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Glutened Twice in 2 weeks, still very sick


Sarah Elizabeth5

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Sarah Elizabeth5 Newbie

The Sunday before Thanksgiving I ate out at a restaurant and was exposed to gluten. I was sick for 3 days - as I normally am when this happens - and felt better on Thanksgiving. On December 5 I was exposed again at a restaurant (needless to say I won't be eating out again for awhile). I am still sick today. I'm assuming it's from being glutened twice before my stomach had a chance to heal - or that is what my psychiatrist said who has experience with this. I feel nauseous all day everyday. I have been living on white gluten free bread and simple mills crackers. I feel like it starts in the morning after I have coffee. I can't give up coffee though, I also suffer from migraines and am afraid coffee withdrawals will be a big trigger.  After a lot of research, I read that coffee is probably making things worse on my stomach lining and I should give it up until it heals. I am also really constipated. I have had to miss work a few times and take charcoal as laxatives at night are not really working anymore. Does anyone have any advise on what I should do? Is coffee really making things worse and the ultimate trigger for my nausea? When will I go back to "normal." Please, most people in my life do not know anything about celiacs disease, I am their educator. I have never been this sick from it. I have no energy anymore to do anything. I can barely make it threw each day. PLEASE SOMEONE ANYONE HELP


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trents Grand Master

Coffee is very acidic and many people find it gives them tummy burn and/or acid reflux. Recently, I have been using a low acid coffee by Folgers and it has made a huge difference. It does taste somewhat different but if you keep drinking it every day it becomes the new norm. https://www.amazon.com/dp/B01MY5UV95?ref=nb_sb_ss_w_as-reorder_k0_1_7&amp=&crid=2D9ZSRGXW8IRV&amp=&sprefix=folgers

Scott Adams Grand Master

Welcome to the forum!

Do you drink coffee with food? I also drink coffee and can't imagine life without it, but I found that I can't drink it on an empty stomach.

It's difficult to say how long the symptoms of your recent glutenings will continue, but here are some natural, gluten-free options that may help alleviate symptoms:

  • Plain Rice: Cooked white rice is easy to digest and can provide a bland base for meals.
  • Boiled Potatoes: Potatoes are a good source of carbohydrates and can be easily prepared by boiling or baking.
  • Bananas: Bananas are gentle on the stomach and provide potassium, which can be beneficial.
  • Plain Yogurt: Choose plain, unsweetened yogurt with live cultures to support gut health.
  • Cooked Vegetables: Steamed or boiled vegetables, such as carrots or zucchini, can be easier on the digestive system.
  • Bone Broth: Rich in nutrients and easy to digest, bone broth may help soothe the digestive tract.
  • Ginger Tea: Ginger has anti-nausea properties, and ginger tea can be soothing for the stomach.
  • Peppermint Tea: Peppermint tea may help alleviate nausea and promote digestion.
  • Gluten-Free Oats: If well-tolerated, gluten-free oats can provide fiber and may help with constipation.
  • Grilled Chicken or Fish: Lean proteins like grilled chicken or fish can be included in small, well-cooked portions.

It's crucial to stay hydrated by drinking plenty of water and herbal teas. Avoid dairy, high-fat foods, and spicy dishes, as they may exacerbate symptoms.

This article, and the comments below it, may also be helpful:

 

 

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    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
    • Steve-n-Portland
      Correction: My previous post refers to hickory products when I actually meant bakery products.
    • Steve-n-Portland
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