Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

25 year biopsy confirmed/ate pizza with no ill effects?

Linedancegal
 Share
Go to solution Solved by knitty kitty,

Recommended Posts

Linedancegal Newbie
Linedancegal
Posted

Hello! I am a 25 year biopsy confirmed female. 2 nights ago my husband and I both got pizza, one regular for him and one gluten free for me. Yesterday we ate the leftovers, and afterward, I realized that I had eaten 3 pieces of the regular pie! I was prepared to spend the next day (my usual reaction time) being sick and sticking close to a bathroom. It's now 9:30 pm, and I have had no ill effects. How is this even possible? Can your body change enough over the years that I could no longer have celiac? I am totally shocked that I am not sick. Thanks for any input.

Pat V

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Solution
knitty kitty Grand Master
knitty kitty
Posted
  • Solution

Welcome to the forum, @Linedancegal,

No, you still have Celiac Disease.  You just have been on a gluten free diet successfully for so long that your body's immune system isn't reacting strongly YET.  

It can take many exposures consistently to get your immune system back to making the quantity of antibodies necessary for those typical symptoms.

Remember gluten challenges insist you eat ten grams of gluten daily for several weeks to produce the damage seen in endoscopy of small intestine and antibodies in the blood.  

Don't be fooled by no reaction today.  Don't think you can start eating gluten again.  Every exposure will stimulate the immune system.  

Hope this helps!

trents Grand Master
trents
Posted

We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.

shadycharacter Enthusiast
shadycharacter
Posted
9 hours ago, Linedancegal said:

Hello! I am a 25 year biopsy confirmed female. 2 nights ago my husband and I both got pizza, one regular for him and one gluten free for me. Yesterday we ate the leftovers, and afterward, I realized that I had eaten 3 pieces of the regular pie! I was prepared to spend the next day (my usual reaction time) being sick and sticking close to a bathroom. It's now 9:30 pm, and I have had no ill effects. How is this even possible? Can your body change enough over the years that I could no longer have celiac? I am totally shocked that I am not sick. Thanks for any input.

Pat V

Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.

trents Grand Master
trents
Posted

@shadycharacter, did you mean to reply to another post about sourdough bread? The present thread isn't about that.

shadycharacter Enthusiast
shadycharacter
Posted
26 minutes ago, trents said:

@shadycharacter, did you mean to reply to another post about sourdough bread? The present thread isn't about that.

Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. 

Scott Adams Grand Master
Scott Adams
Posted

The whole point of the gluten-free diet is to send the disease into remission. For some this process means strong reactions when exposed to even trace amounts of gluten, while for others it seems they have little to no reactions when exposed to larger amounts of gluten. In either case, research has shown that repeated gluten exposure will trigger the autoimmune reaction that leads to inflammation and various damage, as well as to possible additional autoimmune diseases. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Crystal H Newbie
Crystal H
Posted

Celiac will never go away, your reactions may differ from time to time.  Even if you don’t get sick, it is still doing damage.
I want to know where you got gluten-free pizza so good that you didn’t notice the difference between the gluten-free and the regular until after you ate 3 pieces!

Linedancegal Newbie
Linedancegal
Posted
  • Author

Hello Crystal, We actually got the pizzas from Pat's Pizza in Cinnaminson. And yes, you are correct, there is a definitely a difference. I totally forgot that he also had pizza, so I didn't think twice about grabbing the pizza box and just eating it. I knew that something was different (maybe the fact that it tasted good, should have been a good clue?! lol), but it just didn't click that it was an entirely different pizza until I went to put the box away, and saw the other box! Then I knew immediately what I had done, and expected to be very sick the next day, as that is when I usually react. I was shocked when I got no reaction, I usually do when being glutened by mistake. I have NEVER cheated on the gluten-free diet on purpose, so I guess I've been doing a pretty good job of staying gluten-free! Thanks for your response.

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,653
    • Most Online (within 30 mins)
      7,748
    Mary Miller A
    Newest Member
    Mary Miller A
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jenn D
      Still testing positive after being gluten free for one year ?!!

      By Jenn D · Posted

      Hi. Did your ema levels ever go negative? My son is 2 years in gluten free and they are still positive.  I'm scared he has refractory celiac disease. Please if anyone has any info greatly appreciate it. His ttg is 3 which is considered normal.
    • MomofGF
      Not sure if this is Celiac or just a gluten-free intolerance

      By MomofGF · Posted

      I will have that info soon but it was a laundry list of a test and 9 viles. ok so there were some days she was gluten she barely ate because of the reactions. I told her 3 weeks of atleast 10g’s a day and no gluten-free days. Thanks so much for your help! I didn’t know my suggestion for gluten-free days would have hurt her.    I will come back with the list to make sure the req was proper!! 
    • trents
      Not sure if this is Celiac or just a gluten-free intolerance

      By trents · Posted

      A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the testing. Was there a blood test done for IGA deficiency? Can you post the test names that were done with the scores and with the reference ranges used by the lab? By the way, with celiac disease the issue is not being able to digest gluten. Celiac disease is an autoimmune disorder defined by the fact that ingestion of gluten triggers an immune system response that attacks the membrane that lines the small bowel. The immune system mistakenly identifies the protein gluten as a biologic invader.
    • MomofGF
      Not sure if this is Celiac or just a gluten-free intolerance

      By MomofGF · Posted

      Hey all!! M i want to thank everyone for their suggestions and advice - I am a single mother of 4 (now 3) and was helping with my oldest leaving the nest. I have another child with medical issues and with work (it’s our end year), life has been crazy and I haven’t had the time to answer.    so we got a blood test done for my daughter that can’t digest gluten. She had been eating gluten for 2 weeks. The blood work came back normal? How is that possible. I see her with my own eyes and it’s not normal. Is that not long enough?  I am thinking about having her eat gluten another week then go to the hospital and see what they say.    She did have 3 gluten-free days in those 2 weeks but she was getting afraid to eat and I told her to may take a day off - was this a bad thing to do? Girl was having constant back pains and muscle soreness as well. Headaches/migraines…should I wait longer. I did see 4-6 weeks of Gluten consumption prior to testing… kind of at a loss now.    Thanks to everyone for whatever advice you can give.   Enjoy your Sunday 😃👋👋      
    • Scott Adams
      Query

      By Scott Adams · Posted

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...