Sorry, late to the party.  I started experiencing proctalgia fugax (sp), when I was about 16 - I am now 59.  This is a very painful spasm of what seems to be the sphincter muscle.  This almost always happens in the night and wakes me. For the first few decades this would usually happen around once a month on Sundays.  Very weird I know, but it was that regular at times you could set your watch by it.    In my 40's symptoms became less frequent.  I found that by essentially shoving an ice pack up my backside I could get some relief. 18 months ago I was diagnosed with Celiac and the PF now occurs pretty much weekly, sometimes more often.  I only just came across this thread so as yet have not mentioned PF to my GI doctor (thought it was just a 'me' thing) but will next time I see him in March.  I feel for you, it is indeed crippling pain.  I am a teacher and I think I have had PF 2 or 3 times in the classroom and have had to call the office for cover until the symptoms and sweating subside.  Good luck.  Hope this helps in some way. KMMMN

Celiac, and sensitive to latex, kiwi, avocado, bananas and tapioca. After having a reaction to another Amy’s product (canned chili) which is labeled gluten-free and has no listed tapioca ingredients, I have realized that for those of us who are sensitive to tapioca, it may be even worse than I thought. Not sure if I’ve got this right, but I do know that companies that focus on gluten-free foods use a lot of tapioca. If a certain product doesn’t have any tapioca ingredients, they see no reason to list tapioca or its relatives in the “known allergens” or the “produced in a facility that also uses …..” statement — because it hasn’t been designated a known allergen.  They probably don’t even feel it necessary to apply the kind of Best Practices protocols (extra cleaning) to a production line that may have used tapioca in a previous product. So we may be ingesting tapioca when we are eating something, seemingly tapioca free, produced in a gluten-free dedicated facility. Really discouraging. 

Hi Everyone,   I recently purchased this wheatgrass not realizing that it wasn’t gluten free. I had two servings before I got really sick. Abdominal cramps , diarrhea and horrible nausea. My daughter read the label and told me it wasn’t labeled gluten free. I thought this was safe because supposedly it’s healthy. I called WholeFoods and they told me that they can find out more about the product and email me when it was picked and harvested. I was diagnosed back in 2019 and I really should know better! Anyone else had a reaction to wheatgrass powder? 

Yes, unfortunately I was diagnosed about 15 years ago. Some of us I guess the gut never heals and from what I've learned you can actually have a setback which is probably the stage I am at where I actually have become more sensitive to more items.

Hi Emily! I was just diagnosed a year ago and could not touch nuts, corn (or anything with corn-based ingredients), lactose, or black pepper in the first 8 or so months. Otherwise I had a lot of abdominal discomfort, dizziness/vertigo (especially with corn and pepper) and inflammation throughout the body. I was pretty much eating plain cooked veggies and chicken for the first few months because they were safe and reliable.  Over time, I have slowly started to tolerate some of the no-no foods, but my system is still sensitive to the pepper and has a limit to corn/lactose before symptoms occur. When you’re first diagnosed, you will likely be sensitive to a lot of other foods because your gut is healing from the damage and your body needs to reset. I find that keeping a food diary  and only slowly introducing other foods back into your diet over time is helpful. It is frustrating to feel so limited, but give it some time and patience. It can take the gut years to fully heal in many cases.