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Jsingh

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Jsingh Rookie

My 5 year old daughter was diagnosed in January this year. Since we began gluten free diet, she has been symptom free (no tummy ache.). Only the first week of gluten free was the worst where she was in pain almost all day. No one can say gluten free withdrawal for a Celiac patient is not real.

Anyway, I though I'd make some quinoa cookies, and lo and be hold she has been complaining of tummy aches every other day since over a week now. I can't think of any thing else bothering her since this is the only thing we introduced in her diet. She has reacted the same way to buckwheat in the past. Rice seems to be the only grain she seems to be fine with. I dunno if she is super sensitive or because it's just early in the healing process and her body seems to reject anything floury- if that's even a thing, or the certified gluten free flours can also be contaminated. She seems to be fine with certified gluten free chocolate and chips etc.

I am just sharing this if any of you had any ideas or stories to share. The only other thing I can think of is sugar. We don't make many desserts, cookie is the only sugary snack made at home. Should I try certified glutenfree sugar- is that even a thing?

Thank you in advance. I am ever grateful to the people of internet.


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Scott Adams Grand Master

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.  

 

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    • cristiana
      This is a very good comment.  I found all sorts of things difficult to stomach for about 2 years after my diagnosis , that I was able to eat again after a while. Eventually there was one thing that I still couldn't eat and that was pure oats (i.e. those certified uncontaminated with gluten, the only oats we coeliacs should be eating).  I think it took until I was fully healed, and my antibodies were normal at last (about 8 years, from memory!) for me to be able to eat pure oats and now I have no issue with them whatsoever.  I remember nutritionists kept saying, "keep trying to reintroduce oats", and I thought "No way, José!", but they were absolutely right.  It is important to note, however, that a small percentage of coeliacs do react to the avenin in the oats, in the same way as coeliacs react to gluten, and that is something that will never change for them.  I thought I was in that group, but it turns out I wasn't in the end.
    • Gluten Free Jeff
      Thanks for sharing Scott. Congratulations on having a gluten-free daughter as well makes me proud
    • Scott Adams
      My daughter is 19 and is gluten-free, and for her high school seemed to be the hardest period to deal with. Peer pressure was intense and it sometimes led her to cheat on her diet. She is doing much better with it now.
    • trents
      Do you have officially diagnosed celiac disease? Or are you not a celiac but gluten sensitive?
    • Gluten Free Jeff
      In general I guess. I wasn't gluten free until I graduated highschool.
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