It’s frustrating how little awareness there is around celiac complications, even among doctors. Your discovery about histamine intolerance makes so much sense. It’s interesting how interconnected these reactions can be (heart arrhythmias from food? No one warns you about that). It’s great that antihistamines helped, and the ranitidine connection is a huge clue. Have you looked into low-histamine diets or DAO enzyme supplements? Some celiacs find relief there, especially with reflux and heart palpitations. And yeah, the ‘hidden gluten’ struggle is real—even after years of being careful, cross-contamination or sneaky ingredients (like maize starch or oats) can keep the inflammation cycle going. If you’re open to it, a functional medicine doctor (or even a telehealth specialist in celiac/histamine issues) might offer more tailored help than the NHS. Keep us posted!

Yes! pounding heart. I was getting a kind of allergic reaction to things that had been fine yesterday (I am totally compliant) banana cheese even lettuce, and I get heart ahrythma ie my heart beats really fast and misses some beats, I have had an ECG twice, but this is after it has gone off and calmed down in a few days. It was v scary. I took an antihistamine tab and it went off. So, time to go further down the rabbit hole, Docs in UK know no thing about Celiac I was told to join Celiac.org and ask them! I have, actually been mostly gluten-free for 28 yrs. Although I was not diagnosed until  2 yrs ago as I didn't eat gluten it never showed up in the endoscopies I had I been "clean" since then. but that's when all my problems started, maize starch, oats, real bad Heartburn for which the only remedy was Gaviscon. The only symptom  I had had for 12 years and 3 endoscopies was Acid Reflux, pain upper left chest, I made a couple of visits to A&E. During a time when I had found a bread I really liked that didn't affect me, I consulted my Doctor an told him I had no energy at all and I really felt there was something wrong with me. I had a full blood count and they picked up (finally because I had been eating gluten) that I had Celiac disease. Now two years later I'm no better really, still get Acid Reflux and now this heart arythma, I started a google hunt (oh thank god for google). Could I find an anti histamine that was not pharma? I discovered during that search that there was a reason why Ranitidine an H2  antagonist was the only medication that had helped me,  worked for me, it's because it neutralises Histamine! Apparently Celiacs have too much Histamine in their bodies, this level of H will cause the body to release more acid the help the body digest food.....hence Acid Reflux, caused probably originally by Histamine intolerance. So here's another food list a list of things I should not eat! Hey ho!

I think it couldn't hurt for you to be sure that your diet is 100% gluten-free with zero cross-contamination for a couple of months to see if that helps. If you're eating out you're likely getting some level of gluten in your diet. It's hard, but at least this would help you determine if gluten is the culprit.

Thank you to Trents, Scott, Christina and Bohanley for your replies!  I have been gluten-free for about 13 years and mostly dairy-free during that time. I haven't been diagnosed as Celiac. When I did the test I hadn't eaten gluten for two years and the nurse told me the test wouldn't be accurate. Anyway, once in a blue moon I'll get tempted and take a tiny bite of something. If I do this two or three times close together, I'll get nauseated and if I don't throw up right away to stop it, will spend about 8 hours throwing up off and on before it's over.  I've been using Ketaconazole shampoo for about two years. I like T-Gel, but the prescription shampoo is the only thing right now that calms my scalp down. Many times, my scalp looks pink or red. It just feels very inflamed. I wash my hair every day and use Ketaconazole pretty much every day. I've noticed that a hot blow dryer seems to calm things down too.  My dermatologist has guessed (his term) at seborrheic dermatitis. I really need more help than I'm getting.  Thank you to everybody! Carolyn 

Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.