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I need help.

lesley bailey

By lesley bailey
in Super Sensitive People

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lesley bailey Newbie
lesley bailey
Posted

I have long term IBS. Now have a bad overgrowth of bacteria, having treatment for this, but I am still very bad after 1 month. 

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trents Grand Master
trents
Posted

Welcome to the forum @lesley bailey!

Do you have or have you been checked for celiac disease? Just wondering why you posted on a forum for celiac disease.

knitty kitty Grand Master
knitty kitty
Posted

@lesley bailey, welcome to the forum!

Many people diagnosed with IBS can actually be misdiagnosed Celiac patients.  I was told I had IBS more than a decade before my Celiac diagnosis. Have you had any specific tests for Celiac Disease?  DNA test, endoscopy and biopsy, or antibody testing?  Testing for Celiac Disease should be done before you remove gluten from your diet.  If you remove gluten, you stop making the anti-gluten antibodies (tTg IgA, DGP IgG) that blood tests look for, and intestinal healing begins which could cause uncertain biopsy results.  But DNA doesn't change whether consuming gluten or not.  I had negative blood tests because I was so ill for so long and had other medical conditions (anemia, diabetes, nutritional deficiencies, chronic inflammation) that caused seronegative blood test results.  But I have two genes for Celiac Disease.  

Small Intestinal Bacterial Overgrowth occurs when bacteria from the colon and large intestine migrate to the small intestine where they are not meant to be.  High fructose corn syrup provides a biofilament mesh which allows the bacteria to climb up into the small intestine. 

SIBO happens with high carbohydrate diets.  For every extra 1000 calories of carbohydrates, more Thiamine is needed (100 - 500 mg).  Thiamine is required to process carbohydrates and turn carbohydrates into energy for the body to utilize.  If we don't have sufficient thiamine, the undigested carbohydrates feed the bacteria, and encouraging bacterial overgrowth.  

Thiamine also is instrumental in controlling SIBO and keeping those bacteria where they belong.  Thiamine has antibacterial and antiviral properties.  

Drugs, like antibiotics to control SIBO, can break down Thiamine making it unusable to our body, and precipitating a subclinical thiamine deficiency.

I chose a Paleo diet to deal with my SIBO.  By cutting out carbohydrates and high fructose corn syrup, the bad SIBO bacteria starve and die off. 

I also supplemented with Benfotiamine which has been scientifically studied and shown to promote intestinal healing.  I also took a B Complex with all eight essential B vitamins, magnesium (required to make life supporting enzymes with Thiamine), Vitamin C, and Vitamin D.  Vitamin D regulates the immune system, reducing inflammation.  

Hope this helps!

Wheatwacked Veteran
Wheatwacked
Posted

     The result of undiagnosed Celiac Disease is Malabsorption Syndrome where the small intestine villi are damaged and as a result causes multiple vitamin and mineral deficiencies.  IBS could be a symptom of Celiac Disease, not just some poorly understood ("The pathophysiology of IBS is not well understood and is currently referred to as multifactorial—attributable to gut dysmotility, visceral hypersensitivity, dysfunction of the brain-gut axis, immune activation, changes in gut microbiome, and food sensitivities.") mysterious disease.

I would suggest that after testing for Celiac Disease , even if that testing says you do not have Celiac Disease, you try a Gluten Free Diet for at least three months, paying particular attention to your vitamin and mineral intakes.  Wheat flour has an omega 6 to omega 3 ratio of 22:1, where a ratio of 3:1 is considered inflammatory and the typical western diet is between 14:1 and 20:1.  Just eating gluten free will lower your inflammation.  Gluten free does not mean healthy unless you choose a nutrient rich diet with vitamin and mineral boosters to get you well above the mininum RDAs.   As knitty  kitty pointed out, it can take years of misdiagnosis before Celiac Disease is proven to the doctors.  Most of the nutrition in wheat, rye and barley products is from fortification and supplementation anyway.  On their own they are not essential, contrary to popular belief.

Association between irritable bowel syndrome and micronutrients: A systematic review  extracted from the above review:

  • At baseline, intake of vitamins B1, B2, B6, B9, calcium, iron, magnesium, and zinc in patients with IBS were significantly lower compared with dietary reference values.
  • Compared with healthy controls, intake of vitamin A, B2, B9, B12, calcium, and zinc were reduced as well.
  • The results revealed that across the board, serum levels of vitamin D were lower in IBS patients, 
  •  Serum levels of zinc were also lower in patients with IBS compared with controls.
  • Vitamin D supplementation was shown to alleviate IBS symptoms such as abdominal pain, distension, and overall gastrointestinal symptoms compared with placebo.

 

 

  • 2 weeks later...
lesley bailey Newbie
lesley bailey
Posted
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On 1/11/2024 at 6:13 PM, trents said:

Welcome to the forum @lesley bailey!

