Oats gluten free?

[knitty kitty]

  On 4/8/2025 at 3:26 AM, PA Painter said:

These were certified gluten free. I have a list of about 12 or so foods that do this.

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Have you had a DNA test to look for the most commonly occurring Celiac genes?  

There's some scientific evidence that Non Celiac Gluten Sensitivity is a precursor to Celiac Disease in genetically predisposed people.

Which foods do you react to?  How do you react?

[Jsingh]

Hi, 

Just to add to the possible cross reaction or contamination sources- look into how you are reacting to the milk protein casein, or course avenin in oats, quinoa protein, and also possible gluten contamination in cooking oils. 

I care for my six year old daughter with Celiac, and it’s only after removing all oils from her diet has she felt better. Not even Certified ones were okay. I don’t know why is that, but it is so. I cook in animal fat whenever recipe calls for some oil.
Nuts and avocado are the source of fat in her dieT otherwise.

[PA Painter]

  On 4/8/2025 at 5:57 AM, knitty kitty said:

 

Which foods do you react to?  How do you react?

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I've had the testing up to the biopsy. Once they confirm the intestine is not affected they cease pursuing further diagnosis, regardless of extra intestinal symptoms. They refuse to pursue anything non celiac. 

I react to: banana, avacado, fresh cabbage, yogurt, pecans, walnuts, xantham gum, and obviously wheat, barley, etc.

Even so called "gluten free" food cause a violent reaction. Believe it or not. I can eat 3 Tostitos any more than that ruins my next three days.

I did have one of the genes for potential autoimmune problems but they said it could mean anything. The most I get in the stomach is acid reflux and hot snakes. My intestinal symptoms are minimal. I think the pathology is different in way yet similar in others.

[trents]

  On 4/8/2025 at 5:57 AM, knitty kitty said:

Have you had a DNA test to look for the most commonly occurring Celiac genes?  

There's some scientific evidence that Non Celiac Gluten Sensitivity is a precursor to Celiac Disease in genetically predisposed people.

Which foods do you react to?  How do you react?

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This. How long has it been since you were tested for celiac disease?

Edited April 8 by trents

[PA Painter]

Yes, excessive neuropathy and a debilitating headache, spasms, cramps, tremors. Very much what you would expect from Parkinson or MS, only it coincides with the food and resolves 100% with a whole food AND gluten free diet. The gluten free diet was not enough on it's own I had to eliminate all processed food as well.

They did the biopsy a year ago. 

[Scott Adams]

The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal, although this may not be the case for everyone.

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