

McNish Rookie
McNish
Posted

I have Hashimotos - dx in 2018 & Celiac dx in 2023.   I've been told once you have any autoimmune disease, the greater your chances for other autoimmune disease to appear.   Definitely get her thyroid checked - I don't know that I'd wait till things clear up.  The sooner you find out what might be wrong, the sooner she will begin to heal.   Good luck! 

Scott Adams Grand Master
Scott Adams
Posted

We've summarized research articles on thyroid issues and celiac disease, which are in this category:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/

Raquel2021 Collaborator
Raquel2021
Posted
On 10/15/2023 at 9:14 PM, selectivefocus said:

My 11 year old Celiac daughter has recently started showing some thyroid symptoms. She got glutened pretty bad, had a decent outbreak of DH on her elbows, but she came to me about feeling like there was something stuck in her throat, and itching/bumps on the front of her throat. These symptoms definitely coincide with being glutened. I know gluten is a major inflammatory trigger for Hashi sufferers even if they don't have Celiac. I myself have had postpartum thyroiditis -- I would go hyper and then hypo. But,  that was before my own Celiac diagnosis and I don't get thyroid symptoms anymore. 

I'm going to take her to her doctor no matter what, but I'm waiting until this flare chills out for a couple weeks and her DH clears up so we can get a clear picture. Her thyroid symptoms have gone away the more this glutening flare calms down. She and I have always had such similar symptoms -- versus my other 3 kids, they all have Celiac also and present differently.

So how common is Hashimotos with Celiac, and how common is non-Hashi thyroid inflammation with Celiac?

I also have celiac and hashimotos.  Diagnosed with celiac in 2020. Hashimotos in 2022. The gluten free diet can help with Thyroid issues but it has not made Hashimotos go away for me.

selectivefocus Enthusiast
selectivefocus
Posted
  • Author
1 hour ago, Raquel2021 said:

I also have celiac and hashimotos.  Diagnosed with celiac in 2020. Hashimotos in 2022. The gluten free diet can help with Thyroid issues but it has not made Hashimotos go away for me.

Can I ask what your symptoms were?

Raquel2021 Collaborator
Raquel2021
Posted
10 minutes ago, selectivefocus said:

Can I ask what your symptoms were?

Fatigue. Blurred vision.  Hair loss. Depression/Anxiety/ Insomnia. Weight loss. Pain on my throat as well. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
knitty kitty Grand Master
knitty kitty
Posted

@selectivefocus and @Raquel2021,

Thyroid problems have a connection with Thiamine insufficiency.  Malabsorption due to Celiac and the increased demands during pregnant can precipitate thiamine insufficiency.  Thiamine insufficiency can cause the thyroid to swing from hypo to hyper.  

Thiamine supplementation has been shown to improve symptoms.

 https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/

And...

https://pubmed.ncbi.nlm.nih.gov/37278003/

https://www.hormonesmatter.com/mitochondria-need-nutrients/

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,097
    • Most Online (within 30 mins)
      7,748
    Claire Singer
    Newest Member
    Claire Singer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      With patients who are experiencing ear ringing and ear pain I first want to make sure there is not any kind of ear infective process verified by your primary care. The next thing that I see as a dentist who treats a lot of temporomandibular joint disorders (TMJ), is that the jaw joint can be having a problem that causes the ringing to happen. My primary care physicians here in Colorado Springs will refer these patients to me for evaluation when they don’t find any source of infection with the ear. We are able to treat with a specific type of mouth splint and get resolution of the ringing and ear pain as we resolve the TMJ problem.  First a visit to your primary care to make sure your inner and outer ear is infection free. And if it is clean, a visit to a dentist who treats TMJ disorders. 
    • cristiana
      Options - 7 year old boy - Helicobacter pylori and serology