Do you have or have you been checked for celiac disease? Just wondering why you posted on a forum for celiac disease.

Yes I have had all the tests at hospital and I am definitely Celiac and lactose intolerant. 

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    • trents
      mystery gluten?

      By trents · Posted

      Welcome to the forum, @AnneBSunflower! Can you be more specific about the gluten antibodies? Which ones were found? Do you have access to the report and can you post the results? What is a "GI map"? How was this done? Is this a fecal matter test? Are you still consuming oats? Even "Gluten-free" oats? Have you checked all meds and supplements for possible gluten fillers or casings? Oral hygiene products? Are you sharing cooking facilities with wheat eaters?
    • AnneBSunflower
      mystery gluten?

      By AnneBSunflower · Posted

      Hi. I am looking for mystery gluten in my diet due to having a GI map done recently and the results found gluten antibodies. However, let me provide a bit of background. I was diagnosed with Hashimoto's 15 years ago. Ten years ago I consulted with a functional medicine doctor who put me on the AIP diet due to gastrointestinal distress. She did not diagnose me with celiac disease, but my thyroid antibodies skyrocketed when we reintroduced gluten after 6 months on the AIP diet. I have been maintaining a gluten free diet for 10 years. I have on again, off again gut issues, cannot lose weight, chronic vitamin deficiencies despite a diet focused on whole foods, and my thyroid numbers are whacky even with medication (my T3 is good, T4 chronically low, TSH low). My doctor diagnosed me this week as having celiac in addition to the Hashimoto's. Again, I have been eating gluten free for 10 years. My doctor says there is something I am eating that my body is reacting to that has gluten and I have inflammation in my gut. I don't buy anything that is processed without reading the label and it stating it is gluten free. I know things like soy sauce, salad dressing, potato chips (I haven't eaten a potato chip in probably 30 years), roasted nuts, lunch meat, etc. can have gluten. What else? Does Armour Thyroid have gluten? Kirkland Almond non-dairy beverage (doesn't say gluten free, but there are no ingredients that would indicate gluten)? Philadelphia Cream cheese plant-based cream cheese says it is gluten free but it contains maltodextrin, could this still be a source of gluten? If the plant-based cream cheese with maltodextrin could be a source of gluten, could anything labeled gluten free but containing maltodextrin still be a source of gluten?
    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      I struggled for a long time.   My TTG levels took an age to come down.  I even gave pure gluten free oats a miss, it took 8 years before I could tolerate them.  Removing dairy temporarily from my diet was hugely helpful.  Check your utensils and the oven you use are scrupulously clean, and don't open roast or bake food uncovered in an oven shared with gluten eaters.  Shared grills must be thoroughly cleaned down, too. Our oven packed up a couple of years after I was diagnosed and after that time the top oven became my family's oven, I use the lower oven.  Also our dishwasher - the old one left a residue, and sharing with gluten eaters I think this was an important factor in my slow recovery.  When the dishwasher packed up I started hand washing the plates and making sure they were really rinsed well.  When we got a new one we bought a Miele does the initial rinse with clean water, not yesterday's old water.   I stopped eating out for a while - that's a biggie.  In recent years, in the UK, thanks to Zoe's Law, caterers are having to really tighten up on catering for people with coeliac disease and allergies so I am now finding eating out much less risky.  But I'd advise being very careful with restaurants where flour is thrown about and is airborne (such as pizzerias) or where harried chefs might cook pasta in glutenous water by mistake, as those are the places I've been glutened in the most.
    • kopiq
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      By kopiq · Posted

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    • kopiq
      almost a year in recovery - so many questions about to give up

      By kopiq · Posted

      thank you, ive asked my dr to test for vitamin deficiency and shes only said vitamin d (very low 26) and b12, she says all other vitamins are not included in her blood tests only the major ones, C, D, E, B12 etc. Ive been following the aip diet now and im going to stay on it very strict to see how it goes. im eating tons of food, romaine salads, mango, peaches, pears, cucumber, celery, zuccnini, sweet potator, plantains, ground turkey and beef and chicken.  i eat about 4 plate filling meals a day with two to three good size snacks a day including about 3 or 4 bananas. im still not absorbing nutrients, if i eat any sort of food with fat, I.e ground beef or fatty pork the taste of fat lingers in my mouth for 2-3 hours sometimes longer, if i bask in sun for vitamin d i feel great but then lethargic and feel strange for a day or two later, like im still absorbing it all in. even regular sweet foods like fruit the sweetness stays in mouth for hours. ive had blood work done for gall bladder, thryroid, pancreas, liver, kindey dr says they are all fine. i dont know what other tests i can do?   ive attached two pictures of the rash that broke out on my legs, feet and small one near wrist bone bright red was before treatment, second scabby one is during treatment and healing.  https://freeimage.host/i/FrI3KZb https://freeimage.host/i/FrI3Fwu  
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