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  • Recent Activity

    1. - Raquel2021 replied to Raquel2021's topic in Coping with Celiac Disease
      8

      Blunted villi almost 4 year after diagnosis

    2. - Raquel2021 replied to Raquel2021's topic in Coping with Celiac Disease
      8

      Blunted villi almost 4 year after diagnosis

    3. - Helen Robertson replied to Raquel2021's topic in Coping with Celiac Disease
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      Blunted villi almost 4 year after diagnosis

    4. - cristiana replied to Pgomez300's topic in Introduce Yourself / Share Stuff
      1

      Couple of balls found on my stomach

    5. - glucel posted a topic in Coping with Celiac Disease
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      unreal blood test results, at least to me


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  • Posts

    • Raquel2021
      Exactly my thoughts.  Having blunting of the villi means you have not completely healed the small intestine. It means you still have some damage.  We need normal villi to absorb nutrients properly.  From what I have heard your bot supposed to take Omeprazole indefinitely as this can also cause the body not to absorb nutrients.  It is interesting you had normal villi and now you are back to blunting. 
    • Raquel2021
      Thanks again. My first endoscopy said mild blunting of the villi. The recent one said the same thing mild blunting of the villi. I went back to the GI because eventhough my symptoms had improved I am still suffering from a lot of them. I had read on this forum about people feeling great again and that never happened to me in the 4 years of gluten-free diet. I have also read articles here about some people never fully recover.
    • Helen Robertson
      I was diagnosed in 2004 via biopsy and had a repeat endoscopy in 2006.  At that time my villi had grown back and I was fine.  Most recently I’ve been having gluten symptoms but antibody blood tests were normal.  I have Vitamin D, Vitamin B12 and folate deficiency’s, however, and am taking copious amounts of vitamins to fix that problem.  I must admit, the depression and exhaustion is much better, although taking the vitamins has been problematic since I regularly choke on them.  The endoscopy revealed that I have blunted villi but the doctor said that since the biopsies were normal, that my stomach is fine.  Really?  Is it really?  Why would he notate that the villi were blunted - whatever that means - if it’s normal?  I’m still experiencing acid reflux and GERD, but are they related to blunted villi or taking too much Omeprazole?  I am uber careful to the point that my kitchen is divided in two - with my husband having his own gluten food cabinet, toaster and microwave.  Would appreciate thoughts.
    • cristiana
      Hello @Pgomez300 and welcome to the forum! Firstly, I ought to say I am not medically qualified. However, I remember asking my GP about lumps in my abdomen.  They were very noticeable when I lost a lot of weight when I was first ill with coeliac disease.  She laughed and said, "It's fat!"  Oddly enough a friend of mine has just found a very large lump near her belly button and the diagnosis was a lipoma, a fatty lump, too.   So what you are noticing might be that.  Or you could also have an umbilical hernia, which is what I have too.  It hasn't changed in years, it's fatty tissue rather than my gut and if I put on weight or am wearing too tight clothes sometimes I have pain there. The fact you have a rash there might just be coincidental? I am a great worrier when I get weird symptoms.  So I get that you are worried, but try not to. 🤗 There could be some really simple explanations. But obviously, not being a doctor we cannot make that call.  Well done for getting it checked out. Do let us know how you get on. Cristiana
    • glucel
      I have had microscopic blood in my urine every blood test for last 50 yrs. Initial testing indicated nephritis/berger's disease which could impact the kidneys. I have always paid special attention to testing to see if it ever went higher than +1in rbc. Yesterday I had my annual physical and the urinalysis came back normal. As reference point, I have been gluten free for 4 months. Blew my mind and offers some hope even if it may be just a one off. So I did a little research to see if I could find any correlation between nephritis and celiac. I found a truly amazing article from the American pediatric ass. https://publications.aap.org/pediatrics/article/148/4/e2021051332/183291/IgA-Nephropathy-as-the-Initial-Presentation-of?autologincheck=redirected
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