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Newly Diagnosed Celiac and DH


MaddieLoges

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MaddieLoges Newbie

Hello all! Recently diagnosed and glad to be apart of a supportive community. I need your help. The reason I found out I have Celiac is because of a huge DH flare up that Ive had for 4 months because I didnt know I could not take gluten. I have stopped gluten for one week now since the diagnosis and its been easy for me. I am still scratching and itching like crazy. Can anyone tell me how long this will last or anything I can do to help my symptoms subside? I am absolutely miserable!!!!


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Scott Adams Grand Master

If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:

 

Russ H Community Regular

That is very interesting. It look like anti-tTG3 antibodies originating in the gut bind to tTG3 in the skin, forming complexes. Iodine leads to structure alterations promoting aberrant behaviour of tTG3 and promotion of disease activity.

 

https://pdf.sciencedirectassets.com/271007/1-s2.0-S0022202X18X00098/1-s2.0-S0022202X18317263/main.pdf

patty-maguire Contributor

It may take a little time for the rash to go away but it's hard to really say how long.  Until then all you can do is try not to scratch and treat the symptoms.  A corticosteroid cream can help.  See your doctor for a prescription.  Also something to help with itching like Lanacane.  If it's really driving you nuts, ice can help to cool the burning itch.

  • 2 weeks later...
hayley3 Contributor

Chiggerex cream is helpful.

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    • Scott Adams
      I lean towards very probably celiac disease due to the two positive tTg-IgA blood tests. Although there are other things that might cause this test to be elevated in certain individuals, the most likely cause by far would be gluten sensitivity.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • Scott Adams
      What is the LCHF diet...low carb high fiber?
    • knitty kitty
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    • joleenrae
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    • trents
      Since she is asymptomatic and her first biopsy was negative I would not assume she has developed celiac disease. If her upcoming biopsy shows evidence of mucosal damage you have the firm evidence you need to trigger the gluten-free protocol at the preschool. There are other causes for mildly elevated tTG-IGA levels besides celiac disease. Studies are all over the map with this statistic but there is somewhere between a 10% and an almost 50% chance that your daughter will develop celiac disease since she has a first degree relative who is a celiac (her sister). The important thing in this scenario is to continue to monitor the situation via testing and symptoms. You are already doing this so kudos to you and your doctors. But one question I have is, are the blood samples being tested by the same lab in each case? Different labs build these tests a little differently and there is no industry standard. So, to compare her tTg-IGA test scores from one time to the other is only useful if the analysis is being handled by the same lab.
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