Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms- Brain Fog?


Kwx525

Recommended Posts

Kwx525 Apprentice

Good Morning,

Looking for some advice on how to deal with a doctor. I've been going to a doctor that has been overall fairly nice and understanding. I'm dealing with a situation where a need a statement from the gastroenterologist stating that when I have a Celiac/gluten attack or issue there is associated brain fog as one of the symptoms (among other obvious symptoms). I just heard back from the office, and they said brain fog is not related to the gut (GI) and is not a symptom, therefore they could not make this statement. I was kind of shocked at first and didn't really know how to respond. I managed to get the office worker to re-submit the request and just confirm this was the case. Does this seem right to anyone? I feel like if this is the case, I may need to just find another doctor. Appreciate and insight or thoughts those of you may have.

 

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

I wonder if your request actually went to the doctor or was just denied by other staff.  

Perhaps some references to scientific articles would help to make your point:

Gluten induced cognitive impairment (brain fog) in coeliac disease

Cognitive impairment in celiac disease…

Celiac Disease and Neurological Manifestations: From Gluten to Neuroinflammation

Kwx525 Apprentice

Thank you for the links to the articles. You would think you wouldn't have to send articles to a GI doctor about these symptoms. I did mention that maybe there was some confusion as to when I have these symptoms. Normally, gluten free, I do not typically have these issues. However, when I get glutened I get the whole array of symptoms that most people get, to include brain fog related issues. I feel like if they come back with the same response I'll have to try and get another opinion, which isn't really ideal.

 

Thanks

Scott Adams Grand Master

Brain fog in celiac disease is often linked to nutrient deficiencies. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

 

 

 

knitty kitty Grand Master

@Kwx525,

One of my doctors excused my brain fog as a type of migraine.  Not 100% scientifically and technically accurate, but more acceptable to the uneducated masses and doctors clueless about Celiac. 

Do consider supplementing with vitamins and minerals.  Subclinical deficiencies in Thiamine B1 Pyridoxine B 6, and B12 Cobalamine can help clear brain fog and improve migraines both! 

 

Kwx525 Apprentice

Thanks for the responses. It’s hard to describe to doctors and people sometimes. I just use brain fog cause that makes sense to me and most people who deal with these issues. This usually happens specifically when glutened. I guess you could use terms like decreased ability to focus and/or concentrate. It has always resembled flu like symptoms to me.

Thanks 

Scott Adams Grand Master

Here is some more reading on brain fog and celiac disease in case you are interested:

https://www.celiac.com/search/?&q="brain fog"&type=cms_records2&quick=1&search_and_or=and&search_in=titles&sortby=relevancy 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    2. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    3. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    4. 0

      Virtual Support Group: Living Gluten Free

    5. 0

      Virtual Support Group: Living Gluten Free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,449
    • Most Online (within 30 mins)
      7,748

    ellenkass
    Newest Member
    ellenkass
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      This is an older article, but still helpful:  
    • cristiana
      It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now.  Probably cutbacks, everyone's trying to save money now!
    • Scott Adams
      Eating grains typically depletes certain B vitamins, so I'm not sure why they decided to fortify with calcium and iron, but hopefully we'll see more B vitamin fortification in gluten-free products going forward.
    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.