Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New and Seeking Help

toothdoc
 Share

Recommended Posts

toothdoc Newbie
toothdoc
Posted

Hello!  My youngest child (15, they/them) was just diagnosed with Celiac after an endoscopy/biopsy for an unrelated issue.  While looking back there are certainly signs/symptoms we can now relate to Celiac, but it really wasn’t on our radar at all.  After positive biopsy, we just got TTG blood test back with a value of 155.  I’m mainly joining for information and support as we navigate this new journey.  My child has several significant mental health diagnoses that have been the focus of our energy for the past 3 years.  We are interested to see if the diet changes will have a positive effect on their mental health.  My first question is, in a household (family of 4 including older sibling), it it best to go 100 percent gluten free as a family in support?  Not sure how that will go over yet.  What are your experiences?  Thanks so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted
(edited)

Welcome to the forum, toothdoc!

It is best to be a 100% gluten free household for a couple of reasons. First, is the one you have already mentioned. Supportiveness. If the whole family is gluten free, your celiac member is less likely to feel deprived and the odd one out. Second, and very importantly, is that a 100% gluten free household will make cross contamination highly unlikely. But there is something else you need to reckon with and that is genetics. A couple of larger studies in the past two years found that almost half of the first degree relatives of those with confirmed celiac disease were found to have celiac disease themselves when tested and confirmed by biopsy. This caught most of the first degree relatives by surprise because they were largely asymptomatic, what we call "silent" celiacs and conflicted with earlier studies which found the familial coincidence at more like 10% among first degree relatives. So, there needs to be more research in this area but the two more recent studies at least suggest the rate may be much higher than originally believed. My point being that it might be a good idea to have everyone in the family tested before converting to a gluten free household in order to catch the disease early, before body systems damage happens. It takes both the genetic potential plus a triggering stress event for someone to develop active celiac disease.

Edited by trents
Wheatwacked Veteran
Wheatwacked
Posted

Hi toothdoc, welcome to the forum.. You'll find lots of information here in the forum, the articles and the blogs.

23 minutes ago, toothdoc said:

it it best to go 100 percent gluten free as a family in support?

Absolutely!  You may be pleasantly surprised to find out that some of those "just getting older" aches and pains are really gluten in disguise.

Plus it is easier to say do as I do as opposed to DO AS I SAY.  

Gluten foods are heavily fortified with vitamins and minerals that the goverment has determined that without fortification much of the American population will be deficient in.  Those rules don't apply to gluten free foods.  And you want to consume well above the minimum RDA.  That is only good to keep 98% of the Healthy population from getting the symptoms of deficiency of a particular vitamin.  Optimum intake is much higher than the RDA.

Good luck with your journey.  We like to hear how it is going.

RMJ Mentor
RMJ
Posted

You might consider going 100% gluten free IN your house, but allow non-celiac family members to eat gluten outside of the house when not with the 15 year old. This could make it a lot easier for the older sibling. 

Scott Adams Grand Master
Scott Adams
Posted

In a perfect world a 100% gluten-free household is ideal, but it doesn't seem fair to make your other child go gluten-free if they don't have any issues with gluten (they should also be screened for it, by the way--all first degree relatives of celiacs should be screened). 

I guess I would have a family meeting and discuss it with everyone, and see how people feel about making such a change. I live in a mixed gluten/gluten-free household, and would not consider trying to pressure anyone into such a dietary change, as it could create bigger issues within my family. That said, everyone in our house knows all the details about cross-contamination, safe food preparation, cleaning, etc.

Raquel2021 Collaborator
Raquel2021
Posted
6 hours ago, toothdoc said:

Hello!  My youngest child (15, they/them) was just diagnosed with Celiac after an endoscopy/biopsy for an unrelated issue.  While looking back there are certainly signs/symptoms we can now relate to Celiac, but it really wasn’t on our radar at all.  After positive biopsy, we just got TTG blood test back with a value of 155.  I’m mainly joining for information and support as we navigate this new journey.  My child has several significant mental health diagnoses that have been the focus of our energy for the past 3 years.  We are interested to see if the diet changes will have a positive effect on their mental health.  My first question is, in a household (family of 4 including older sibling), it it best to go 100 percent gluten free as a family in support?  Not sure how that will go over yet.  What are your experiences?  Thanks so much!

