Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms- Brain Fog?


Kwx525

Recommended Posts

Kwx525 Apprentice

Good Morning,

Looking for some advice on how to deal with a doctor. I've been going to a doctor that has been overall fairly nice and understanding. I'm dealing with a situation where a need a statement from the gastroenterologist stating that when I have a Celiac/gluten attack or issue there is associated brain fog as one of the symptoms (among other obvious symptoms). I just heard back from the office, and they said brain fog is not related to the gut (GI) and is not a symptom, therefore they could not make this statement. I was kind of shocked at first and didn't really know how to respond. I managed to get the office worker to re-submit the request and just confirm this was the case. Does this seem right to anyone? I feel like if this is the case, I may need to just find another doctor. Appreciate and insight or thoughts those of you may have.

 

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

I wonder if your request actually went to the doctor or was just denied by other staff.  

Perhaps some references to scientific articles would help to make your point:

Gluten induced cognitive impairment (brain fog) in coeliac disease

Cognitive impairment in celiac disease…

Celiac Disease and Neurological Manifestations: From Gluten to Neuroinflammation

Kwx525 Apprentice

Thank you for the links to the articles. You would think you wouldn't have to send articles to a GI doctor about these symptoms. I did mention that maybe there was some confusion as to when I have these symptoms. Normally, gluten free, I do not typically have these issues. However, when I get glutened I get the whole array of symptoms that most people get, to include brain fog related issues. I feel like if they come back with the same response I'll have to try and get another opinion, which isn't really ideal.

 

Thanks

Scott Adams Grand Master

Brain fog in celiac disease is often linked to nutrient deficiencies. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

 

 

 

knitty kitty Grand Master

@Kwx525,

One of my doctors excused my brain fog as a type of migraine.  Not 100% scientifically and technically accurate, but more acceptable to the uneducated masses and doctors clueless about Celiac. 

Do consider supplementing with vitamins and minerals.  Subclinical deficiencies in Thiamine B1 Pyridoxine B 6, and B12 Cobalamine can help clear brain fog and improve migraines both! 

 

Kwx525 Apprentice

Thanks for the responses. It’s hard to describe to doctors and people sometimes. I just use brain fog cause that makes sense to me and most people who deal with these issues. This usually happens specifically when glutened. I guess you could use terms like decreased ability to focus and/or concentrate. It has always resembled flu like symptoms to me.

Thanks 

Scott Adams Grand Master

Here is some more reading on brain fog and celiac disease in case you are interested:

https://www.celiac.com/search/?&q="brain fog"&type=cms_records2&quick=1&search_and_or=and&search_in=titles&sortby=relevancy 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,371
    • Most Online (within 30 mins)
      7,748

    PennyL
    Newest Member
    PennyL
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.