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dermatitis herpetiformis + Thyroid

OhCrumbs
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OhCrumbs Newbie
OhCrumbs
Posted

Any folks here have dermatitis herpetiformis and thyroid issues? I read that there is an unexplained association between the 2 diseases. https://pubmed.ncbi.nlm.nih.gov/3966757/

I've had thyroid issues since my 20s and now developed dermatitis herpetiformis in my 40s. My question is, if I have to avoid iodine in my diet, would that worsen my thyroid problems? (Since Iodine is an essential nutrient for thyroid hormone production) If anyone has found an answer from their doctors, I'd love to understand how to manage these 2 diseases. Thanks so much.

 

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knitty kitty Grand Master
knitty kitty
Posted

Hello, @OhCrumbs,

I've got both dermatitis herpetiformis and thyroid problems.  I found a drop of Lugol's solution applied to the skin every so often takes care of my iodine requirements.  Just one drop is sufficient.  Be careful!  See article below.

I also found High Dose Thiamine very beneficial in my thyroid problems.  The thyroid uses lots of Thiamine, and frequently Thiamine deficiency is overlooked as the cause.  Celiac Disease causes malabsorption of nutrients, so boosting our absorption by taking vitamin supplements is beneficial.  Thiamine is nontoxic and safe in high doses.  Thiamine is water soluble and easily flushes out in urine.

Hope this helps!

References:

Look Out for Lugol’s

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4495864/

Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients

https://pubmed.ncbi.nlm.nih.gov/37278003/

 

Familial Beriberi: Discovering Lifelong, Genetic, Thiamine Deficiency

https://www.hormonesmatter.com/familial-beriberi-discovering-lifelong-genetic-thiamine-deficiency/

 

The importance of thiamine (vitamin B1) in humans

https://pubmed.ncbi.nlm.nih.gov/37389565/

 

Scott Adams Grand Master
Scott Adams
Posted

We've had many members post about thyroid issues, but here is a category of articles on the topic:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ 

Jacki Espo Rookie
Jacki Espo
Posted

Hi, this is interesting. I have thyroid cancer. Developed suspected but undiagnosed dermatitis herpetiformis in my 40s.  I do not know the answer to your question unfortunately but tracking this!

knitty kitty Grand Master
knitty kitty
Posted

@Jacki Espo,

So sorry to hear about that.  

High dose Thiamine has been shown to have anti-tumor effects, while low dose Thiamine may promote tumor growth.

High dose Thiamine is safe and nontoxic.  

Selenium is beneficial for thyroid health.

Keep us posted on your progress!

References:

Selenium and thyroid diseases

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10080082/

Thiamine supplementation to cancer patients: a double edged sword

https://pubmed.ncbi.nlm.nih.gov/9568183/

The Dichotomous Effect of Thiamine Supplementation on Tumorigenesis: A Systematic Review

https://pubmed.ncbi.nlm.nih.gov/34854769/

High Rate of Thiamine Deficiency among Inpatients with Cancer Referred for Psychiatric Consultation: Results of A Single Site Prevalence Study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5124411/

Vitamins and Minerals for Energy, Fatigue and Cognition: A Narrative Review of the Biochemical and Clinical Evidence

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7019700/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

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