Welcome to the forum.  Our household is mainly gluten free. I have one kid who also has issues with gluten so we have 2 people who are gluten free and 2 who are not. So we buy everything gluten free Except for gluten bread for our nonceliacs. I also send my non-celiac kid to school with gluten snack so that snacks can be eaten outside of the house and he can enjoy them. It is definitely not an easy process and it affects the whole family.  Cross-contamination is the one thing to watch out for.  I tried cooking separate meals it was too much for me and was too worried about crosscontamination. One o advise is to eat as healthy as possible.  Meaning eating vegetables/fruits meats basically non processed food to help the gut heal. I made the mistake of buying too much gluten free junk that sabotaged my recovery.

Raquel2021 Collaborator
Raquel2021
Posted
6 hours ago, toothdoc said:

Hello!  My youngest child (15, they/them) was just diagnosed with Celiac after an endoscopy/biopsy for an unrelated issue.  While looking back there are certainly signs/symptoms we can now relate to Celiac, but it really wasn’t on our radar at all.  After positive biopsy, we just got TTG blood test back with a value of 155.  I’m mainly joining for information and support as we navigate this new journey.  My child has several significant mental health diagnoses that have been the focus of our energy for the past 3 years.  We are interested to see if the diet changes will have a positive effect on their mental health.  My first question is, in a household (family of 4 including older sibling), it it best to go 100 percent gluten free as a family in support?  Not sure how that will go over yet.  What are your experiences?  Thanks so much!

Forgot to mention.  A strict gluten free diet combined with eating lots of healthy foods should have a good impact on your child's mental health. My kid went from getting Cs to A+ at school  months after switching to a gluten free diet. I think kids bodies recover faster than adults.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
knitty kitty Grand Master
knitty kitty
Posted

Thiamine in the form Allithiamine or Tetrahydrofurfuryl disulfide (TTFD) has been shown to have beneficial effects on autism and ADHD.  

Treatment of autism spectrum children with thiamine tetrahydrofurfuryl disulfide: a pilot study

https://pubmed.ncbi.nlm.nih.gov/12195231/

And...

https://www.hormonesmatter.com/energy-deficiency-asd/

Hope this helps!

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,104
    • Most Online (within 30 mins)
      7,748
    Chantal80
    Newest Member
    Chantal80
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Help Understanding Test Results

      By trents · Posted

      ome value? Is that a typo? I don't see that on any of the test results you post and I've never heard of that one.
    • Scott Adams
      Help Understanding Test Results

      By Scott Adams · Posted

      Thanks for the update! It’s great that your GI is being thorough with the follow-up testing—hopefully the endoscopy will give you clearer answers. The EPI diagnosis is interesting; I’ve read that celiac can sometimes lead to pancreatic issues like EPI due to long-term malabsorption or autoimmune overlap. Have they mentioned if your EPI might improve with a gluten-free diet if celiac is confirmed? Wishing you smooth sailing with the endoscopy tomorrow—let us know how it goes.
    • Brown42186
      Help Understanding Test Results

      By Brown42186 · Posted

      Hi again! I just wanted to update here that the GI redid my bloodwork and the ome value is still high so I'm having an endoscopy tomorrow. I also got diagnosed with EPI which seems to possibly be linked to celiac according to Google.
    • Liquid lunch
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Liquid lunch · Posted

      Reishi and cordyceps are immune modulators, they stop you reacting so much/producing antibodies to lectins. Uptake is better when taken as a tincture, you can buy it pre made as a tincture, usually vodka based, or make your own which is much cheaper. You can find instructions online, basically powdered mushrooms soaked in strong alcohol for a month, shaking regularly. Then the strained mushrooms are heated gently in water for 8 hours, strained again and the water then combined with the first alcohol extract. Some of the properties are water soluble, others require alcohol for extraction. It’s also prescribed for fatigue which is a side effect I’m happy to put up with.
    • Bebygirl01
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Bebygirl01 · Posted

      corn: It is the second most commonly genetically modified food on the planet (soy is #1) Genetic modification of foods continues to kill animals in scientific studies. It is an incomplete protein. It is difficult for humans to digest (ever see corn in your stool?) It is high in calories and low in nutrient value It is a new food to the human genome. It is being used as a staple food for our cattle, fish, chicken, and cars. Cows and fish are not designed to eat grain. (Have you ever seen a fish jump out of a lake into a corn field for supper?) When animals eat corn as a staple they have shorter life spans. Corn fed beef is linked to heart disease, diabetes, cancer, and obesity. Grass fed beef is not. Fructose derived from corn is toxic to the liver and contributes to severe health issues. Corn syrup has mercury in it. The list can go on and on and on… Many consumers bow to the alter of “Gluten Free” packaged foods as if the label is a safety net. “Gluten Free” on the package does not mean that the food is healthy. Do not deny yourself the God given right to be healthy.
×
×
  • Create New...