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Bipolar and Celiac Disease


Mari

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Mari Contributor

I seemed to have had celiac disease from when I was about 3 years old and was diagnosed just before I turned 70 so I have been gluten-free for 18 years. I think that my sister also is Celiac but with quite different symptoms. She had extreme hair loss dating back to about her first pregnancy and has worn a wig for many years. Her son took the 23&me test and found he had inherited a main Celiac gene. A short time ago my nephew wrote  to me asking about Celiac problems. Before that several years ago I had seen a photo of one of his daughters. She was very overweight and looked very miserable. I wrote him and suggested he have her tested for celiac disease. I think that she was tested and does have celiac disease but he did not share that information with me. Now he has written me about another daughter. She is about 20 years old and was diagnosed with bipolar disorder while in high school. Her mental problems have become much worse lately. She was in a mental health facility then met a guy online and moved to a different state. When he realized she had mental health problems he turned her out. She was homeless for a while but went to a hospital and is now in a rehab facility as it seems has been using drugs and may have become an addict.  My nephew hopes she will come out of her problems with the right meds and therapy. 

I am very concerned for this young relative. I need to find some way to help my nephew deal with this situation. I have wrttin him about my celiac problems and experiences and about celiac disease in general. References, personal experiences will help find a way to help me find a way to help this young person.


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Scott Adams Grand Master

We have 2 categories where we've summarized articles that related to mental health issues that are related to celiac disease:

Perhaps you could browse through and find related articles and email them to your affected relatives? Hopefully all of your relatives can be screened for celiac disease and go gluten-free if they find it.

Mari Contributor
On 2/13/2024 at 10:39 AM, Scott Adams said:

We have 2 categories where we've summarized articles that related to mental health issues that are related to celiac disease:

Perhaps you could browse through and find related articles and email them to your affected relatives? Hopefully all of your relatives can be screened for celiac disease and go gluten-free if they find it.

Thank you Scott Adams. I was hoping for some references. My eyesight is poor so it makes it difficult to find references, difficult to read small print. I will share these links with my nephew.

  • 2 weeks later...
Mari Contributor

Most helpful was the response by Scott Adams who posted some llinks to articles. 

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    • Scott Adams
      It sounds like you’re doing an amazing job helping your daughter navigate her new gluten-free lifestyle—it can be a big adjustment, especially for little ones! To address your questions: Increased bowel movements: It’s possible her digestive system is beginning to work better now that she’s gluten-free, and she’s clearing out what wasn’t moving before. Chronic constipation and impaction can take time to resolve fully, and daily Movicol might still be helping this process. Over time, her bowels should normalize as her gut heals, but if the frequent stools persist or seem excessive, it’s worth checking with her doctor to rule out other issues like malabsorption or food intolerances. Pinkish stool color: Changes in stool color can be common after diet changes, but pinkish stools should be monitored closely. If it’s not blood and doesn’t seem to bother her, it could just be due to something she’s eaten—like certain fruits, vegetables, or food dyes. However, if the color persists, worsens, or is accompanied by other symptoms, definitely mention it to her doctor to rule out any underlying concerns. Bloated tummy: A distended tummy from celiac disease can take time to go down as her gut lining heals and inflammation reduces. It varies for every child, but improvements are often seen within a few weeks to months of being strictly gluten-free. Staying consistent with the diet and ensuring she gets all the nutrients her body needs—especially iron, zinc, and B vitamins—will support this process. If the bloating doesn’t seem to improve or worsens, her doctor may want to investigate further. It’s still early days, so keep doing what you’re doing and stay patient with her progress. Keep track of her symptoms, and don’t hesitate to bring up any concerns at her follow-up appointments. Recovery can be a slow process, but most kids with celiac thrive once their gut heals. Sending lots of positive thoughts your way—she’s lucky to have you looking out for her!
    • Scott Adams
      It sounds like you’ve been through a lot, and I’m glad to hear you’ve already noticed improvements since going gluten-free! It’s not uncommon for people with celiac disease to feel like their body is in a prolonged recovery phase, especially if the damage from years of undiagnosed celiac was severe. Your symptoms, like tingling, seeing stars, a pounding heart, shakiness, and frequent urination, could be related to a number of things—potentially from lingering nutrient deficiencies, nervous system involvement, or another coexisting condition. It’s good to hear you have an appointment with your doctor soon. Definitely mention all these symptoms. Some questions you might want to explore with them include: Nutrient deficiencies: Celiac disease can cause deficiencies in vitamins like B12, magnesium, and iron, which might explain some neurological symptoms like tingling and shakiness. Have you had a full panel done recently? Adrenal or thyroid issues: The pounding heart and frequent urination might suggest something hormonal. Many people with celiac disease also have other autoimmune conditions, like thyroid disorders, that could be worth checking. Neuropathy or nervous system involvement: Tingling and warmth could be signs of gluten-related nerve damage. While these symptoms often improve over time with a strict gluten-free diet, additional support or tests might be needed. Blood sugar fluctuations: Symptoms like shakiness and feeling super warm can sometimes point to blood sugar issues. Even if you don’t have diabetes, it’s worth exploring. While it’s encouraging to hear you’re improving overall, your body might still be healing, and sometimes these lingering symptoms point to something else needing attention. Recovery from celiac can be slow, and managing other factors like stress, sleep, and balanced nutrition can also help support healing. Let us know what your doctor says! You’re not alone in this, and many of us here understand the frustration of not bouncing back as quickly as we’d like. Sending good vibes for your continued recovery!
    • Scott Adams
      Be sure to search our articles, we've covered some of these:     You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
    • trents
      Welcome to the forum, Brianne03! It is relatively easy, as you have discovered, to identify gluten-free products when considering only intentional ingredients but it can be much more difficult or impossible to get definitive answers about cross contamination. Does your daughter fall into the supersensitive category of celiacs? That is, does she have definite reactions to very small amounts of gluten exposure? If not, you might do well to just focus on listed ingredients and not worry too much about CC (cross contamination). In the things you list, gum and cough drops are probably the biggest concern. Most chewing gums have wheat starch in them. But some don't. My practice is to include the terms "gluten free" in my Amazon searches for those kinds of products. As to medications, this might be helpful but CC can not be ruled out with generic drugs:  http://www.glutenfreedrugs.com/list.htm
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