Chris, has your husband had a recent checkup with detailed bloodwork (CBC and CMP)? Has he been checked for vitamin and mineral deficiencies?

Hi everyone - I have been gluten free for 2+ years after doing some genetic testing that showed inability to process gluten and carrying a gene for celiac (I’ve had GI related issues for 20+ years that were diagnosed as IBS/lactose intolerance). After persistent low iron, new GI suggested we look at celiac. Endoscopy results noted the below. I have to add that I added gluten for about 12 days prior to my test (and was miserable in the process). “The differential diagnosis includes celiac disease, but the degree of intraepithelial lymphocytes does not reach the threshold for Marsh 1 lesion.” Chrons/Colitis negative. GI suggested I continue eating gluten (after a 3 day pause awaiting results) to do bloodwork. I ate gluten for another 1.5 weeks (about 4 weeks in total) and blood work came back normal. My symptoms however have continued to get worse with changes in bowl habits, sharp pains in the abdomen and nausea.  I feel like I did not have gluten for enough time prior to my endoscopy for accurate results. What do you do in such a case? (Note: still pending follow up from GI)

It was a long road to get to this point, but we have discussed many times that if my husband had not seen the remarkable transformation in my health with just diet and supplements, he never would have accepted the advice of this cardiologist.  He would have thought he was a quack and found another doctor.  As it was, he was leery of seeing this guy, but his cardiologist retired and this was the man who took over the practice.  He left that hospital for a bigger practice, but my husband, and most of his patients followed him, even though it is an hour away now.  

Welcome to the forum, @ChrisDun! Has your husband been checked for nutritional deficiencies?  Many newly diagnosed are short on the B Complex vitamins (especially Thiamine), Vitamin D and minerals like magnesium and iron.   Talk to the doctor and nutritionist about supplementing the eight essential B vitamins while healing.   I had episodes where I would "hit a walk" and had to stop and rest.  I was very deficient in Thiamine and the other B vitamin.  The B vitamins are water soluble, and so are easily excreted if not needed, but the difference supplementing them was enormous, especially with Thiamine in the form Benfotiamine which promotes intestinal healing.   Remember, gluten free processed foods are not fortified nor enriched with vitamins like gluten containing products.  The B vitamins need to be supplemented.  The gluten free diet can be short on them. Hope this helps!

Please let us know how it turns out.