Celiac Ataxia Neuropathy

[Rhapsody]

Long story short, I'm a bit overwhelmed at thinking I might have Celiac Ataxia Neuropathy. First Ataxia symptoms 13 years ago, kept falling of bike. Experienced rider. Now have severe neuropathy and waiting to see Neurologist in 3 weeks. Saw Rheumatologist today. Exhausted. Can't take photos this year cos balance is poor and I keep falling down.  Trying not to panic but it sure isn't easy. Need wheelchair at appointments. Wish me luck. The pain is extreme. Thanks!

 

[Scott Adams]

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

It took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.