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These are the tests the VA is doing?

hayley3
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hayley3 Contributor
hayley3
Posted

Endomysial AB, IgA

Immunoglobulin A, QN

Tissue Transglutaminase IgA

Anti-Gliadin Profile

If the Endomysial test comes back negative does that negate the positive biopsy?

 

  • hayley3 changed the title to These are the tests the VA is doing?
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hayley3 Contributor
hayley3
Posted
  • Author
10 minutes ago, hayley3 said:

Endomysial AB, IgA

Immunoglobulin A, QN

Tissue Transglutaminase IgA

Anti-Gliadin Profile

If the Endomysial test comes back negative does that negate the positive biopsy?

 

Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis.

frieze Community Regular
frieze
Posted
16 hours ago, hayley3 said:

Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis.

Since your biology is positive,  you need NO further testing! Commence gluten free.  From reading other of your posts, also low tyramine,  which is no fun either!  If you need help, try migraine sites. 

hayley3 Contributor
hayley3
Posted
  • Author

Thanks...I was hoping a healed stomach could process the tyramine better.

frieze Community Regular
frieze
Posted
On 2/1/2024 at 8:54 AM, hayley3 said:

Thanks...I was hoping a healed stomach could process the tyramine better.

Look into microbiome. Tyramine can be produced to excess in the small intestine if the bacteria is not balanced properly.

hayley3 Contributor
hayley3
Posted
  • Author
49 minutes ago, frieze said:

Look into microbiome. Tyramine can be produced to excess in the small intestine if the bacteria is not balanced properly.

I've been trying since 2006 to fix my microbiome.  I knew something was off.  I was dx'd with SIBO by endoscopy.  But now that I know I have celiac, that explains why I never could get better, no matter what I did even water fasting which did help briefly but then I'd eat wheat again. 

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    • Jason Hi
      Need Advice on Doctors

      By Jason Hi · Posted

      For the upper gastrointestinal endoscopy, they said 7 days of gluten. So I did 8...fast food and Krispy Kreme doughnuts. For the earlier blood test, the younger doctor said I didn't have to. My immune system went down, I was in the bathroom a lot, and as my wife said my brain wasn't braining.
    • ChrisSeth
      Waiting on Blood test results…

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      Thanks guys. I just got my results but I don’t know what they mean…  celiac disease reflex panel Immunoglobulin A  normal range 66-433  my results are a score of 358. Is this normal? I have no idea what to make of it…
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      By trents · Posted

      How long was your gluten challenge? I hope it was longer than a week. If not, your testing was likely invalid. Recently upgraded guidelines call for the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) for at least two weeks prior to either the blood antibody test draw or the endoscopy/biopsy. And if you had been gluten free for all those years, you likely had lost any tolerance to gluten you may have had when consuming it regularly. That's probably why it was such a tough sledding experience. Before I was diagnosed, I had very minor GI symptoms. Now, after many years of being gluten free, I get violently ill for hours if I get a good slug of gluten, like when I got my wife's wheat biscuits mixed up with the gluten free ones she made me.
    • Jason Hi
      Need Advice on Doctors

      By Jason Hi · Posted

      "Commit in a serious way to the gluten-free diet"....I've been Gluten-free since 2008. That's why I was so sick and had to take nausea and bloating medications during the gluten challenge week prior to the upper gastrointestinal endoscopy performed by the gastroenterologist. The "younger" doctor (the internal medicine who did the blood test), said the antibodies should remain in your system and you don't have to eat gluten (i.e., blood test last year). Hence my posting on finding a good doctor.
    • trents
      Need Advice on Doctors

      By trents · Posted

      Well, the next step would logically be to commit in a serious way to the gluten-free diet and see if you have significant improvement in your symptoms. You should see improvement very soon with regard to GI issues and within weeks if there are other symptoms if gluten is indeed the issue. If there is significant improvement after going gluten free, that would tell you that you must avoid gluten and given the test results you already have, the logical conclusion is NCGS. As I said, an NCGS diagnosis is arrived at by first ruling out celiac disease, which seems to have been done. Then you could go back to that doctor with the other evidence component (improvement of symptoms with gluten-free eating) and ask if he/she would now be willing to declare an official dx of NCGS and give you a note. Or, you could book an appointment with another doctor who could look at your test results online, together with symptom improvement after going gluten-free, who might be more cooperative. I would seek out a younger practitioner as they are more likely to not be operating on outdated info about gluten disorders. By the way, NCGS is about 10x more common than celiac disease. 
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