Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms- Brain Fog?


Kwx525

Recommended Posts

Kwx525 Apprentice

Good Morning,

Looking for some advice on how to deal with a doctor. I've been going to a doctor that has been overall fairly nice and understanding. I'm dealing with a situation where a need a statement from the gastroenterologist stating that when I have a Celiac/gluten attack or issue there is associated brain fog as one of the symptoms (among other obvious symptoms). I just heard back from the office, and they said brain fog is not related to the gut (GI) and is not a symptom, therefore they could not make this statement. I was kind of shocked at first and didn't really know how to respond. I managed to get the office worker to re-submit the request and just confirm this was the case. Does this seem right to anyone? I feel like if this is the case, I may need to just find another doctor. Appreciate and insight or thoughts those of you may have.

 

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

I wonder if your request actually went to the doctor or was just denied by other staff.  

Perhaps some references to scientific articles would help to make your point:

Gluten induced cognitive impairment (brain fog) in coeliac disease

Cognitive impairment in celiac disease…

Celiac Disease and Neurological Manifestations: From Gluten to Neuroinflammation

Kwx525 Apprentice

Thank you for the links to the articles. You would think you wouldn't have to send articles to a GI doctor about these symptoms. I did mention that maybe there was some confusion as to when I have these symptoms. Normally, gluten free, I do not typically have these issues. However, when I get glutened I get the whole array of symptoms that most people get, to include brain fog related issues. I feel like if they come back with the same response I'll have to try and get another opinion, which isn't really ideal.

 

Thanks

Scott Adams Grand Master

Brain fog in celiac disease is often linked to nutrient deficiencies. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

 

 

 

knitty kitty Grand Master

@Kwx525,

One of my doctors excused my brain fog as a type of migraine.  Not 100% scientifically and technically accurate, but more acceptable to the uneducated masses and doctors clueless about Celiac. 

Do consider supplementing with vitamins and minerals.  Subclinical deficiencies in Thiamine B1 Pyridoxine B 6, and B12 Cobalamine can help clear brain fog and improve migraines both! 

 

Kwx525 Apprentice

Thanks for the responses. It’s hard to describe to doctors and people sometimes. I just use brain fog cause that makes sense to me and most people who deal with these issues. This usually happens specifically when glutened. I guess you could use terms like decreased ability to focus and/or concentrate. It has always resembled flu like symptoms to me.

Thanks 

Scott Adams Grand Master

Here is some more reading on brain fog and celiac disease in case you are interested:

https://www.celiac.com/search/?&q="brain fog"&type=cms_records2&quick=1&search_and_or=and&search_in=titles&sortby=relevancy 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,428
    • Most Online (within 30 mins)
      7,748

    twin68grcom
    Newest Member
    twin68grcom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • catnapt
      oh geez!! i made a whole long detailed post and it didn't save it   I give up grrrrrrrrrrr  
    • catnapt
      I'm not delaying my recovery- I was well on my way to recovering, IF I do have celiac disease by listening to my body and not eating the foods that made me feel ill. the drug I just stopped taking was making me incredibly ill and it's unfortunate and more than  a little frustrating that the dr  
    • Wheatwacked
      Click on the image to make it larger.  Maybe doesn't work on phone browser,  That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause.   Not trying to.  But much of your rant includes refeferences that may indicate multiple nutritional deficiencies.     Some countries also have tax incentives and financial aid for Celiacs.   Celiac disease is recognized as a disability under the ADA because it substantially limits major life activities like eating and digestive function. Protections require reasonable accommodations in public accommodations, including schools (504 plans), colleges, and hospitals. These often include providing safe, gluten-free food, though they do not force restaurants to provide it.  As far as your recovery, eat gluten free.  Get healthier now and worry about diagnosis later.  Many here on the forum have gone ten or more years looking for a diagnosis, with many doctors and many misdiagnosis along the way. It really doesn't matter why, but you cannot eat  gluten.  That is what is important.  With gluten out of the way, maybe the doctors can make sense of your remaining symptoms.  If you need the ADA, then a medical diagnosis is the way to go.  Meantime you are delaying your recovery from whichever celiac disease or NCGS and the inevitable step one of Gluten Free Diet. tWe come to share experiences and maybe it will help someone. In reality, I don't care.  By the way I have stopped 6 medications Against Medical Advice because they did not do their job and the side effects were crippling. This is a lifelong fight for your life.  Pick you battles carefully.  Assume the worst, celiac disease, and deal with it.  Denial is not just a river in Egypt. Pleased to meet you, too.  
    • catnapt
      I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..?   and some coffee?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.