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Upper Arm pain


Rosebud2485

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Rosebud2485 Newbie

I am kind of curious if other people with celiac disease have experienced the same thing. Kind of round 3 for me dealing with my upper arm and shoulder pain. I have experienced really bad pain in the upper arm and shoulder in the past twice. It took me a week or so to get over it. I know the one time it was my left arm. The second time i could not remember if it was my left or right arm. My upper arm and shoulder hurt so bad and feel stiff too like the last two times. Very painful to move my arm at times from the elbow up or move in certain ways. I was wondering if other  people with celiac disease experienced similar issues.


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Scott Adams Grand Master

I've never heard of such symptoms being directly related to celiac disease, even though its symptoms can be very broad and unusual.

Heart conditions, and even heart attacks, can have such symptoms, so be sure to discuss this with your doctor, as they may wish to run some tests to be sure that there is nothing wrong.

  • 3 weeks later...
miguel54b Apprentice

I was under the impression that I had damaged some ligaments in my left shoulder since I had pain there for over a year, That pain went away after I started a gluten free diet. I suspect it was related to gluten because I ate gluten accidentally (wife made Chinese rice and used wheat soy sauce) and the pain came back and went away a few days after. 

Scott Adams Grand Master

It's definitely a possibility because celiac disease can cause so many nutrient deficiencies. To be on the safe side I'd still recommend running this symptom by your doctor. 

You may also want to get your nutrient levels checked. 

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

 

 

 

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    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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