Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Testing


Always-Hungry-Kate

Recommended Posts

Always-Hungry-Kate Explorer

Please forgive this late reply on this topic, but I just joined the group a week ago and am still catching-up with all of the various topics, here.

As of today, I am still getting the results of a comprehensive vitamin/mineral blood test that I had done late last week.  As I kind of expected, my vitamin D level was lower than it should’ve been (causing my current condition of osteoporosis), but I just received results that claimed that both my B6 and carotene levels were quite high.  That did not make sense to me, since I do not take any multiple-vitamin supplements, nor am I eating boatloads of carrots, sweet potatoes, or the foods (meats, white potatoes) that would be heavy in B6 vitamins. 

Since I was only diagnosed with celiac disease two months ago, I am still struggling with the diet and I still feel quite off-balance sometimes.  Yes, in early November, I had a meeting with a dietitian who said that I am keeping a very good diet and I should continue with it.  

It just doesn’t make sense to me how this malabsorption issue would result in raised levels of vitamins and minerals.  It must be due to the fact that parts of my body are not regulating those vitamins/minerals as they should — due to my small intestine being somewhat dysfunctional. 

As of last week, when the results started coming in, I was given a prescription-strength vitamin D to take once a week.  That's it so far.  Other than that, I am just to continue with the gluten-free diet that I’ve been on for almost 2 months. 
 

The only improvement I’ve seen in the last two months has been the slight reduction in the horrific feelings of starvation I was feeling.  Also, the terrible anxiety I had seems to have lessened, but the fairly frequent nausea is still there, which I don’t understand either.  I was given a prescription for generic Zofran, but have not used it yet. I don’t want to start taking anything else being that I’m also on an injectable, anabolic osteoporosis drug right now.  I want to keep the meds to a minimum if I can.
 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

@Always-Hungry-Kate,

I referred to one of your previous posts in which you said you had been consuming drinks like Ensure and Boost.  These drinks certainly do contain added vitamins and minerals which could have contributed to your high levels of B 6 and carotene.  

Blood tests for vitamin levels are not accurate measurements of the amount of vitamins inside cells where they are utilized.  You can have "normal" blood levels, but still have a functional vitamin deficiency because there isn't a sufficient amount inside cells.  

Blood tests for vitamin levels reflect how much you've consumed and absorbed of a vitamin in the previous twenty-four to forty-eight hours.  

Vitamin and mineral supplements, and nutritional replacement drinks, power bars, protein bars, energy drinks, etc. should be discontinued eight to twelve weeks before undergoing testing for deficiencies. 

I hope you will post your test results as you get them here.  

The nausea and anxiety can be symptoms of Thiamine insufficiency.  Have you tried increasing your Thiamine dose?

Always-Hungry-Kate Explorer

Of the (so far) 17 separate results that came from the samples taken, only the D (too low) B6 (high), and Carotene (really high) were out of range.  The thiamine, folate, B1, iron, magnesium, selenium and calcium were all well in the normal range(s).  The thiamine even came out as higher-up in the normal range.  
There were even more results delivered on the other vitamins/minerals tested, but they were ones that are/were not as familiar to me as the ones I mentioned above.  I wanted to make sure that those key nutrients were within the normal range.  
I read that high carotene can make you nauseous (?).  I’m going easy on all of the foods that carry that.  Also trying to drink a lot of water to help wash some of that out of me, if that’s possible.  I’m still thinking that because my body is still out of whack, this is going to be something I’ll be struggling with for a little while longer until I’m healed (if I can fully heal). 

I’m happy to say that the raging starvation along with the anxiety I had the last 2 weeks is pretty much gone, now.  It’s only the irrational nausea that has been a daily occurrence that I’m managing with the generic Zofran.  (Now, I know why the doctor prescribed it; it’s way better, and lasts a lot longer than Pepto-Bismol or Mylanta.) 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,731
    • Most Online (within 30 mins)
      7,748

    synjadanynja
    Newest Member
    synjadanynja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
    • Steve-n-Portland
      Correction: My previous post refers to hickory products when I actually meant bakery products.
    • Steve-n-Portland
      Trader Joe's "gluten-free" hickory products are definitely not celiac safe. Their own website used to have a sidebar acknowledging this. Trader Joe's contracts out for their products, or obtains products elsewhere and puts their brand on it. Is Trader Joe's acknowledges, the facilities in which their products are made may change without notice, and ingredients or sources for ingredients may change without notice. Every time I tried Trader Joe's "gluten-free" muffins, breads, tortillas, etc, I had a reaction. The worst reactions were from the muffins (which are about 440 cals apiece, btw). 
×
×
  • Create New...