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Biopsy results from endoscopy show evidence of celiac disease and lab work results in a weak positive TT IgA result of 4

Rhonda H
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Rhonda H Newbie
Rhonda H
Posted

I recently had an endoscopy for what we thought was for reflux.  The biopsy results showed evidence of celiac disease.  I followed the next day with lab work using the TT IgA test which resulted with a weak positive of a 4 (normal range 0-3).  I don't meet for follow up with my GI Dr. for a few weeks but curious what this might mean.  I generally eat a low carb diet and have been for about a year but not carb free. I eat breads in moderation.  I wonder if my low carb diet lifestyle "skewed" the results.  I don't have most symptoms of those the celiac disease but I know everyone is different.  I wonder if it's possible I just have a gluten sensitivity  and could go "gluten free" rather than the more serious work so many people with this disease to clean their home and life of any gluten? 

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Scott Adams Grand Master
Scott Adams
Posted

If you have a positive endoscopy result, including a positive blood test for celiac disease, it definitely means that you probably have celiac disease. Since you were eating a low gluten diet your blood test results were likely lower than they would have been if you were doing a proper gluten challenge before the test. You could not get false positive results from eating a low gluten diet before these tests--this could only produce false negative results.

Rhonda H Newbie
Rhonda H
Posted
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Is there any form or celiac disease that I can completely eliminate gluten from my diet but not have to worry so much about cross contamination or other more serious changes in my household? 

Scott Adams Grand Master
Scott Adams
Posted

No, celiac disease requires a 100% gluten-free diet. 

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

Rhonda H Newbie
Rhonda H
Posted
  • Author

Thank you.  My ultimate hope was that I certainly could go 100% gluten free but my husband not be impacted so severely by not being able to have certain foods, cookware and utensils, etc. in a shared space with me.  My understanding is I may have to do a completely kitchen clean out and segregate foods with gluten and rid our kitchen of non-stick cookware, some wood and plastic (which we don't really have any anyway).

 

Scott Adams Grand Master
Scott Adams
Posted

I live in a mixed household, so it can be done, but it does take understanding from those in the family who still eat gluten.

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      A year and a half of test confusion...

      By trents · Posted

      I just want to reinforce what Scott said and that is we have tended to think in these neat little black and white categories of it's either celiac or NCGS when in reality it may not be quite that neat. There's just a lot we don't know and the immune system is very complex. I often wonder if I had been gluten free as a child if I would have avoided developing celiac disease as an adult. I think there is also this misconception that if you have NCGS, gluten is not harmful, it just creates discomfort and inconvenience.
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      I am actually in the middle of this article currently already!   Thank you.  This website is extraordinarily helpful.
    • Scott Adams
      A year and a half of test confusion...

      By Scott Adams · Posted

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      Gotcha.  I'll give 100% gluten-free a whirl after my testing concludes.  I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to be on the very early end, I think.
    • Scott Adams
      A year and a half of test confusion...

      By Scott Adams · Posted

      Given your long list of symptoms it would make sense to see if a 100% gluten-free diet helps relieve them, especially the anemia, and if so, it would make sense to just stay 100% gluten-free. Also, capsule endoscopy is not ideal for diagnosing celiac disease, as subtle villi damage cannot be detect by it.
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