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Gut health and overcoming celiac


Karen101

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Karen101 Newbie

Hello I have had celiac from 7 and I am now 60yrs. 
 

my mother brother and sister also have celiac their whole life.

 

it was interesting growing up with not much to eat. 
 

I am wanting to know how to express to my friend who is into gut health that you can’t get rid of celiac. 
 

she is determined that if the gut is cleansed and only eat clean foods no meat dairy ect you can change your genetics from your gut. 
 

is this possible as I don’t brlieve it 🌴


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trents Grand Master

You are correct and your friend is wrong. There is a field of genetic science known as epigenetics which studies the influence of environment and lifestyle on gene expression. But once the genes are expressed, you can't turn them back off.

Scott Adams Grand Master

Agreed, celiac disease, like diabetes, is a lifelong condition:

 

  • 4 weeks later...
Blue Roan Apprentice

I know someone who had a celiac diagnosis for 7 years. After a follow-up endoscopy, her GI doctor told her that she no longer had the diagnosis. However, she must be an anomaly because all other material I've read indicates that the disease is lifelong. 

Scott Adams Grand Master

Was she gluten-free during the 7 years? If so, her villi would heal, and if a follow up endoscopy was done it would show no celiac disease damage--which is normal after being gluten-free, but this does not indicate that the disease has been cured, only that the damage has healed due to the treatment--a gluten-free diet. If she starts eating gluten again the damage will eventually return, as it is a lifelong condition. If the doctor told her otherwise they are incorrect.

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    1. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
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    • Ann13
      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
    • trents
      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
    • trents
      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
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