      By cristiana · Posted

      One thing I ought to add is that although any new medical condition diagnosis can come as a huge shock/blow, navigating the gluten free diet will one day become second nature to you all  Yes, mistakes occur on the way, but it will get easier.  A few things that have helped me on my journey: 1/ My husband has said to me a few times, and I think it helps. I should to try think of all the food I CAN still eat.  So much natural, unprocessed food, is gluten free, and a whole lot of processed and canned goods available in the supermarkets, too.  I can still eat Heinz Baked Beans and Tomato Soup, for example, and a lot of oven chips are gluten free.  Not all chocolate and candy contains gluten.  Excellent gluten free substitutes now exist in the supermarkets and I've lost count of the times I've been eating a product and shared it with a friend, and they have loved it.  Gluten-free doesn't mean taste free.  A lot of gluten-free substitutes are just as good as the 'real thing'. 2/ As time has gone by, I have met more and more coeliacs and other people who react strongly to gluten. This will happen to your son in time, and it often helps to be able to chat with someone who walks a similar path.  I now have over a dozen such buddies and we share tips and recipes, and also recommend 'safe' restaurants and cafes to each other.   3/ Family support.  It is good if you can offer a safe haven at home.  My family aren't coeliacs, but the only things they eat that are not gluten free is shop bought bread and pies, and occasionally biscuits and we keep them very separate.  The rest of the time we cook with gluten free substitutes and all eat the same.  I have always been a keen cake baker and my daughter who is not a coeliac actually prefers the crumbly texture of gluten free flour, so she always uses that, even outside the home.  You can spend lots of time cooking and baking with your son, he'll acquire a new skill, and without wishing to boast, if his cakes are as good as mine he will never be short of friends!!  My daughter has quite a following at Uni, and I don't think they realise that her cakes are even gluten-free! I hope some of this serves to encourage you. Cristiana    
    • cristiana
      Options - 7 year old boy - Helicobacter pylori and serology

      By cristiana · Posted

      @Kathleen JJ  I am based in the UK.  The following link is to a website for UK based consumers but even post-Brexit, we are still importing from and exporting to mainland Europe, so chances are some of the products mentioned in the link are from the same factory.  Therefore, what your son eats would likely be the same product that I eat when it comes to eating sweets. https://libereat.com/2021/07/gluten-free-sweets/#:~:text=Haribo Gold Bears are gluten,Starmix It would therefore appear that Haribo Gold Bears are the ones you need to buy for your son. In answer to your other questions - yes, European labelling is strict so "Gluten free" is trustable.  However, if I read "Residual gluten" on a label I would say that is not safe for coeliacs. But always check the ingredients lists first as ingredients do change over time.  When doing this, what you need to avoid (usually printed in bold in the ingredient list) are: Wheat, barley and rye. These grains all naturally contain gluten. Coeliacs must also avoid products which state, "May contain traces of wheat, barley and rye" or products where the statement occurs: "Made in a factory which also handles wheat, barley and rye"    However, one other thing to think about:  oats.  In the UK, we do produce quite a few cakes and some candy which contains oats.    Oats do not naturally contain gluten, but as the crops are often grown alongside wheat, barley and rye, or processed in the same plants, cross-contamination can occur and they pick up gluten 'en route'.   The good news is that some food producers now grow oats away from these crops, and process them in oat dedicated plants, so you end up with a product called "pure oats" which are suitable for the majority of coeliacs (a minority react to avenin, the oat protein, in the same way they would to gluten, but I won't go into that here - just making you aware in case down the line you think it could be a problem).   So increasingly, in the UK at least, manufacturers are now printing oats in bold.   In candy production, you might find vegan chocolate which contains oat milk, hence I mention it here.  Unless such a candy bar stated that it was suitable for coeliacs,  your son would have to avoid it.   Incidentally, I think the idea of having a party after your holiday is a very wonderful, positive start to your son's gluten-free diet journey.  I was symptomatic by the time I was finally diagnosed with Coeliac Disease and was quite keen to start the diet straight away.  But just a few days after my endoscopy I was due to visit Normandy.  My consultant said to me, "Don't bother about taking up the diet until you get back".   I did try to start it in France but back then French catering establishments didn't seem to appreciate coeliac customers (something my gastroenterologist seemed to know something about!) so I was so glad he told me not to worry until I came home!
    • Kathleen JJ
      Options - 7 year old boy - Helicobacter pylori and serology

      By Kathleen JJ · Posted

      @cristiana Do you have any suggestions for the gummy bear type of candy? Because that is what is getting passed around. Someone told me "you will have to read all labels thoroughly from now on" but to be honest: I don't know what I'm looking for that should or should not be there? And is the notion "gluten free" trustable? And what about "may contain residual gluten"? Is that safe?
    • CXinjera 2
      Injera recipe ?

      By CXinjera 2 · Posted

      Would someone point me to a good injera recipe?
×
×
  • Create New...