Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cookies


Dianna Frances

Recommended Posts

Dianna Frances Newbie

My husband made me nobakes with lactaid(dairy allergy) and gluten free oats. So why did I end up sick? Pain in my right side of stomach,  diarrhea.  They also had brown sugar, white sugar, egg, vailla extract.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Skout Organic
Food for Life



Celiac.com Sponsor (A8-M):
GliadinX


knitty kitty Grand Master

Welcome to the forum, @Dianna Frances!

Lactaid is used in lactose intolerance which is different from a dairy allergy.  

Some people have lactose intolerance because they lose the ability to produce the enzyme lactase which digests lactose (the sugar in dairy).  Lactaid has the digestive enzyme lactase added to it.  

In dairy allergy, there's a reaction to Casein, the protein in dairy.  

About fifty percent of people with Celiac Disease react to Casein as though it were gluten.  Segments of Casein resemble segments of  gluten (molecular mimicry) and our anti-gluten  antibodies attack both.  

Some people with CeD react to the protein avenin in oats the same as to gluten.  

Eggs are a high histamine food and many cannot tolerate eggs until their histamine levels become lower as they heal.  

White and brown sugar can spike blood glucose levels, and contribute to Small Intestinal Bacterial Overgrowth (SIBO) and may result in diarrhea.  

Some people with CeD have low stomach acid and damage to their small intestine which causes stomach and abdominal pain.  Liver and gallbladder issues can also affect affect digestion and abdominal pain.  

How long have you been gluten free? By choice or by diagnosis?  Which symptoms led to your diagnosis or decision?

 

Dianna Frances Newbie

I was officially diagnosed one year ago. I have had so.many issues over the years and was told so many different things. However,  in January 2023 I went gluten free but still learning so much. Dairy allergy was given to me about 20 years ago, prior to that it was said I had an intolerance. I have lost over 20 pounds this past year. 137 to 115

knitty kitty Grand Master

Okay, thanks for answering my questions.  

Yes, many of us here get misdiagnosed for ten years or more before we are correctly diagnosed.  

Were you losing weight because you were not eating or because you had digestive problems?  

What have you been eating?  Are you vegetarian?   

Dianna Frances Newbie

Not eating, I eat basically vegetables cereal dairy free yogart lots of salad and tons of digestive issues

knitty kitty Grand Master

Meat, and fish are great sources of the eight essential B vitamins, fat soluble vitamins and minerals.  Including more meat in ones diet provides these nutrients and also proteins that our bodies use for repair and maintenance.  

I found a Paleo diet called the Autoimmune Protocol Diet very helpful.  It excludes gut irritating plant lectins found in beans, grains, and nuts.  Nightshades,  dairy and eggs are excluded, too.  Low Histamine food choices are helpful in reducing inflammation.  

Correcting nutritional deficiencies that occur in Celiac Disease is essential.  Many newly diagnosed people have deficiencies in Vitamin D, iron, zinc, and eight essential B vitamins.  Supplementing with B Complex allows a larger amount to be available for easier absorption in our damaged intestines.  

A deficiency in Thiamine Vitamin B 1 can cause Gastrointestinal Beriberi which results in tons of digestive issues.  

Have you been referred to a Nutritionist?  Talk to your doctor about supplementing to correct nutritional deficiencies common in CeD. 

Which digestive issues bother you the most?

Dianna Frances Newbie

I seem to get diarrhea every time I eat. I also get severe Migraines abd have slight allergies to several nuts. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Skout Organic
Skout Organic



Celiac.com Sponsor (A8-M):
Food for Life


knitty kitty Grand Master

High histamine levels can produce all those symptoms.  So can nutritional deficiencies.  

Have you tried a low histamine diet?  Nuts are high histamine.  

Migraines can be a symptom of Thiamine deficiency and high histamine.  

Are you keeping a food journal to help you track which foods cause digestive problems?  

Helpful Reading...

Histamine Intolerance Originates in the Gut

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8069563/

icelandgirl Proficient

Hi Dianna,

I'm so sorry that you are feeling poorly!  

Have you considered the oats as the cause of the issue.  I think that something like 10% of Celiacs react to oats in a similar way that they do to gluten.  Even gluten free oats.  I am one of the Celiacs who can't tolerate oats at all.  If I eat oats I get severe abdominal pain and diarrhea.

Just something else to consider.  I hope that you get to feeling better!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      128,629
    • Most Online (within 30 mins)
      7,748

    BobAtkins86
    Newest Member
    BobAtkins86
    Joined

  • Celiac.com Sponsor (A20):
    NutHouse! Granola Co.


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.1k

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Skout Organic



  • Upcoming Events

  • Posts

    • trents
      Were any other celiac antibody tests run besides the DGP-IGA? Was a total IGA test run to check for IGA deficiency? There are multiple IGA tests that can be run as well as several IGG tests when checking for celiac disease. The DGP-IGA test is helpful when diagnosing children whose immune systems are immature.  
    • trents
      I think we all wish that managing celiac disease was a simple as just avoiding gluten. And I think we all enter into the journey with that naive misconception. And for some, it is that simple. But for many, it is not. The same processes that resulted in the immune system misidentifying gluten as a threat opens the door for misidentifying other food proteins as threats. At it's core, all this simply is the result of an immune system that has become dysfunctional in some ways and is hypervigilant.  I assume you already know that genetic testing cannot be used to diagnose celiac disease since 40% of the general population has the genetic potential to develop celiac disease while only about 1% develop...
    • bpritch27
      It doesn't look like either avenin or casein would contribute to her IgA levels being high. From my understanding, that is only an indication of gliadin, which is only in gluten.  I should have noted that she does not have any symptoms of being constantly exposed to gluten as the test result shows. No intestinal discomfort, no brain fog, no lack of energy. She is still growing and gaining weight, which was the first indicator that she was not absorbing nutrients properly and led to her celiac diagnosis. 
    • bpritch27
      That is very disheartening... She's due for the celiac genetic test, and the gliadin test again in 3 months.  Oats are easier to avoid, the milk is going to be an issue.  Thank you! We'll see how this goes. 
    • ShariW
      No problems (that I know of) to cellulose, but I have found that I have a "glutened" response to products containing inulin. Another thing to check for on labels!
×
×
  • Create New...