Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

transglutaminase IGA Ab still present, but low

Darcee
 Share

Recommended Posts

Darcee Newbie
Darcee
Posted

I've been gluten free for 14 years now and recently (last 2 years) did a full elimination and re-introduction following the AIP protocol and am now essentially eating paleo plus rice.  The rest of my household is not gluten free however.  I had my transglutaminase IGA ab tested and it was 3.6.  Greater than 15 is considered positive for Celiac on this lab.  However, the fact that I have had a VERY clean diet for the last 2 years and still have antibodies present makes me concerned.  Do you think I'm getting cross contamination from touching gluten products in my house or does that value of 3.6 mean nothing?  I would just assume if I'm not exposed to any more gluten I should've have any antibodies at all.  Thanks for any advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DonnaNM Rookie
DonnaNM
Posted

I'm not a doctor.  However, my blood doctor told me because I have Celiac disease the antibodies will always be present.  So don't panic, but discuss it with your doctor.  

Scott Adams Grand Master
Scott Adams
Posted

For some people there are other conditions that can cause elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA). This article discusses them:

 

 

Raquel2021 Collaborator
Raquel2021
Posted
21 hours ago, Darcee said:

I've been gluten free for 14 years now and recently (last 2 years) did a full elimination and re-introduction following the AIP protocol and am now essentially eating paleo plus rice.  The rest of my household is not gluten free however.  I had my transglutaminase IGA ab tested and it was 3.6.  Greater than 15 is considered positive for Celiac on this lab.  However, the fact that I have had a VERY clean diet for the last 2 years and still have antibodies present makes me concerned.  Do you think I'm getting cross contamination from touching gluten products in my house or does that value of 3.6 mean nothing?  I would just assume if I'm not exposed to any more gluten I should've have any antibodies at all.  Thanks for any advice!

If greater than 15 is normal then I think is normal to still have a few antibodies.  I recently did mine, being gluten-free for 3 years and follow a similar style diet and mine were 7. My Dr told me that was good.

Jane07 Enthusiast
Jane07
Posted

do you think if it below 15 it not consided postive for celiac in the lab

Darcee Newbie
Darcee
Posted
  • Author
42 minutes ago, Jane07 said:

do you think if it below 15 it not consided postive for celiac in the lab

I do not understand what you wrote.  I know that greater than 15 from this lab indicates Celiac.  However, I've had my daughter tested (to make sure she doesn't have it) and her value from the lab was <1.  Mine was 3.6 so I was just wondering if it's normal to still have antibodies present regardless of your gluten free diet (14 years) or if having any antibodies present (less than 15) means you are still reacting to gluten from an unknown source then.  

Jane07 Enthusiast
Jane07
Posted
On 2/13/2024 at 11:33 PM, Darcee said:

I've been gluten free for 14 years now and recently (last 2 years) did a full elimination and re-introduction following the AIP protocol and am now essentially eating paleo plus rice.  The rest of my household is not gluten free however.  I had my transglutaminase IGA ab tested and it was 3.6.  Greater than 15 is considered positive for Celiac on this lab.  However, the fact that I have had a VERY clean diet for the last 2 years and still have antibodies present makes me concerned.  Do you think I'm getting cross contamination from touching gluten products in my house or does that value of 3.6 mean nothing?  I would just assume if I'm not exposed to any more gluten I should've have any antibodies at all.  Thanks for any advice!

ok thanks its not in the normal range for me yet. its just been about a year on a gluten free diet it difficult,  

im  hope things improve i get  to the normal range. i will keep trying.

wow you done it for 14 yrs good luck

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

If your goal is to get the level near zero you may try a casin/milk-free diet to see if that works, as per the article I shared.

Rogol72 Collaborator
Rogol72
Posted

I had a coeliac panel last year to see if any sneaky gluten was getting into my system, the ttg result was 3.1.

I had another done last week, and it came down to 1.7.

flowerpen Newbie
flowerpen
Posted
On 2/13/2024 at 11:23 PM, DonnaNM said:

I'm not a doctor.  However, my blood doctor told me because I have Celiac disease the antibodies will always be present.  So don't panic, but discuss it with your doctor.  

I thought it was normal, as in for non- celiac individuals, to have these antibodies. I've been mostly gluten free for years, operating under the assumption I had an intolerance, and I have always landed in the mid-normal range (7-10 with 20 being the cutoff). 

Is it normal for non-celiacs to have none or almost none?

Scott Adams Grand Master
Scott Adams
Posted

The antibodies used in celiac disease screening are very specific to people who have an autoimmune reaction to gluten, so those without celiac disease or gluten sensitivity normally test at or near zero.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,653
    • Most Online (within 30 mins)
      7,748
    Mary Miller A
    Newest Member
    Mary Miller A
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jenn D
      Still testing positive after being gluten free for one year ?!!

      By Jenn D · Posted

      Hi. Did your ema levels ever go negative? My son is 2 years in gluten free and they are still positive.  I'm scared he has refractory celiac disease. Please if anyone has any info greatly appreciate it. His ttg is 3 which is considered normal.
    • MomofGF
      Not sure if this is Celiac or just a gluten-free intolerance

      By MomofGF · Posted

      I will have that info soon but it was a laundry list of a test and 9 viles. ok so there were some days she was gluten she barely ate because of the reactions. I told her 3 weeks of atleast 10g’s a day and no gluten-free days. Thanks so much for your help! I didn’t know my suggestion for gluten-free days would have hurt her.    I will come back with the list to make sure the req was proper!! 
    • trents
      Not sure if this is Celiac or just a gluten-free intolerance

      By trents · Posted

      A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the testing. Was there a blood test done for IGA deficiency? Can you post the test names that were done with the scores and with the reference ranges used by the lab? By the way, with celiac disease the issue is not being able to digest gluten. Celiac disease is an autoimmune disorder defined by the fact that ingestion of gluten triggers an immune system response that attacks the membrane that lines the small bowel. The immune system mistakenly identifies the protein gluten as a biologic invader.
    • MomofGF
      Not sure if this is Celiac or just a gluten-free intolerance

      By MomofGF · Posted

      Hey all!! M i want to thank everyone for their suggestions and advice - I am a single mother of 4 (now 3) and was helping with my oldest leaving the nest. I have another child with medical issues and with work (it’s our end year), life has been crazy and I haven’t had the time to answer.    so we got a blood test done for my daughter that can’t digest gluten. She had been eating gluten for 2 weeks. The blood work came back normal? How is that possible. I see her with my own eyes and it’s not normal. Is that not long enough?  I am thinking about having her eat gluten another week then go to the hospital and see what they say.    She did have 3 gluten-free days in those 2 weeks but she was getting afraid to eat and I told her to may take a day off - was this a bad thing to do? Girl was having constant back pains and muscle soreness as well. Headaches/migraines…should I wait longer. I did see 4-6 weeks of Gluten consumption prior to testing… kind of at a loss now.    Thanks to everyone for whatever advice you can give.   Enjoy your Sunday 😃👋👋      
    • Scott Adams
      Query

      By Scott Adams · Posted

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...